ok today i took Tristan to his neurologist and i'm more confused now then i was. He has been having terrible migraines--3 to 4 a week since August. Even his Torodol hasn't been helping him much. his last MRI was in oct 08. so it is time for his yearly check. which i was informed today that he doesn't have to have each year (this neurologist was the one who told me he did). And then on top of that he told me that he didn't have to have one with Contrast (which his neuro-surgion told me he would always have to have done). He gave him depacote (sp?) to try to stop the headaches, so we started it tonight. He mentioned he would have to have routine bloodwork to keep a check on his liver. This was the same meds that he didn't want to put him on 6 months ago because of his age (10). Not sure what has changed in that time limit. i'm having trouble with trauncy because of the headaches. If i send him to school and he goes to the nurse they fuss and if it is so bad that i don't send him they fuss about that too. so i can't win either way i go. Has anyone taken Depacote and it help with the headaches?? anyone have information or know where i can find information on Home schooling?? It seems like the only option that i have to get out from under the school systems attendence rules. Any help would be greatly appreciated!
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Ok once again confused
- By Sheleena
- Posted November 3, 2009 at 7:56 pm · 2 replies
- In NF1 and children
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- By swtlilwamom
- Posted November 3, 2009 at 10:12 pm
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WOW...I'd be asking some questions. Try to schedule another appnt with the Neuro, and ask everything you just asked here....You should never go away confused.
I cant help with the meds....BUt Id be leary about any drug for a 10 yr old, which would require blood work to chk on his liver.....that just seems a bit off to me.
If you cant get an appnt soon...Id call and have the Neuro call u back.
Be sure to have EVERYTHING written down ( I always turn into a brain dead person when I get in front of a DR )
Good luck
- By sweetiecat
- Posted November 5, 2009 at 1:14 am
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Oh NO Depakote!!!! I don't want to scare you but then again I do! I took that for depression. It made me so sick. On top of making me sick with the side effects it made me as crazy as neurotin did... AND I gained about 50 pounds fast!!!! Find a new doctor.... I agree if he is having problems with his head he does need contrast... I have a small lesion and they always do contrast... One time I was in a different hospital and the neurologist didn't order contrast and I told the tech I needed it and he refused to do it that way well about an hour later they were taking me back to the x-ray department to do the contrast.... BEWARE of the Depakote... e-mail me if you want to.. stuartdebby@sbcglobal.net I feel very strongly about this.. If my body could not tolerate it.. think about his little body... oh my!
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