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Is there any link to behavior and NF?
My daughter is otherwise a happy, thoughtful, loving little girl...but sometimes she just goes off the deep end with her behavior. Some is linked to her frustrations with school (understandable and we are working on correcting it) but sometimes it is just defiant and unexplainable behavior. I'm not sure if she is just being a kid or if this is NF related?
Hello Sringo,
Yes.
When my son was dx'd with asperger's at Hasbro's Children's Hospital in Providence, the doctor there told me that nf plays a factor with behavior. That was the first time that I heard that in the 30 something years that I had nf myself.
It could be anything....all children have blow outs from time to time. Some NFers have ADHD type tendencies so that could account for impulsive behaviour but not all NFers have that and not all NF children have behavioural issues. I would be very concerned that this is more the result of frustration at school. It can be very frustrating and damaging for any child, particularly an otherwise bright child, to struggle at school and not meet their academic potential.
Cindy
my daughter is 20 now and has always had behavioral problems. i have always questioned if it is normal, nf or her add. she has always had socialization problems, she doesnt keep friends long and the friends she picks are never right. she has anger issues and then blames it on having nf and hating that she has it. now at her age, i wonder if it is hormonal. we have her seeing a counselor to maybe get things off her chest but she fights us and says she doesnt need to talk about anything, that she is fine. she can be so sweet and then crazy mean...we are working on it...
that crazy cause u describe my daughter in so many ways. it true lots of her attaitude n behavior has alot 2 do with nf. she just turn 18 n think she no everything. in fact she moving out .into her boyfriend house which he live with his mom, but his mom is old school, ur not marry u dont sleep in the same room. she got the couch.i have 2 let her go. thx god shell only b 7 mile from me where i can still keep an eye on her
I think it does, as my son has a lot of issues.
Definitely can have an impact on behavior and learning issues. Your child might be acting out due to learning issues at school. Might be frustrating. Try ro see a neuro-behavior specialist and get a work-up as ADHD is also common. Many teachers and I would have to say most do not even know what NF is and can be quite ignorant and label your child as a "problem child". I myself had this problem last year with a teacher who thought her strictness would fix my daughter in the class room and boy was that teacher in for a big surprise! Having a nice, kind teacher who understands that there are some issues is helpful...you don't want your child "babied" at school but you do want people to understand that it is the NF causing the behavior...not the child. Hang in there and let us know how you make out. Don't give up!!
I`m afraid is NF. She needs a lot of support from you. I suggest you to study some pubblications about the issue. I´m doing it.
I had alot of behavioral issues growing up. Mainly hyperactivity. Really cannot speak on ADD, don't think I had any issues with that. I would say the problems are related to NF.
My son in photo was diagnosed with NF1 at 6 weeks, ADHD at 5 yoa and then recently at 11 with Aspergers Syndrome. The ADHD and Aspergers are both behavioral problems. We found out about the Aspergers when I read an article about another child who had the same behavioral characteristics that Ro was displaying. There is plenty of information on Aspergers Syndrome on the Wikipedia website for research purposes.
I don't have kids, but I'm 28 and have NF. I was diagnosed as a baby and never had any problems with behavior. I know there's a genetic link between NF and Autism- Aspergers is a high functioning form of Autism. So there's always that possibility. But in terms of NF being the sole cause of behaviors I don't think so. I agree with others that there may be an underlying cause like ADD or ADHD, or behaviors could be due with how other children are treating your daughter. It could be a defense mechanism or coping strategy depending on her NF symptoms. I'd get her checked by a doc who specializes in NF and maybe ask for a psych eval for ADD/ADHD testing.
I have a 5 yr old daughter who is now in kindergarten but in a Vanguard G/T program and she has NF1 and a benign tumor (optic glioma in the orbit) and had lost her vision in that left eye at 2 1/2. She loves school and she never has any behavior problems in fact most of her classmates always comment to me that she is always so good and never gets in trouble. She makes us look so good cause at home it is totally opposite!:0 I guess she knows what she can get away with at home.:)
That is my daughter spirited! At school they praise how wonderful she is!
But at home she is different. I don' t mean all the time, nor do I mean during homework (that is it's own issue) but regular stuff like "I can't pick up my own toys" and "I can't take a shower by myself" erupts into behavior issues. It sounds like it is just kid stuff, but I wonder if NF has anything to do with it. She is 9 and has not been, nor does she show any symptoms of ADHD, ADD, etc.
Sounds like maybe it does. I am still going to stick to my guns tho...she has to know what are good choices and what are bad regardless of NF. I have taken a new approach with her recently, one use with my preschool class, and it seems to be helping.
This is very interesting to me.....
The answer is both, but mainly the fact that she is a kid im 30 with NF. im originally from Northern Ireland so i do already have a scots-Irish temper and have to admit all my faults are just part of my wonderful gifted personality :) When do we learn to control are emotions? Some people are afraid of the dark, spiders, heights, small rooms, some people get really angry when people yawn without covering their mouthsor eating loudly and slurping soup loudly. defending one from insecurity can also seem like irrational behaviour. Everyone has times during the day where they need to stop and say internally "Change your attitude", " Dont Fly off the handle", its not a bad thing to distract yourself and "look at the flowers", so to speak. im 30 maybe an immature 30 but i do this. The fact that you know your kid has up and down emotions means your not blind and not a mushroom. fact is start to worry when your kid shows no intelligence of the heart. remember that the old saying "There is nothing in a caterpillar that tells you it will be a butterfly"
Good luck
All this stuff describes me as well.. even now.
I would recommend you take her to her pediatrician and get referred for an evaluation for ADD or ADHD. My son has those same issues....Kids with NF do get easily frustrated due to their attention span being so different than kids that do not have NF. NF effects so many things. My son is 14 and I am 35. I was JUST diagnosed with ADHD. I struggled in school and stayed frustrated. I saw these same traits in my son. I had him tested in 1st grade. It's not a "quick fix," but it does help them once they are on the right medicine for them. Every person is different. It's a struggle, trust me, I know. Keep your head up and just know that kids with NF just don't process things the same way that kids that don't have NF do. Things sometimes are much more difficult. Best of luck.
My son is 6 1/2 and has nf type1 and he also ad/hd and OCD. and is on med's for it and helps but not all the time. he dose not like to sleep if we are lucky we may get 3hrs a night but not at one time it may be 15 min 20 min there, i wish there was a way to heal him . i myself and my 2 yr old also have nf type 1. please someone send me a message i would like to able to talk with other parnets with kids with nf
hi yes deffo my daughter has nf1 she now 7 nearly 8 when she started school her reception teacher said she cant put her finger on it but there something about her thats not right i no children with nf can have learning difficults and with help can get on ok but bethany has social proplems with her peers would do things with out thinking like flooding the school loos you may wel laugh but when you get to y1 and still think its ok she can kick off at silly things to us but to her they are the end of her world she used to be a nightmare in town going under clothes when looking into nf1 i found out some can have adhd so working with the school and a year later she got diganoised with adhd she is on medication this has helped with her schooling helping her to concentrate more she still has proplems with her peers she gets on better with younger or older children girls do differ from boys girls are more inatentive then hypo she does love musical theatre and this has helped her a lot i try and let her do these things as just because she got adhd does not mean she should not be able to i do find it hard as she does not act age approrate but she is a loving child i hope this helps sharon
I really don't think it is ADHD in my case. The part that confuses me is when she is in school there is not a single behavior problem, but at home there is.
Really, I shouldn't be complaining at all as her behavior has been pretty good lately. I just really wanted to know if there was any with behavior and NF. I'm still not clear if there is....sounds like maybe the link is to ADHD?
i dont have ADHD but i have behavior problems i get all mad over nothing and when some one annoys me like my mum i swear shout and tend to try and break things and once my mum was annoying me so i had a big burst out and i was kicking and screaming swearing throwing breaking and it was terrible i was lying on the floor and my mum had to keep hold of my legs and try and calm me down xxx
i dont have ADHD but i have behavior problems i get all mad over nothing and when some one annoys me like my mum i swear shout and tend to try and break things and once my mum was annoying me so i had a big burst out and i was kicking and screaming swearing throwing breaking and it was terrible i was lying on the floor and my mum had to keep hold of my legs and try and calm me down xxx
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