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NF Hero Julia Perfetti to be on the Today Show, Thursday July 2

By LumpsandBumps
Posted July 1, 2009 at 10:39 pm · 13 replies
In News, research and advocacy
Shared with the public

http://ctf.org/Living-with-NF/nf-hero-julia-perfetti-on-to-be-on-the-today- show.html
Six-year-old NF Hero Julia Perfetti and her mother, Laura, will be featured in the "Everyone has a Story" segment of the Today Show on Thursday, July 2, between 10.30 and 11 on NBC! The announcement follows an email Laura, and husband Anthony, sent to the producers of Today (see below). The Perfetti's are very active within the Foundation and we salute their commitment to promoting NF awareness and raising funds for treatment and a cure for NF.
For more on Julia's story please visit the Team Julia Bug site here.
http://www.teamjuliabug.com/Home_Page.html

13 replies

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By Cara_B
Posted July 2, 2009 at 12:55 am
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That is so great, especially in light of the MTV discussion.

By Irishlady79
Posted July 2, 2009 at 5:31 am
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thanks I'll have to tape since I'll be working

By MomandRN
Posted July 2, 2009 at 7:41 am
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thanks! My baby has a doctors appointment at that time so thanks for the heads up so I can tape it

By baileysboots
Posted July 2, 2009 at 11:16 am
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at last I must figure out my TIVO

By MegaNFer
Posted July 2, 2009 at 1:40 pm
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Is there anyway we can access it online? I ws up at 10- tried to find it; was not on. Neither was it on at 10:30. (I'm in MD- was getting Regis & Kelly on NBC).