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I am wondering if kidney stones are a part of the NF baggage - have any of you had kidney stones ever? - if so what type NF do you have.
My brother and I have had them all our lives - the only ones in our family and we also have hearing problems.
Thanks in advance.
Dear Santel,
I have NF1 and I've had numerous kidney stones. I never related it to the NF before. That is a good question. I'll be anxious to what others have to say on this subject. One kidney stone wouldn't come out and it had to be removed. Since then I decided the next one I have they will remove it immediately! Having a kidney stone is the worse pain I've ever had.
My brother has a moving stone at the moment - he has 4 children - tells his wife she had 4 labours, he's had dozens - I have to agree.
Hi there
I have NF1, but thank goodness I have never had a kidney stone. I have never heard of any connection with having NF, and I higher chance of getting kidney stones.
i had kidney atones 10 (TEN) different times.they had to operater every time.finally my lefy kidney just quite working they had to removed it back in June of 1999.Since then i have had no Kidney stones.
Ive had stones forever....surgery and still get them all the time!
Drs are kinda baffled with me.....my left kidney seems to be worse than the right...Ive done Stents, and lithotripsys...and still have pain.
Hi;
After 10 years, I've never hard of a correlation of kidney stones and NF-2.
I believe some are more prone to stones than others for various reasons.
In the general population, kidney stones are not so uncommon.
Painful things, I hear! I'm sorry...
Russ
Hi Russ -would you be the Russ C who keeps things moving at ANworld? I miss being able to get in there - my ISP is a problem there. San
Hi San;
Yes; I'm at ANworld, but don't know that I'm the "mover". : )
Re, subscribing, have you emailed Philip directly, or tried subscribing another email address?
philip@anworld.com
To get to the subscription page, Google Acoustic Neuroma + anworld and follow the subscribe instructions toward page bottom.
Have a nice day!
Russ K.
I have NF1 and I had a kidney stone about a year and a half ago. I don't think it had anything to do with it.
The doctor said the kidney stone developed from too much calcium.
I have NF-1 and had Kiddney stone last year never thought to ask about NF
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