my doctor acts like he has no clue whats going on with me,,
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my doctor acts like he has no clue whats going on with me,,
A quick Google search netted this result that might give you a lead:
http://www.wrongdiagnosis.com/n/neurofibromatosis/doctors.htm
You might try searching for NF and a close city and MD, on Google and seeing what you find.
Good luck.
If you have medical insurance, you could call them and see if they have any providers that have NF experience. Also, if you are near a university medical center, you could go on their website and search the dr.s there. Also, try asking your primary care physician or that of a family member who they recommend.
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