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I live in Washington State ( Seattle ) does anyone know of a doctor that specializes in NF and the UW did help me at all
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Need to find a doctor who knows about NF
- By GregWFSr
- Posted July 20, 2009 at 5:10 pm · 9 replies
- In Living with NF1
- Shared with the public
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- By Lrnx33
- Posted July 21, 2009 at 7:28 am
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I looked around on the internet and found this site i dont know if it will help i just typed in nerofibromatosis 1 and got this https://healthlibrary.epnet.com/GetContent.aspx?token=af362d97-4f80-4453-a1 75-02cc6220a387&chunkiid=11650
- By coco76
- Posted July 21, 2009 at 6:07 pm
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dr. kleot
http://depts.washington.edu/neurosur/faculty/kliot.html
i go into the nf chat room and two of my buddies
that are regulars has had surgery by this doctor.
his first name is (michele) but it is spelled like michel
nice person. he might send you to the scca who
has doctors that deal with tumors. it is the
cancer center but dont let that bother you.
try getting into the nf chat room. there are
several of us in there from washington.
im one of them. it is hard to get in
just keep trying.
im coco
- By coco76
- Posted August 30, 2009 at 2:05 am
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sorry it has taken me so long
to answer.
the nf chat room can be
accessed via internet.
i use google for my search
engine. type in 'nf chat room'
The NF Chat Room
Welcome to the new and improved NF Chat Room. Thank you all for your patience as we upgraded our chat software. The NF Chat Room is an important community ...
click where you see these words.
you'll have to answer a few questions
and give yourself an easy nickname.
something that is easily typed by
the other people. long words with
numbers is hard to address.
it is very hard to get in the room. just
keep trying.
once you're comfortable with the people
you can give your first name.
there are a lot of people who are very nice
and a few that are cantankerous but they
are nice too. you might even find
someone in your home state.
once i found someone who is friends
with one of my neighbors!!!!
keep trying...and
good luck.
coco
- By pjkd
- Posted November 3, 2009 at 3:45 pm
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There are some dr's in denver colorado my son goes there and see one.
- By DigitalBuddha
- Posted November 3, 2009 at 4:05 pm
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This is my Doctor; I believe they are number one in Neurofibromatosis Research.
http://www.healthgrades.com/directory_search/physician/profiles/dr-md-repor ts/Dr-Scott-Plotkin-MD-0693BAE1.cfm
- By suzyq64
- Posted November 3, 2009 at 5:00 pm
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I am in Tacoma,Wa and I see DR. Morris and am very happy with him.WE were all set up to go to the University of WA but I met with DR.Morris first and he is very knowledgeable.
He has done 2 surgeries on me in the last 3 months.
- By njm047
- Posted November 3, 2009 at 10:33 pm
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Houston at M D Anderson Cancer Ctr. Omg. The best drs at the brain and spine facility. The have geneology siurgeons audiologoists all can deal with nf
- By Ravenwood
- Posted November 3, 2009 at 11:54 pm
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Dr. Kliot at UW Main Campus and Dr. Earnest "Chappie" Conrad at UW Roosevelt are the 2 in Seattle I see..
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