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hi im mandi and am 23 i have nf not sure if its 1 or 2
but i recently found a tumor about the size a maybe golf ball maybe bigger on the back of my leg and it is very close to the back of my knee like inches away, it hurts alot when i stand for long periods of time or bike ride
i and want surgery but am terrified of amputation and advice of help i go to the Dr.. the 9th
Don't worry about amputation right now. Just get it checked out to see if you do need surgery and then discuss your options with the surgeon. If the surgeon suggest amputation get a second and third opnion first. That is what I did before I had my hysterectomy. Your health insurance provider should pay for the second and third opnions. It could save them money too! I'll be thinking of you!
I agree with sweetiecat, If you have nf it is probably just a pesky fibroma.
Good luck and keep us posted.
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