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I am moving back to Michigan and in need of a good Doctor. I am in the middle of trying to get a diagnosis and I am looking for a Dr. who may have a clue what NF is.
Frustrated, anxious and in pain,
Jennifer
hey i go to the university of michigan. the docs there are fimilar with nf and nf2. dr thompson and dr elkashlin. check them out
I live in the Detroit Area and go to Michigan Ear Institute. If you go the the CTF website they list NF clinics by state.
Contact Rosemary Anderson of the West Michigan NF support group. www.nfwestmich@aol.com phone 616-451-3699 She is full of resources.. She helped me find my doctor here in Ohio! She takes personal phones calls. Her daughter is Gillian Anderson of the X-Files.
Where in Michigan are you coming to? I am in the Grand Rapids area.
Henry Ford Hospital
City, State: Detroit, MI
Phone: (800) 436-7936 (800) 436-7936
Contacts: Clinic Director: Howard Feit, MD
West Michigan Neurofibromatosis Center
City, State: Grand Rapids, MI
Phone: (616) 391-2414 (616) 391-2414
Contacts: Bernard Eisenga, MD, (Internist); Karen VanderLaan, MD, (Pediatrician) Albert S. Cornelius, MD, Director of Pediatric Brain Tumor Clinic, Helen DeVosChildren's Hospital; Phone: 616 391-2086 616 391-2086
University of Michigan Health System
City, State: Ann Arbor, MI
Phone: (734)764-0579 (734)764-0579
Contacts: Clinic Director: Jeffrey W. Innis, M.D., Ph.D
Hope this helps Its from www.ctf.org
Kim
HI,
My NF was diagnotsed at the University of Michigan-they are very knowledgeable. Also, as someone mentioned above, Rosemary Anderson is a super person and very knowledgeable of NF.
Mertyle
Welcome back MIchigander : ) You didn't mention where in MI you are coming back to but we have a top notch NF Clinic here in Grand Rapids. Located through Spectrum Health. :)
Maybe as an adult I would go to the Uof M.......I will never take my child near those crazy people again. They misdiagnosed her to the point of her almost dying. NO LOVE FOR U OF M.
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