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M.D. Anderson - Houston?

KatiesDad1
  • By KatiesDad1
  • Posted October 14, 2009 at 4:53 pm · 8 replies
  • In NF1 and children
  • Shared with the public
  • Edited October 14, 2009 at 4:53 pm
0 Recommendations

Our Katie just turned 2 and has a growing bilateral optic glioma impacting the chiasm. We are currently in Ausitn, but there isn't a great deal of childhood NF experience here....We are contemplating taking her to the MD Anderson NF clinic in Houston - and may wish to coordinate treatment between our Houston and Austin physicians.

Has anyone with an NF child had an experience at MD Anderson? How does one go about getting in to be seen there? I have called the main # a few times and they've transfered me to leave a voice mail with a nurse...but had no response.

Thanks for any input.

Explore topics in this discussion:

Cancer Surgery Glioma

8 replies

tresham

Wish I could help. I have heard they have a good clinic.
When we lived in the Dallas area, we'd go to the clinic and Dallas Children's Hospital....

Is this what you already have...?
MD Anderson Cancer Center
City, State: Houston, TX
Phone: (800) 392-1611
Contacts: Clinic Director: John Slopis, MD Notes: Adults and Children


There is also a Children's Hospital in Austin,
Children's Hospital of Austin
City, State: Austin, TX
Phone: (512) 324-8561
Contacts: LaDonna Immken, MD

kookie9h

I recently had surgery at md anderson. It a great hosiptal. I self register. I was from out of state.

KatiesDad1

Does self register mean you approached them without word from another doctor? We just didn't know whether the NF Center was just something the average person just called for an appointment.

kookie9h

Yes , I did that along with the surgeon.

KatiesDad1

Hi all -

Thanks so much! Using the contact number you provided I was able to reach MD Anderson and get the process moving so we can see Dr. Slopis - we hope within the next two weeks...I love this site!

Kierstysmom

Hi. We're in Austin too. My daughter has seen Dr. Immken for her DX, but because we see several Dr's out of Scott and White, I decided to go there. They have a new geneticist, Dr. Blazo, who I'm told used to work at the NF clinic at MD Anderson.

rkchoi

I just found your post and thought I'd add my 2 cents. Our son, age 8, was diagnosed with NF around age 3. We have been seeing Dr. Slopis for the past 3 years or so. He is an amazing doctor and Katie will be well taken care of under his supervision. Feel free to contact us if you have any questions.

winse31

I have been a patient of Dr. Slopis's since I was 7, and I am now 24 years old. He is wonderful! I just saw him this summer actually. He is very kind and I always felt comfortable around him, and felt safe in the hospital.

The child life staff are great resources, and I would look into getting one to talk with your daughter. My friend's mother is one and works with Dr. Slopis. Her last name is Willeford, but I don't remember her first name.

Good luck to you. I know MD Anderson will take good care of your family.

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