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I have been having pain and weakness in my joints. Lately it seems to be my left elbow joint. Its not outside like I bumped it, but inside. If I pick up even the lightest weight.. less than a pound sometimes, it fels like the bones and tendons are ripping apart. Is it possible I'm getting soo feeble and weak? As always my back and knees are a problem as well. Just wondering if anyone else is fallin apart at the joints.
My back hurts and feels like someone is ripping me apart. My legs hurt=gets numb sometimes I fall.
Yea I get that too, I am so glad other people understand.. Its hard to get someone that dont know what your going through to understand it.. The pain is there everyday all day.. I just have to take pills to get by and if I dont have any then i suffer and no on understands it, i mean no one around me anyway..
Sometimes my right elbow feels like it wants to lock up and it hurts really bad just to move it. Almost everyday I'm in some kind of pain. My back and knees always seem to hurt and the pills that I take make me very sleepy then I spend my nights up because I can't get to sleep. No one I live with understand what this pain is like and trying to explain it to them isn't easy either.
It would we hard to point to NF has the sole cause of pain, but it could have an impact on overall pain. As with most people with NF I also have pain in the joints, primarily in the knee.
There is not a moment that goes by that I do not have pain from the pressure the tumors in my spine are putting on my back. It goes from mild to severe everyday, and I have to take pain meds all day to cope with it. I have pain in the rest of my body mostly from the thousands of tumors that I have on the inside of me, there are to many to count. I do get pain in my knees all the time, but I am not sure if it is from the NF or something else. I sometimes wonder how I will make it through the rest of my life, even harder when I think that it will only get worse from here, no chance of things getting better.
Yea I don not have that proulblem but I have Bumps on my nerves and they become painfull and yes some times my back hurts where I have a nerve growing oout of it. and I am Double jointed can pop out my joints willing. But I am allways in PAIN!
Like many of you, I am also in pain from the time I get up till I go to bed. I am also on pain medication. The worse time is when I get up in the morning. Some days I don't want to even get out of bed, but my cat makes me. He nudges and nudges me till I get up. Then, there are days when I think, this is what I will face for the rest of my life. I know that I am very lucky compare to a lot of people, but it is still hard even though I try to keep busy.
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