just found this site and im so happy with to read other peoples stories! so many of my questions have been answered! although im looked after by my consultants and go for eye hearing tests every 18 months and have an mri scan every 2-3 years it doesnt answer all my fears i have! for now im not even thinking about nf1 but living life to the best i can! Friends of mine who are what we call healthy have had children with disabilities and who are quiet ill so because of that and the positive stories here i do intend to have children! I will love them either way and in todays world medicine is improving all the time so who knows!! Any extra bumps i get are only cosmetic and dont really matter do they! im healthy other than that! i do have a few little ones but none that you would notice and im grateful for that! so for now im going to keep going to my appointments and hope all is okay in the future!! but until then im planning to live and love life and not worry so much!! XXX
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im not alone
- By DonnaB78
- Posted November 2, 2009 at 6:17 pm · 2 replies
- In Living with NF1
- Shared with the public
2 replies
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- By alicia2408
- Posted November 2, 2009 at 11:19 pm
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Im happy that you found this site. i was so happy when i found it aswell. i have only met one other person with nf. Now i can talk with people all over the world that knows what it is like living with nf. great to have you.:):)
- By TaniaJ
- Posted November 3, 2009 at 6:43 am
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Donna that is a great way to feel.
I was also so glad I found this site. Even though only my husband and two children have only very mild forms of NF1 it helps to be able to talk to other people and someone out there can usually answer any questions that anyone has.
This is a great community.
Best wishes to you.
Tania
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