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Has anyone used Avastin for NF tumors?

Thordur
0 Recommendations

I have NF2 and now the Dr are thinking about a Avastin treatment which is rather new to NF patient (or so i heared.).

Is there anyone with NF on this board which has used, or is using Avastin? How is it working, are there many side effects?

I have a few tumors in the spinalcord which have grown and cause a serious amount of pain in the back and shoulder area. This Aavastin is thought to minimize these tumors IF it will be allowed for me in Iceland.

Dotti

Explore topics in this discussion:

Cancer Colorectal cancer Avastin Glioblastoma Breast cancer Pain Lung cancer Schwannomatosis

7 replies

Stacey1988

Id never heard of it untill just now. But I did find a site with some good info. Hope it helps

http://www.avastin.com/avastin/index.jsp?hl=en&source=hp&q=Avastin&meta=&rl z=1R2GGLL_en-GB&aq=f&oq=

cyndie

my doc wants avastin for me.....but my insurance isn't gonna cover it.....i've heard that it's one oF OUR best hopes

cyndie

hi,

my doc finally got an apporval for Avastin for me, my treatments begin on tuesday......have you had any treatments?

i'll keep you posted

sami_mom

They discussed Avastin at a symposium I was at. THere was good results the doctor was from a University in Boston. It might be worth a contact.

cherie-t

Avastin is an anti-angiogenic agent that is approved in the US for metastatic colorectal cancer, metastatic breast cancer, metastatic lung cancer, recurrent glioblastoma and renal carcinoma. There is a protein that malignant tumors express called VEGF. VEGF is normally present in wound healing and fetal development. VEGF stimulates the production of vasculature or "new vessels" which in the cancer world, potentially leads to tumor growth and spread. Avastin works to "soak up" free floating VEGF in the circulation, thereby, preventing the VEGF to stimulate angiogenesis or the development of new blood vessels. Some people have said it "starves the tumor" of the blood supply it needs to grow and spread. You can find more information on www.avastin.com. I have heard it is being used in clinical trials with NF. My neuro-onc who is from Mass General has spoken to me about it. I have segmented schwannomatosis. Good Luck!

Thordur

Thanks for your reply. I have not started the treatment but it is being planned as we speak. I would really like to hear how things are going on your treatment and will also keep you posted.

Ps Cherie-t thanks for the webside.

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