Join Neurofibromatosis Inc. California at Children's Hospital Central California for a free educational meeting about life with NF.
The meeting is open to the public. Those with Neurofibromatosis and those who support those with Neurofibromatosis are highly encouraged to attend.
Keynote speaker:
Dr. Dawn DeLozier, Medical Geneticist
Benefits of attending:
Learn how to recognize the signs and complications of NF.
Connect with local Neurofibromatosis support.
Interact with others who understand the diagnosis.
The NF diagnosis can be over- whelming. Many have the impression that since there is no cure, there is no advantage in learning more about NF or in seeking support. Attending this meeting will help patients better understand the essential nature of proactive medical care and provide physicians with tools to better support NF patients.
The needs of both adults and children will be discussed. To help families wishing to attend, there will be a free kids club for those age 18 months to 15 years.
To RSVP, please contact Maria staffwriter@nfcalifornia.org
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FREE Educational Meeting in Central California
- By JaxonsMom
- Posted September 29, 2009 at 5:57 pm · 3 replies
- In News, research and advocacy
- Shared with the public
- Edited October 1, 2009 at 5:51 pm
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- By cyndie
- Posted September 30, 2009 at 12:08 pm
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is this for nf1 or nf2? where in central calif?
- By JaxonsMom
- Posted October 1, 2009 at 5:56 pm
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It will be an overview of both - then there will be a question and answer period.
It will be at Children's Hospital of Central California, just north of Fresno from nine am to eleven am - with time for socializing afterwards for those who wish.
Maria
- By JaxonsMom
- Posted November 3, 2009 at 1:02 am
- Report post
The meeting is this Saturday! My kids are SO excited! They've met friends at other NF activities and are really looking to reconnecting - and making new friends.
I'm looking forward to hanging out with others who understand the stresses of NF. It's been a tough month!
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