Has anyone with NF1 had a baby and if so did your condition get worse or stay the same while you were pregnant? I am just curious and I know it may vary from case to case but any help on this would be great.
Has anyone with NF1 had a baby and if so did your condition get worse or stay the same while you were pregnant? I am just curious and I know it may vary from case to case but any help on this would be great.
Hi, I have had four children I am living with NF1 it seems that the bumps came out alot while I was pregnant.I have more on my stomach and back. Each pregnancy is different my last I had twins it was more difficult. The bumps that I have hurt if you touch them.I hope this helps.If you want to have kids please do not let this be a factor because I have four very awesome kids and I wouldnt trade them for anything.
Hey there and thanks for your reply. I have a mild case of NF or so it seems and I am just concerned about how big the bumps may or may not get. All my life I was told I would not be able to have children and now were ready and I am just wanting to know all I can.
Thanks for your motivation and be well.
:)
Hi, I have nf1 and have three kids. I didn't notice alot of change with my nf however, it did make nursing difficult so I only did it for a few months. Good luck to you.
suzanne
Hi Bailey,
I was told that I should not have children as well.. But I have four ,you know they wanted to do gentic testing on my first pregnancy but i would not take the test. I think you should follow your heart.
I'm 53 and I have known for a long time that I have NF1, but not till after the birth of my second baby who had the cafe spots. Both sons seem to be healthy and normal and I had no problems with my pregnancies.
I also should add that I had a place on my neck that grew a little when I was pregnant, At the time I didn't know about NF. They remove it and it hasn't come back.
I am 48 and have two kids. My bumps first started after my first child. They did seem to get a little worse with my second. Menopause has really brought on unplesant changes. Both of my children have NF and one of my grandchildren. I wouldn't change a thing. My kids are grown and have some NF related problems, but thay are stong people and hae good lives.
I have 2 children. It got a little worse but not to bad.
Just know that you can pass it to your children. Both of mine have NF1 now and my son is not having the best of luck with it. I have a pretty mild case of NF so maybe your pregnancy will depend on how it is already affecting you. I assume you are thinking about children.
Ladies,
Thank you all for your replies all of your input has been great and very inspiring. It is so nice to know there is a great support group out here like this. Knowing there are nice folks like you out there to bounch ideas off is a great reward as well.
Thanks again to all and have a great and blessed day.
Bailey
Bailey,
I have an extremely mild case and didn't find out about NF till after I had my last child. I had no NF related issues during any of my pregnancies.
I have had three children. The nf1 got bad after each one. I would not have changed anything. My kids are what I live for! Do not listen when they say do not have kids!
hi.... im currebtly going through ivf pgd..... where they screen the embryos and only inplant the healthy ones.....its not a fun process...... iam early stages yet
but worth researching
lu
please feel free to ask any questions
Hi
I do not have any children. But my lumps and bumps have gotten worse. I do not think having children makes your condition worse. I reallt think its wrong that doctors tell people not to have children, Love
Mary
Hello Mary,
Thanks for the reply. I hope all is well and you ahve a great day.
Bailey
Baily,
I have 4 children out of the 4 2 have a worse case then others. My children all have mild cases of learning disabilities. 3 walked at a late age and they all have very mild cases of speech delay's. Nothing that hasn't been helped threw speach thearpy. As, for my case I did have a few more bumps grow on my trunk area with each pregnancy but, not too many and mine never hurt to touch. Like Suzane it made nursing difficult a little but, totally wouldn't change having my children. I do feel guilty at times that they have to deal with things of this cruel world the looks they might get if thier condition worsens but, other then that I WOULDN'T CHANGE a thing. I look at it like this and it's just after reading around on these boards. The more people that they find that have it the sooner they can find a cure. And, I love to be one of the people out there that was a known reason that there was a cure.
This is my second pregnancy and both times my condition got worse. I had new growths on my face-the size of a blueberry. If I barely touched it, it would to gush out blood. It was quite annoying and ugly to look at.
Fortunately, I was able to remove the first one but I haven't been able to remove the second one. I am hoping I can get it remove soon. So I don't know if it would go away after I have the baby or not. Does anyone know?
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