Already a member? Sign in
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
does anybody elts burn up? like get so hot at random times that it melts a bag of ice almost instantly? i do. i don't know why. i'm wondering if its just me, or if other people have those moments also. is it related to nf?
I also get very hot at times..Feels like my legs are on fire .Use to happen every now and then but in the last few months happening almost daily
Still Learning as I go
yeah...this was my intire body, and it melted a bag of ice withen 2 minutes.
I sometimes will be the only one in the room that is burning up.
yeah. same here. idk why it happens. its just random times.
have times my legs seem as if they are "on fire"
My 3 year old feels hot sometimes. He will also will say his back is hot. He doesn't tolerate heat at all. He will gets lethargic.
yeah. back when i was yunger and could see, i would litterly stand like 1 inch away from a huge fire. not smart, but i did it. i love the heat. hate the cold. always have, always will.
I get what feels like hot-flashes at times, and then sometimes my body just get extremely hot. I don't even have to be doing anything. It's like a surge through my body almost. Very weird, and people always think I'm weird...saying you're too young....or something like that!
finally! somebody that hit it point blank exact. (:! i know how you feel.
Hi;
I was wondering of the one's who said they feel these hot sensations, how many of you actually sweat?
I have the hot flashes ( am NF-2 ) but usually feel just clammy and don't sweat a great deal.
i swet, i have nf2, and sometimes just get the clamy feeling.
Hi KAM111
In your post, you wrote" when i was yunger and could see"
Are you saying you are blind?
That NF 2 has affected you this way?
I've known one other NF 2 person who is.
I'm so sorry if you are... : (
Hi i have nf1 and somtimes i do feel like burning up i feell like somone is touching me with a cigarette it so bad the pain !!
I thought I was having hot flashes because I sweat so much my clothes are soaked! I thought it was my age.
Everyone in the stores look at me like i'm wierd. It is very embarassing. I hate it.
well this man I was with said my body gets very hot when I am sleeping. Do not know why, and I like to be warm. I hate the cold.
what i'm talking bout, there is no pain, but, yes. back in 6th grade kids had to stay like..okay i don't get this..10 feet away durring gym or they swetted like crazy. they said i was just too hot to be around.
Yeah, I get that way when I sleep too! I get very hot, even during winter time, and I live in Wyoming! My husband calls me his heat-rock!!!! You like back in the day when people would heat up rocks and put them at their feet! haha......sometimes he has to push me away b/c I get too hot! :)
i get hot when i'm sleeping, then again, just a sheet on me and i'm swetting. idk why, i just heat up. my familly calls me the human heater. and love to hug me durring wenter. lol! because when there cold, i'm hot.
Add to the discussion