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Being in love and having NF.

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I've always been worried that no one would fall in love with me cause of my NF. I always thought they would be disgusted by it or decide to leave me for it, so its always hard trying to find a mate when certain parts of your body are "deformed" when its just a bump.

But I've been lucky to find someone who loves me and actually thinks my bumps are cute or beautiful because they are there and he wants to kiss them.(he's crazy) and I've read other peoples stories on here about how they are married and in love so I just wanted to say that you will find someone that will love you for who you are, and they might even think your bumps are "cute" once you find somebody like that your persepective about yourself changes completely.

So just keep searching and you will find that person =D

~ Cassey B ~

Explore topics in this discussion:

Foot drop Surgery Stroke

28 replies

Those who matter, don't mind.

Those who mind, don't matter.

Couldnt have said it better myself love that line

I just need a friend or someone who really care.

I've gotten use to being single. It could be worse.

I know how you feel. I thouht the same way until I met my husband. We he found out I had nf it didn't bother him, he still loved me.

I find really lovely is that only my wife knows how to touch me, where to touch me. And like your love, likes to touch and will touch, caress, comfort, and coo.

Thinking back to high school I really screwed up. I was so worred about what people thought of me I did not notice the girls that liked me.

So its not what people think about you, its what you think about you.

now for all you lovelorns, softies, and romantics, hum with me as in resonates in your bones, your mind, your heart- berlin "who's gonna take you home tonight"

you have to be open enough and trust you are worth it. Looks ultimately really don't matter as these fade for everyone.
I have in the past and had some wonderful relationships, my last in particular would play with and stroke one particular bump. It was our thing. Anyway, I am single right now but not sure if Im not looking becasue I want to be single or becasue Im going through a phase of woe is me... think the latter.
Not sure why... annoying but all things pass.
I am so happy for everyone who has someone who they can be 100% comfortable with and who can travel this road with them. Love is a wonderful and powerful thing. Me. Ill stick with my friends, my puppy dog and canary for now.

Casseyb-
You are so right! Thanks for posting!! :)

My husband doesn't care. In his eyes, I am as beautiful as the first time he saw me.

Well... I had similar fears as a youngster.....
"Nobody Loves Me.... Everybody Hates Me.... I Think I Will Eat A Worm."

Everyone has Skeletons in their closet (Issues)

In my early 20s I met the Love Of My Life

This gal is a survivor of molestation by an Uncle.
And...
Was physically abused (Hit!!) & Raped [several times] by a man she was working for on his dairy farm.

We have been together 21+ years (Married 20+)

I have someone who loves me just the way I am I never thought it was posable but they do, also belives in treatments, and is ready to be beside me no mater what,, so yes it can happeen, I have this over 85% of my body so yes, it can happen..

I was always worried about my scars showing and then I got a lump on my neck that started to grow. After that, I had surgery and a nerve had to be cut causing a foot drop on my left side. I got really, really self-conscious. I am pretty shy to begin with ... Several years later, a surgery left my right hand (dominant one) weak and basically non-functioning for the most part. So now, I don't worry about the scars. I do worry about how to present myself to the dating world... Guys just seem to pass me up, and now I seem to lack the self-confidence to get back out there. Honestly, I enjoy my single life and it's freedoms. I do sometimes think it would be nice to have a companion. It's just hard when we live in such an image-driven world where the smallest imperfections are critiqued and judged.

Redheaded: I agree, I hate how the world judges people on looks first. All of us can be the greatest people in the world, but just because we have one bump no body wants to come near us. Our "Imperfections" make us perfect because we are different, we are unquie in our own way. Never think down on yourself, hold your head up high and show some confidence, if you have confidence you can attract someone even with all these so called "imperfections" think of them as perfect and strut your stuff. =]

Redheaded: I agree, I hate how the world judges people on looks first. All of us can be the greatest people in the world, but just because we have one bump no body wants to come near us. Our "Imperfections" make us perfect because we are different, we are unquie in our own way. Never think down on yourself, hold your head up high and show some confidence, if you have confidence you can attract someone even with all these so called "imperfections" think of them as perfect and strut your stuff. =]

I was fortunate enough to be with a wonderful woman for 8 years who loved me for who I am, bumps and all. She even took enough interest to learn everything she could about NF. We're not together anymore, but our seperating had nothing to do with NF. While it is ceratinly possible that my forever has come and gone, I can at least be comforted that NF is not to blame.

Bette Midler "The Rose"
When the night has been too lonely
and the road has been too long
and you think that love is only
for the lucky and the strong
Just remember in the winter
far beneath the bitter snows
lies the seed
that with the sun's (Son's) love
in the spring
becomes the rose

Leo Sayer "When I need you"

When I need you
I just close my eyes and I'm with you
And all that I so wanna give you
It's only a heartbeat away

When I need love
I hold out my hands and I touch love
I never knew there was so much love
Keeping me warm night and day

i have noticeable nf and in spite of that I have been married 6 years and together for 8 she has the biggest heart of anyone I know

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