Sometimes I get a little self conscious considering the fact that I have NF. I often feel as if no one will find me attractive because of the visible bumps I have b/c of the disease. There have been sometimes in the past that I thought I may never be in a relationship b/c of my disease, but when I think about it, I realize that I was wrong.
My mother has NF, and if she had the same attitude as I did then, I would not exist. No one is perfect, we all have flaws. We must remain confident about ourselves, respect ourselves and love ourselves, if we want someone to love and respect us.
People see the bumps, they get curious, they ask questions, and I openly tell my story. The weirdest thing...more and more guys finding me more attractive w/ NF, lol
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A Little Insecurity
- By noangel1987
- Posted October 31, 2009 at 6:33 pm · 9 replies
- In Living with NF1
- Shared with the public
9 replies
- Oldest first
- Newest first
- By steph1of9
- Posted October 31, 2009 at 7:29 pm
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Thank you for sharing your story. And yes, I would agree in saying that you will be admired and found even more beautiful when you're confident in yourself (not overly confident of course ... but still confident =) and are strong and sure of who you are. The media may try to paint the picture of how much value should be put into our outside appearances ... "perfection" is what they push and I confess is not beautiful but empty if there's no character and strong spirit behind it ... it all comes down to the spirit within a person. I'll be there for my daughter when she asks me how she should handle the questions and stares. I want to encourage her to be open and share with people and to be confident that she is as beautiful as she wants to be when she loves others unconditionally, is strong and sure of what she believes and in who she is.
- By TeacherTanya
- Posted October 31, 2009 at 11:46 pm
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I totally understand how you feel---I have worried about the same things (no man finding me attractive)--I realize now that when the right man comes along--he won't care about a few (or a lot) bumps on my skin..:)
- By E-Hagen
- Posted November 1, 2009 at 1:17 pm
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i have had nf1 for about 30 years and i have over 200 tumors both inside and outside my body,i have become disabled because of this disease and i lost my daughter 12 years ago this month to nf1.i felt the same way u do and if a person does not like u for who u are then they r not worth your time.My wife of 8 1/2 years does not worry about what i look like period,we have a great marriage and im very happy.be patient remember it's all about YOU.God Bless.
- By Robtygart
- Posted November 1, 2009 at 1:34 pm
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I agree, just be out going and people forget about the tumors. A bad self image is a killer.
- By katygirl
- Posted November 1, 2009 at 10:16 pm
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I agree too ! Were our worst critics!!
- By hopeful0712
- Posted November 1, 2009 at 10:55 pm
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I know how you feel, my last date (we went out three times but he is not ready to date yet) never asked about my NF, I decided not to mention it unless he asked.
It was not until decided to be confident and just be myself.
I'm sure a good man will come along and accept me for me regardless of my NF.
How can someone else accept us if we don't accept ourselves? so we need to stay positive and confident.
- By Markjh
- Posted November 1, 2009 at 11:20 pm
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I guess I'm on the other side of the spectrum here. I'm comfortable not having a girlfriend. I haven't for a long time and I have to say I prefer my life this way. I've always been pretty much a loner and the older I get the better I like it. NF has nothing to do with it, it's just that life is way less complicated this way. I suppose this could always change, especially if some lady with lots of money decides she's interested. Hee Hee.
Mark
- By TaniaJ
- Posted November 2, 2009 at 12:58 am
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Hi,
When my husband and I met it was love at first sight.
He had numerous fibromas and we had actually been married 8 years and had a 4 year old son and a newborn daughter, before he was diagnosed and we even knew what he had was NF1. We just thought they were bumps and were just a part of his skin, they made no difference to the real person.
We have been happily married for 25 years.
So there is someone out there and the right person will fall in love with you as you are.
Good Luck
- By green
- Posted November 7, 2009 at 10:52 am
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Hello,
I am 61 years old. I have been with my husband 40 years and married 33. We have 1 daughter and 1 grandson. My body is covered with many tumors, mostly small. All I can say is once you find the right guy you can live a wonderful and happy life. Just trust in God.
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