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NF2 board
- By jerecare · New reply 12:42 am
- Discussion in Living with NF2 · 1 reply
- Is there anyone who has experiencd NF2 on this board who is also a member/frequent contributor to the NF2CREW board ...
Being in love and having NF.
- By casseyb · New reply yesterday at 8:33 pm
- Discussion in Living with NF1 · 9 replies
- I've always been worried that no one would fall in love with me cause of my NF. I always thought they would be disgusted by it or decide to leave me for it, so its always hard trying to find a mate when ...
I've just had ED (electro dessication)
- By tresham · New reply yesterday at 8:24 pm
- Discussion in Living with NF1 · 7 replies
- On Friday I had ED done on my trunk and back and a few removed from my face. The doctor at Concord hospital (Sydney) is wary of doing ED on the face so he just zapped a few from my chin. I have had 100s ...
Michigan Medical Marijuana, help pls!
Agent Orange Possible Cause of NF1
Looking for people to chat with
- By Krissy_49347 · New reply yesterday at 6:36 pm
- Journal · 5 replies
- I am 30 years old and i have NF1. And i work with Children with specail needs and i also work at meijers. And i am looking for people that have NF also to chat with. I have yahoo messenger if anyone cares ...
Joint pain
- By NPAIN24-7 · New reply yesterday at 6:18 pm
- Journal · 2 replies
- Does any know if joint pain is related to NF1. Doc has rthritic done all these blood test for arthritis and they all came back normal. x-rays show some arthrtic changes. I have a very large bone spur ...
tumor doctor
- By alicia2408 · New reply yesterday at 6:02 pm
- Discussion in Off-Topic · 3 replies
- does anyone live in washington state? i dont know if you have a tumor doctor. my doctor is from the uw his name is Earnest Conrade. he is the number 1 tumor Specialist ...
Tumor in stomach??????
- By Jaylasmom · New reply yesterday at 3:39 pm
- Discussion in Living with NF1 · 8 replies
- Ive been having some pain in my stomach on the right side for a while now. These past 2 days it feels like theres some type of mass in there. This has bothered me before I was diagnosed and I thought ...
Was anyone scared to have children?
- By alicia2408 · New reply yesterday at 3:38 pm
- Discussion in NF1 and children · 19 replies
- My Husband and i are talking about having a child down the road but we are scared that the child will get nf 1 in a more severe way then what i have. i have a mild to moderate form it. does anyone feel ...
What Is The Differance Between NF 1 & NF 2
living NF1/NF2
- By HANDSARMSTRONG · Posted yesterday at 2:32 pm
- Discussion in Living with NF1 · 0 replies
- I, Leon Armstrong needs a local doctor, I been living with nf1/nf2 for over 50 years & I want to keep living with out too many more syntoms. PLEASE CAN ANYONE HELP. I LIVE IN LONG BEACH,CA ...
I have NF1
- By peteadams · New reply yesterday at 1:53 pm
- Journal · 5 replies
- I have NF1, some of my friends think it is a disease but if it was a disease it would be contiguous. I have not had many problems with my NF, except maybe with my right knee. I have had several corrective ...
trying for ssi or ssdi
- By ccorri78 · Posted yesterday at 12:52 pm
- Discussion in Living with NF1 · 0 replies
- any have any help that will help get abouved for ssi easyer ...
Swimming in england
- By whoseyerdaddy · New reply yesterday at 12:51 pm
- Discussion in Newly diagnosed with NF1 · 8 replies
- hey just an idea but i hav not been swimming since i was about 13 because i hate my body and have lots of marks on my chest, maybe other people with same problem could all arrange to chip in and see if ...
photo
THANKSGIVING?
Pains in bumps
- By casseyb · New reply yesterday at 10:59 am
- Discussion in Living with NF1 · 1 reply
- I have a fair share of bumps on my body but whenever it is pressed they send this shocking pain throughout my body for just a second. Does this happen with everyone? And is there any way to fix this ...
What would you do?
- By gerry04363 · New reply yesterday at 10:25 am
- Discussion in NF1 and children · 25 replies
- I am here like so many other people, living with a terribel disorder or perhaps it is a loved one and we are in serach of the holy grail or cure that will save our loved one from an endless amount of ...
Scholarships? - 2010
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The Neurofibromatosis, Inc. Support Community connects patients, families, friends and caregivers for support and inspiration. The Neurofibromatosis, Inc. Support Community is sponsored by Neurofibromatosis, Inc. in partnership with Inspire.