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bowed legs?
- By Beaker85 · New reply 7:26 pm
- Discussion in Living with NF1 · 3 replies
- so I was lying on the bed with my fiance and all of a sudden he asks me.. whats with your legs? as it turns out my knees and feet are facing in.. turned toward each other. I just kind of shrugged and ...
your after life what does it look like to you
- By ButterFlyGirl86 · New reply 7:04 pm
- Discussion in Off-Topic · 9 replies
- I have been thinking alot about after I die how its going to be. I know that I am going to heaven, But it would be nice to know what it looks like, but no one knows. so what do you think it looks like ...
helllo
- By nikki_ph · New reply 7:01 pm
- Journal · 2 replies
- hi friends,,,,, just get back from this site ...
feeling glum
- By Claireisima · New reply 6:57 pm
- Discussion in Living with NF2 · 3 replies
- Hi I have NF2 and try to remain positive every single day. Most days i am fine but i have days when i get so so scared about my future. This board seems great but the majorfity of you guys have NF1. Does ...
Questions about unexplained weight loss for son
- By publictina · New reply 5:46 pm
- Discussion in NF1 and children · 7 replies
- Hi Everyone: I have a son, age 15 with NF1. He has had some medical/surgical issues over the years but has been fine for years now. He was diagnosed with Precocious Puberty at age 11 and last month, an ...
NF & SSI
- By mommybear1965 · New reply 5:44 pm
- Discussion in Living with NF1 · 16 replies
- I was just wondering if you can get SSI for your NF? I personally don`t need it at this time in my life. I was wondering for the people who might need it fdue to thier NF ...
How can i work out with having scoliosis
- By ButterFlyGirl86 · New reply 5:23 pm
- Discussion in Off-Topic · 6 replies
- I have scoliosis and There are a few things I can do that dont hurt my back that bad when I work out. I have got off the lbs that I wanned to get off But I just want to get my Belly to go down some, I ...
Medicaid
- By GirlA · New reply 5:17 pm
- Discussion in Living with NF1 · 2 replies
- Have been trying to get Medicaid for the longest time. Have been denied on several occasions. Would like to know if I do get approved for Medicaid, will they pay for the more expensive tests like MRI's ...
SomeTimes I just dont know what to do anymore
- By ButterFlyGirl86 · New reply 5:06 pm
- Journal · 2 replies
- I have been thinking alot about why things happen and I know that things happen for a reason we just dont know why it happens at the time. But I would love to know why now. I am only 23 and happly married ...
SSI/Disability
- By GirlA · New reply 5:05 pm
- Discussion in Living with NF1 · 4 replies
- Have been trying to get disability=they keep denying me, and the latest is they"re telling me even my husband's small unemployment check is too much money, so that it is likely they will deny me again ...
Spondylosis/Back problems
- By GirlA · Posted 4:56 pm
- Discussion in Living with NF1 · 0 replies
- I recently had a spinal x-ray because of back pain and sometimes touching the wrong place on my back can create numbness/loss of feeling and loss of movement in my arm. The lab report says there is "some ...
Dry Itchy Skin & NF
- By Anne33 · New reply 4:07 pm
- Discussion in Living with NF1 · 21 replies
- I have dry itchy skin I heard that NF can cause dry skin. I have a hard time becouse most time its my back that itches where i cant reach. does anyone else have this problem ...
Toe walking
- By NFmomm · New reply 3:58 pm
- Discussion in Living with NF1 · 7 replies
- Has anyone with tumors on their spine had trouble with toe walking? We have tried surgery, baclophen, tons of physical therapy and nothing seems to help ...
NF Clinics near Philly PA??
- By Jen388 · New reply 3:22 pm
- Discussion in NF1 and pregnancy · 13 replies
- Hi! I'm new to this site but am so glad I came across it.... I'm still not sure that I have NF1 but was followed as a small child by a pediatric neurologist for the disorder. I meet criteria for NF in ...
Bad Storm on its way here
- By ButterFlyGirl86 · New reply 2:31 pm
- Journal · 19 replies
- They are telling me that we are going to being 7 to 8ins of snow tonight and up to sun i just hope its not like it was like last year here, we had now power and water nothing for a week, it was bad. but ...
can you help me find someone?
- By robertsfbc · New reply 2:02 pm
- Discussion in Living with NF1 · 3 replies
- hey everyone my name is robert and i am trying to find someone i went to nf camp years ago here in texas, it was the international camp in 96? i think. hos name is matthew m____ski i am not shure how ...
Anthem Blue Cross Blue Shield?
- By Miss-No-Name · New reply 2:01 pm
- Discussion in Living with NF1 · 4 replies
- Does anyone have experience with this insurance provider? Not individual, but as a workplace group plan ...
broken leg
- By Dragonlvr1986 · New reply 12:31 pm
- Discussion in Living with NF1 · 2 replies
- Does any else have a broken leg due to NF1? What do you do for the pain other than pain meds ...
Swollen eyes
- By Sumatra · New reply 11:28 am
- Discussion in Living with NF1 · 3 replies
- I have this whacked out problem with my eyes. It started when I what a teenager and continues today. My eyes will swell for no reason. I've been to an eye specialist, and have had my protein checked for ...
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The Neurofibromatosis, Inc. Support Community connects patients, families, friends and caregivers for support and inspiration. The Neurofibromatosis, Inc. Support Community is sponsored by Neurofibromatosis, Inc. in partnership with Inspire.