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Trigeminal Neuropathy

derwin
  • By derwin · Posted October 27, 2009
  • Journal · 8 replies
  • Hi Everybody. I just accidently deleted my journal entry and all your responses (Learning1 and Sophie Rose to be specific). So here it is again. I have Trigeminal Neuropathy from a severed nerve that ...

I CAN HARDLY WALK TODAY

so-tired
  • By so-tired · Posted October 7, 2009
  • Journal · 27 replies
  • I HAVE SO MANY THINGS WRONG WITH ME, BUT TODAY IS REALLY BAD. I AM SO WEAK, AND CAN HARDLY WALK! ANY IDEAS AS TO WHAT THIS COULD BE? I'M SCARED! PLEASE, REPLY? LINDA (SO TIRED ...

alone...

kblodgett
  • By kblodgett · Posted September 27, 2009
  • Journal · 5 replies
  • why do I feel so alone? i have family and friends a son. Yet everyday I am alone. no one can feel my pain. No one understands nerve pain around me. When I say my head hurts they think its like a headache ...

Why?

kblodgett
  • By kblodgett · Posted September 19, 2009
  • Journal · 1 reply
  • Why is it when the pain gets so bad your mind goes into such a horrible place. The pain is so bad it makes me not want to deal with anything or talk to anyone. I get mad and then sad and then dont know ...

I hope this helps

kblodgett
  • By kblodgett · Posted September 17, 2009
  • Journal · 12 replies
  • Tommorow I have a nerve block done. this is sopposed to help my neck face and head. the doc is not sure it will work but I am willing to try anything just to get a little relief. I am not afraid of the ...

Why does God hate me?

djmtard
  • By djmtard · Posted September 16, 2009
  • Journal · 43 replies
  • Since I was very young my life has been a series of bad accidents and illnesses. It started when I was 15. I was in the state finals for barrel racing and came off my horse and broke my back. Then when ...

whats one more symptom

kblodgett
  • By kblodgett · Posted September 11, 2009
  • Journal · 2 replies
  • Just when I think nothing else can happen i get one more symptom. Now its time to go to a cardiologist. I have been fainting and passing out. with numbness and tingling in my legs and hands. Its not neurological ...

New here

kblodgett
  • By kblodgett · Posted September 5, 2009
  • Journal · 1 reply
  • HI everyone, I am new here and wanted to see if there is anyone out there who may have some suggestions for me. i am 31 and have had recurring optic neuritus and ramsay hunt syndrome for the past year ...

MYELINOLYSIS: Bye Bye DEMYELINATION,Till We Meet Again & We Will, My Friend

WhataBreeze
  • By WhataBreeze · Posted August 12, 2009
  • Journal · 0 replies
  • An Afternoon For Thought with Franky and Breeze (it is simply not acceptable for patients to be harmed by the same "Health Care System, that is supposed to offer healing and comfort" January 2007's passing ...

Scheduled maintenance this evening

TeamInspire
  • By TeamInspire · Posted August 10, 2009
  • Journal · 13 replies
  • All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...

I need to have a better attitude!

so-tired
  • By so-tired · Posted August 5, 2009
  • Journal · 26 replies
  • I've been thinking a lot lately, that I really need to adjust my attitude! OK, so I have all of these illnesses, I just can't let that stop me from thinking more positively! I've heard the saying, "Acceptance ...

WHAT TO DO?

so-tired
  • By so-tired · Posted July 25, 2009
  • Journal · 19 replies
  • MY FOOT GETS SWOLLEN SOMETIMES, AND I DON'T KNOW WHY? IT ALSO TUNS PURPLE/RED, AND IT'S HARD TO WALK. DOES ANYONE HAVE A CLUE WHAT KIND OF A DOC I SHOULD GO TO? THANKS ...

Walk Aide

djmtard
  • By djmtard · Posted July 24, 2009
  • Journal · 13 replies
  • I just found out that I may be a candidate for this device!!! YAH!!! I have trouble walking due to my Central Pontine Myelinolysis. A friend whom I met on this site recommended I talk about it with my ...

TODAY HAS BEEN A BAD DAY~~~

so-tired
  • By so-tired · Posted July 24, 2009
  • Journal · 13 replies
  • I HAD TO GO T MY DENTIST, AND COULD BARELY WALK. THE NURSE HAD TO HELP ME INTO THE ROOM. I JUST DO NOT UNDERSTAND WHAT IS WRONG WITH MY LEGS?? MY SON THINKS IT IS FROM MY BAD BACK, I JUST DON'T KNOW ...

Central Pontine MYELINOLYSIS Heard of this rare CNS disease most have not?

WhataBreeze
  • By WhataBreeze · Posted July 15, 2009
  • Discussion in Living with a nerve disease · 0 replies
  • WANTED: We are in need of professional sources to assist individuals in different parts of the world who by absolutely by no fault of their own in most cases, to help in the category of "Professional ...

Share your story via video!

TeamInspire
  • By TeamInspire · Posted June 15, 2009
  • Journal · 28 replies
  • Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...

Follow Inspire on Twitter and Facebook!

TeamInspire
  • By TeamInspire · Posted June 10, 2009
  • Journal · 32 replies
  • We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...

We Need CPM Awareness - 60 Year's Hidden, Help Us...

WhataBreeze
  • By WhataBreeze · Posted June 7, 2009
  • Journal · 16 replies
  • Central Pontine Myelinolysis: If blessed to live through the initial issues, please don't give up on us. For me personally, starting February 2002 my life continues to go through daily series of changes ...

Guestbooks are now live!

TeamInspire
  • By TeamInspire · Posted May 26, 2009
  • Journal · 6 replies
  • Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...

Guestbooks - An exciting addition to Inspire

TeamInspire
  • By TeamInspire · Posted May 20, 2009
  • Journal · 35 replies
  • Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...

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