Nerve Diseases Support Group

Inspire connects patients, families, friends and caregivers for support and inspiration... More about this group

Quick survey

By Blondstu · New reply yesterday at 7:29 am
Journal · 30 replies
I am told that I should probably move to a warmer climate for my health. I want to ask three questions, no discussion in the answer because I don't want to be convinced, just have a curiosity. Question ...

Peripheral Neuropathy

By zigamundus · New reply yesterday at 7:24 am
Discussion in Living with a nerve disease · 2 replies
Hi, all. I am a new member here. I have had PN for 4 years now, and it does make life interesting. Each year it spreads a bit more. The socks have turned into knee highs. The pain is disagreeable, but ...

Feeling depressed and frustrated of nerve problem

By jimmyuk · New reply yesterday at 7:20 am
Journal · 3 replies
iya I am profoundly young deaf man from Southport. I had a problem of my right leg/foot. I broke my right tibia bone by playing football at school when I was 15 years old. The recovery is extremely hard ...

More disturbing news

By Blondstu · New reply May 21, 2013
Journal · 13 replies
I might have three different diseases going on or all three sets of problems may all point in one direction, Lupus. My Rheumatologist called to tell me that some of my labs came back abnormal!!! Everything ...

Peripheral Neuropathy

By angelsgramma1 · New reply May 21, 2013
Discussion in Living with a nerve disease · 9 replies
I have peripheral neuropathy. I have pain in my arms, hands, legs, hips and back. I am seeing a Pain Clinic Doctor but none of his treatments are helping me. I have pain in my feet and use one pillow ...

Five million

By Brian · New reply May 18, 2013
Journal · 205 replies
Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

About me

By cherylthebutterfly · New reply May 8, 2013
Journal · 7 replies
Hi I am new to Inspire and would love to correspond to anyone, but mostly to people who have polyneuropathy issues. I would love to get your feedback on your own experiences. I feel so alone in my suffering ...

It's late again

By Bumblebeenc · Posted May 7, 2013
Journal · 0 replies
It's late again And there will be no sleep The hurricane beckons me And there is no where to hide And I think of him The lightning strikes Then I think of me My soul is lost And I think again Am I really ...

Feeling so frustrated and depressed

By jimmyuk · Posted May 6, 2013
Discussion in Living with a nerve disease · 0 replies
Hiya I am profoundly young deaf man from Southport. I had a problem of my right leg/foot. I broke my right tibia bone by playing football at school when I was 15 years old. The recovery is extremely hard ...

A new Inspire report in collaboration with Stanford Medical School

By Brian · New reply May 5, 2013
Journal · 84 replies
As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...

Closer

By Blondstu · Posted May 1, 2013
Journal · 0 replies
I got to the Rheumy finally. What a relief to have someone listen and treat me as an equal, allowing me to troubleshoot along with her instead of the usual doctor-patient relationship. Started on Prednisone ...

My nerve problem on lower right calf and right foot.

By jimmyuk · New reply April 19, 2013
Discussion in My diagnosis · 1 reply
I has a nerve problem on my right leg/foot. Its linked to broken right tibia bone when I was 15 years old. Now am 33 years old. I went to hospital to see specialist for x-ray. They found that my right ...

The Inspire Q&A: Inspire talks with Deanna Attai, MD

By John2 · New reply April 16, 2013
Journal · 16 replies
Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...

newly diagnosed

By cherylthebutterfly · New reply April 14, 2013
Discussion in My diagnosis · 4 replies
Hi, I am new to this diagnosis of polyneuropathy. I am seeing a neurologist who has done an EMG and blood tests, so far finding nothing significantly wrong. I have numb fingers and toes, my left leg falls ...

Waiting

By Bumblebeenc · New reply April 13, 2013
Journal · 14 replies
Well, I'm back from the Doc office and a visit to have an ultrasound on my gallbladder. Now the waiting game begins! Swollen belly and very uncomfortable under my right rib cage......ugh ...

Momma don't cry....

By Bumblebeenc · New reply April 11, 2013
Journal · 18 replies
Momma, Don’t Cry I see the tear in her eye It struggles not to flow Holds on She doesn’t even know The pain and struggle That aches in her heart The strength lost But not to tear us apart I hold her close ...

Ok Ladies...

By Bumblebeenc · New reply April 5, 2013
Journal · 3 replies
I have a story for ya. Lil silly, but its from childhood. A little background first: When I was little, the YMCA gad a father/daughter program called " Indian Princesses". You meet once a month and the ...

The devil

By Bumblebeenc · New reply April 3, 2013
Journal · 9 replies
When I see the devil The scorn of life The beast of punish Pierce of the knife I hear nothing But punished all the more I can’t understand What demons I bore Why I hurt Why the shame I am so alone And ...

thankfulness

By valdezz · New reply April 3, 2013
Journal · 3 replies
I wanna thank all of you who have kept me in your prayers. These last couple of months has been trying. But with your prayers and truly the strength from God, I made it. Thanks Sis. G for starting the ...

Swollen

By Bumblebeenc · New reply April 3, 2013
Journal · 5 replies
In the last couple of weeks, my legs and stomach swell every day. Not my feet or ankles though. My eyelids are red and puffy. One of my eyelids has several tiny little bumps on it. I'm a bit worried ...

Log in to see more

Things you can do

Discussion topics

Community leaders

Inspire others

Together we're better - Inspire Nerve Diseases Support Group

Support your group with badges for your e-mail, website, blog, and more ...

About this community

Inspire connects patients, families, friends and caregivers for support and inspiration.