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"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted yesterday at 3:22 pm
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Nerve Pain and Desperate

kd22
  • By kd22 · Posted April 2, 2014
  • Discussion in Living with a nerve disease · 0 replies
  • Has anyone tried the WSN nerve support formula or Alpha Lipoic Acid with any success ...

in terrible pain

mm9
  • By mm9 · New reply April 2, 2014
  • Discussion in Living with a nerve disease · 2 replies
  • hi. i've been suffering from neuropathy for several months now. I've been taking neurotin and pain pills...but no relief. i read somewhere that vitamin b can be helpful....anyone have info on this? thank ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

Difficulty with sense of taste

Blondstu
  • By Blondstu · New reply February 26, 2014
  • Journal · 10 replies
  • Has anyone had a problem tasting food or finding certain foods awful when everyone else says it's fine? Happening more often this past week. I had food today that tasted so salty I could not stomach it ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

Unexplained Nerve Pain. Any shared experiences?

truenorth
  • By truenorth · New reply February 9, 2014
  • Discussion in Symptoms · 6 replies
  • Hi All, This is my first post in this group, and I am hoping there will be others who can share their insight/experiences with me. Please forgive me for the length of this post, and I hope you will take ...

friends

Monsae
  • By Monsae · New reply February 1, 2014
  • Journal · 17 replies
  • Greetings, I'm hoping everyone is doing well...I am having a middle of the night and can't sleep issue. Pain in the neck. Hope one and all have a beautiful day! And a Starry night.Take care. I'm thinking ...

Neuropathy getting worse when under stress

RNRA228
  • By RNRA228 · New reply January 30, 2014
  • Discussion in Living with a nerve disease · 2 replies
  • Hi, I'm new here. I have been dealing with my neuropathy since July 2013. It feels like constant bee stings in my hands and when I am in stressful situations my hands tend to heat up as if I just placed ...

Pain Relief / Abuse Survivors Please share Wisedom of Holding on!

GizzyMo
  • By GizzyMo · New reply January 28, 2014
  • Journal · 3 replies
  • what do you take especially when you are forbidden pain medications of any kind because of an unintentional mild od..I think..next morning I was fine except that it was three days past the original dosage ...

New infographic: Inspire Rare Disease Health Communities at a Glance

John2
  • By John2 · Posted January 9, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 1/9//13 Dear members, I am writing to share with you a new infographic that Inspire published yesterday: Inspire Rare Disease Health Communities at ...

Well just pile some more on my shoulders

Blondstu
  • By Blondstu · New reply December 19, 2013
  • Journal · 1 reply
  • Went for my first visit to the pain clinic today. I wanted to see if they would send me to try accupuncture, physical therapy, etc., don't really need a change in meds. I've been having more difficulty ...

Thank You, From Inspire

Walter
  • By Walter · New reply December 3, 2013
  • Journal · 108 replies
  • Hello everyone, As Thanksgiving approaches, all of us at Inspire would like to take a moment to thank you for being part of our community. While we wish no one had to deal with the serious health issues ...

Life, Love, and the Pursuit of a Pain-free Night

Khatn
  • By Khatn · New reply November 19, 2013
  • Journal · 61 replies
  • This past week has given me a load of rows to hoe and think about. One week ago, my darling (and she truly is) 2-y-o Maine Coon kitten (don't care if she's 2, she's still my little kitten) came to me ...

NEUROPATHY

LAVIN
  • By LAVIN · Posted August 28, 2013
  • Discussion in Living with a nerve disease · 0 replies
  • I was told a few months ago that i have neuropathy. my feet tingle and burn so bad and it never stops. i was put on cymbalta and i cant see where it helps me at all. i was also told i have fibromyalgia ...

Searching for a diagnosis

Blondstu
  • By Blondstu · Posted August 28, 2013
  • Journal · 0 replies
  • Is anyone out here with autonomic neurothapy? Apparently it can cause shortness of breath and most of the other symptoms I have been experiencing with early satiety, pain, fatigue and other gut problems ...

Shortness of breath

Blondstu
  • By Blondstu · New reply August 21, 2013
  • Journal · 10 replies
  • My shortness of breath for the last two days has increased to where I cannot speak a full sentence and even doing little things hurts and I have to rest. My Rheum says she discussed diagnosis with the ...

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