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Children with nephrotic syndrome
Discuss your experiences with nephrotic syndrome here.
Prograf Treatment?
- By Tori2009 · New reply October 8, 2009
- 12 replies
- Hello Everyone, My daughter has been diagnosed with MCD since Dec 08. After treatment with Prednisolone and several relapses, she has grown resistant to steroids alone. She had her Renal biopsy last month ...
stomach aches
- By brighton · New reply October 8, 2009
- 3 replies
- Hi everyone. I was wondering if others had the same expirience as I am having with my 8 y/o daughter. She complains of stomach aches about 4 times a week. For the past couple of years we always assumed ...
Minimal change disease
- By obima · New reply October 7, 2009
- 6 replies
- hi, im 17, i was disagonised with MCD through a bioposy in aug 08, around the same time i suddenly started to get puffy legs and eyes, etc etc but only 6 glomeruli were managed to be taken out, all were ...
using prograf
- By obima · New reply October 4, 2009
- 2 replies
- (i posted this question in the 'children with FSGS forum, im sorry i have MCD) hi i was wondering if i could ask the following questions please.... currently i am on 3g of cellcept and 20mg of prednisone ...
anyone have relapse after allergy skin test??
- By ctrb · New reply October 2, 2009
- 2 replies
- My 3 year old was diagnosed with NS 11 months ago. I have kept detailed food logs and discovered many allergens/sensitivities since that time but still feel I am missing something. (Relapse free since ...
Gym Class and Nephrotic Syndrome
- By juliegirl1205 · New reply October 1, 2009
- 9 replies
- Hello!!! I'm just looking for some advice...My son is 11,he is just weaning off of cyclosporine after 3 years.Previsoly he was on prednisone for 6 years and because of that (or so we think) his legs are ...
Do you have any tips for looking after an immuno-suppressed child?
- By EllaM · New reply September 28, 2009
- 10 replies
- We're struggling to keep William in partial remission. I can count on one hand the number of good days he has had since he was diagnosed in January. Do you have any tips for looking after an immuno-suppressed ...
Holistic treatment for Nephrotic Syndrome
- By JAYDARL · New reply September 27, 2009
- 50 replies
- Has anyone of you out there tried holistic treatment for your child with NS? Our daughter Julia has steroid dependent NS and has been on and off the Prednisone since March 09. Everytime the MD tapers ...
6 year old with NS bedwetting still is this normal?
- By Samj · New reply September 27, 2009
- 8 replies
- Hi everyone, my son who will be 7 in November this year was diagnosed with NS in May of this year. We have now weaned him off his meds prednisone (last week) and so far so good as negative protein in ...
Nephrotic Syndrome Awareness
- By Danimari76 · New reply September 18, 2009
- 5 replies
- Hi everyone. I just wanted to let everyone who has a facebook account know that Dr. Oz has a new show regarding health/medical related issues and he has a facebook page where you can become a fan. I started ...
Cytoxan and the flu shot
- By brighton · New reply September 16, 2009
- 7 replies
- My 8 y/o daughter is on Cytoxan for NS and I am confused if she should get the flu shot since her immune system is obviously weaker withthis med. Any thoughts? Her pediatrician said you are suppose to ...
Mosquito Bites & Bee/Wasp Stings
- By Mom2Gar · New reply September 13, 2009
- 5 replies
- Hi there, my son who has Nephrotic Syndrome for 3 yrs, since he was 2 has just relapsed and I'm wondering if others feel they relapse from mosquito bites or bee/wasp stings. He was doing great for 2 1/2 ...
Nephrotic syndrome
- By bineid999 · New reply September 12, 2009
- 3 replies
- My son Abood 9 years started from 2 years lekeage protien and tried all medicines with prodinisone like cyclopprien and prograf and ritixmub and myfortic and now more than 2 weeks cycophosomide but not ...
cyclophosphamide
- By SHARONIRELAND · New reply September 11, 2009
- 9 replies
- My son(5), is going to be starting cyclophosphamide in the next week or 2. he has been on prograf for the last 18 months and it has now stopped working.he is also steriod dependent. Adam doesnt seem to ...
MY SON'S PROTIEN IS 4 BUT HE'S NOT SWELLING
- By daismom · New reply September 10, 2009
- 13 replies
- Hi it's been a while since i have been on here,my son was first diagnosed with ns in April he did'nt respond well to the predisone so his neph did a biopsy and discovered he has IGM nephropathy they put ...
when will the swelling go down ?
- By rldeanejr · New reply September 9, 2009
- 9 replies
- I am a 28 year old father who's 2 year old daughter has been diagnosed with NS. It is very scary to me. She is miserable for most of the day. She use to be so talkative, playful and outgoing. It hurts ...
hey
- By slamminsam23 · New reply September 9, 2009
- 16 replies
- Hey everybody my name is Sam and im 13. Ive been diagnosed with nephrotic syndrome for about nine years. Its been a hard struggle relapsing almost every month and having to take large amounts of prednizone ...
Stunted growth from prolonged use of prednisone
- By Lisa_OReilly · New reply September 9, 2009
- 19 replies
- Hi. My son Joseph is 15 now and has had nephrotic syndrome since he was 6yrs old. I was told there is a good possibility that he will have this as an adult and for the rest of his life. He has frequent ...
Cellcept and Prograf - Combo
- By mikepalmri · New reply September 7, 2009
- 4 replies
- Hello all, my daughter has MCNS and is 13 now. In the past she was on Cellcept for 3 years and then it stopped working. She then moved to Prograf for 3 years. Recently (since May) she has begun to relapse ...
Steroid Pulse Therapy
- By hopeful_mom · New reply September 7, 2009
- 3 replies
- My 3 year old is steroid dependent and the neph wanted him to go through steroid pulse therapy where he takes Solu-Medrol IV treatments to ultimately lower his dosage of prednisone. He had one at the ...
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