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Children with nephrotic syndrome
Discuss your experiences with nephrotic syndrome here.
Adjuvant free H191 Vaccination or not?
- By 4myangel · New reply November 1, 2009
- 1 reply
- Just wondering if anyone has info on pros/cons of the adjuvant free or adjuvant H1N1 vaccine. Our son has relapsed in October & am tapering his pred. Now on 40mg every other day. Have heard the adjuvant ...
so many questions
- By waylonsmom · New reply November 1, 2009
- 10 replies
- Okay waylon went to the neph yesterday... We are starting to tapper the pred down but it is going to take about 5 months to be off totally. My main question is will he relapse? I am praying he is in the ...
NS and sports?
- By Drew165 · New reply October 30, 2009
- 12 replies
- Do any of you have your angels in sports right now? My son sees his big sister playing soccer and wants to know when he can play. I don't want him to get sick doing so. Any advice ...
Relationship btw allergies and NS
- By LauraG · New reply October 29, 2009
- 16 replies
- I know we have all talked about this at length so what I am about to say might have already been said. I personally believe allergies are related to NS. Both of my daughters have pretty bad allergies ...
What is the longest time between relapses??
- By luckymomof4 · New reply October 29, 2009
- 3 replies
- My son was diagnosed with NS at 2 years old (he is now 12). He relapsed multiple times over the course of about 5-6 years but responded very easily and quickly to steroids each time and did not require ...
Thank you- prednisolone vs. cytoxan
- By lovemykayla · New reply October 29, 2009
- 5 replies
- Thank you all so much who responded to my questions. You all were a great help. I spoke with our Neph doc this morning and she explained that our daughter is considered a frequent relapser. She wants ...
Cytoxan
- By lovemykayla · New reply October 29, 2009
- 1 reply
- Thank you all for your replies. Yes it is a very tough decision and I agree it seems too soon for cytoxan. Pred is a awful drug too and they all are as a matter of fact. I have done some research on cytoxan ...
Swelling and dealing???
- By lalo · New reply October 27, 2009
- 4 replies
- Can anyone tell me how to live with this edema? My daughter is going through a bad relapse at the moment, and has less pee and more puff! I try to stay positive, and we keep her on a very low salt diet ...
Thank you- prednisolone vs. cytoxan
- By lovemykayla · New reply October 27, 2009
- 4 replies
- Thank you all so much who responded to my questions. You all were a great help. I spoke with our Neph doc this morning and she explained that our daughter is considered a frequent relapser. She wants ...
about this swine flu thing
- By lalo · New reply October 27, 2009
- 3 replies
- Hi everyone, just wondering how everyone was feeling about this swine flu emergency. Particularly, has anyone out there had a kid that contracted the virus and was on immunosuppression...and did okay ...
Second relapse
- By Kaif · New reply October 25, 2009
- 6 replies
- My son Kaif had Minimal Change NS since Feb2009. First Med started with 45Mg Pred two month and slowly tapered in next two month. He was absoluately well for one month without pred. One day he caught ...
Neph Diet?
- By Drew165 · New reply October 24, 2009
- 2 replies
- Our son Quinn was diagnosed with nephrotic syndrome 11/11/2005. Does anyone have a Neph diet plan they would like to share with us? Thank you ...
Prednisolone vs. Cytoxan
- By lovemykayla · New reply October 22, 2009
- 8 replies
- Our daughter was diagnosed with MCD this July. She has been on prednisolone since then and had 1 relapse and is most likely relapsing again right now. Her protein was a 2+ this morning. Today her nephrologist ...
Nephrotic Syndrome and Swine Flu jabs
- By Kieran · New reply October 21, 2009
- 4 replies
- Hello Nephspace members, i would like to ask you about your opinions on the Swine Flu jab. Have you given your Son/Daughter the jab? Did he/she have any side affects? If you haven't, are you planning ...
A mom in turmoil...please help!
- By lalo · New reply October 21, 2009
- 7 replies
- I haven't been on for awhile, probably because I was afraid to really deal with it all...but now I need some help, some positive people to talk to about our situation, and some assistance about how to ...
MEDICAL ID BRACELET
- By GAILRD · New reply October 18, 2009
- 6 replies
- JUST WONDERING IF ANY OF YOU OUT THERE HAVE AN ID BRACELET FOR CHILDREN OR YOUR SELVES. I HAVEN'T SEEN ANYTHING ON THIS YET. I'M THINKING ABOUT IT...IS THIS A CONDITION THAT REQUIRES ONE. I'M THINKING ...
kidney stones from prednisone??
- By Kristie13 · New reply October 17, 2009
- 4 replies
- My daughter, who has MCNS, was admitted to the hospital yesterday with severe vomitting, left back and belly pain. Though initially we thought it was an infection, it turned out to be a kidney stone ...
we are new to this
- By waylonsmom · New reply October 17, 2009
- 6 replies
- We went to the doc last week because waylon was sick and seems bloated. After our first appointment we were called to "re-run" blood and urine and then promptly transfered to St Francis - children's hospital ...
PLEASE HELP-nephrotic syndrome.
- By alh-9 · New reply October 16, 2009
- 1 reply
- hey everyone.. my 6 year old cousin, ashtyn, has nephrotic syndrome. she has had it since she was born, and her kidney's are now in the last stages of failing. at my school we are setting up donation ...
Swine flu shots
- By kateDD23 · New reply October 16, 2009
- 26 replies
- Hi everyone! My son's school is going to be offering swine flu shots to all the children shortly. I know that most doctors can't tell you much about the actual shots, its new and frankly scary. Having ...
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