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Children with nephrotic syndrome
Discuss your experiences with nephrotic syndrome here.
Having a very very bad day!
- By SpenciesMom · New reply yesterday at 9:53 am
- 18 replies
- I am just so tired of all this NS stuff. Why can't my son be NS free? This is so unfair. My son was diagnosed with nephrotic syndrome in November of 2007. He has been on steroids since then. Currently ...
Prograf side effects
- By ChrisandMom · New reply November 18, 2009
- 12 replies
- I know there are numerous threads touching on the subject but I was hoping for something more specific, so here goes. After 3+ years on Cellcept with at least 5 relapses, they have decided to change him ...
Tapering
- By shawny816 · New reply November 16, 2009
- 11 replies
- I started tapering my 3year old sons Prednisone from 30 mg every day to 20mg every other day for about a week. He fell asleep really early and slept 12 hours when he woke up in the morning i tested his ...
Tapering off Prednisone
- By shawny816 · New reply November 13, 2009
- 7 replies
- My son was on Prednisone 5ml=15mg twice a day for a month. Today we had our month check up and his doctor lowered it to 71/2ml roughly 20mg every other day. Does this seem like the norm? He has 0 protein ...
Milk Allergy and Nephrotic Syndrome
- By juile · New reply November 13, 2009
- 23 replies
- I've been doing a lot of searching on-line about using Cytoxin on my 7 y.o. son with MCNS due to frequent relapses. One poster commented that their doc wanted to try her child on a dairy-free diet next ...
High does prednisolone/ high protein levels FLU SHOT ands H1N1 SHOT
- By lovemykayla · New reply November 12, 2009
- 20 replies
- I have scheduled Makayla twice for a flu shot and each time she relapsed right before her appointment. Neph doc said NO to the shot during her relapse. Now she is telling me to go ahead with it..... Kaylas ...
Breast Milk
- By speakerlav · New reply November 12, 2009
- 15 replies
- My daughter who is 3 1/2 years old was recently diagnosed with minimal change nephrotic syndrome. She just experienced her first relapse after being off the prednisone for 7 weeks. So, we are back on ...
Can a flu shot cause a relapse for NS??
- By Kristie13 · New reply November 12, 2009
- 20 replies
- I know that my daughter, who is on immunosuppressants, needs to get a flu shot. But I'm nervous to have her get it while she is in remission, fearing it would cause a relapse. She has been relapsing every ...
confused
- By tiffany198524 · New reply November 11, 2009
- 2 replies
- well my son He has a real sever case of minimal change disease nephrotic disease but on the treatment he is on he is just getting worse the relasp last longer and get worse his dose os prednizon and water ...
Prednison sodium phosphate or syrup
- By shawny816 · Posted November 9, 2009
- 0 replies
- Is there any difference between prednisolone sodium phosphate or syrup ...
relapsing NS child and getting an H1N1 shot..do you or not?
- By worriedmomV · New reply November 9, 2009
- 15 replies
- Has anyone gotten the H1N1 vaccine for their neph child while the child is relapsing and on Prograf? Not that I can find one anyhow, but my son's Dr said get the injectable as soon as possible whether ...
Prograf and diareah
- By worriedmomV · New reply November 9, 2009
- 6 replies
- My son has NS, he is 8. He seems to get diareah often. If he gets a virus, like a cough. He gets diareah too. Not fevers, but right to his tummy and the diareah. It lasts for 2-3 days. This happens about ...
Please help!
- By QUINNRENEE · New reply November 8, 2009
- 25 replies
- I am a mother of a nephrotic child, he is 6 years old.He has been hospital home bond for kindergarten which makes things very hard for the whole family. I just need to talk with another mother who is ...
Change of Med Regimen
- By Beensoblessed · Posted November 5, 2009
- 0 replies
- My daughter was diagnosed Sept of 08. She's been on prednisone and celcept and has had 2 relapses despite slow removal from the steroids. She hasn't grown much & this is a concern to her dr. He wants ...
Swine Flu Vaccine-Will you/your child get vaccinated?
- By kcsmommy · New reply November 5, 2009
- 21 replies
- Just wondering what your thoughts are on getting the H1N1 (swine flu) vaccine? My 3 year old son is on 2 immunosuppressive drugs, Prograf and Prednisone. His Neph. wants him to get the vaccine as soon ...
Doing the Nephcure walk in tampa Fl. December 12th any one going?
- By QUINNRENEE · New reply November 4, 2009
- 2 replies
- Doing the nephcure walk in tampa Fl. looking for familys that are attending ...
Adjuvant free H191 Vaccination or not?
- By 4myangel · New reply November 1, 2009
- 1 reply
- Just wondering if anyone has info on pros/cons of the adjuvant free or adjuvant H1N1 vaccine. Our son has relapsed in October & am tapering his pred. Now on 40mg every other day. Have heard the adjuvant ...
so many questions
- By waylonsmom · New reply November 1, 2009
- 10 replies
- Okay waylon went to the neph yesterday... We are starting to tapper the pred down but it is going to take about 5 months to be off totally. My main question is will he relapse? I am praying he is in the ...
NS and sports?
- By Drew165 · New reply October 30, 2009
- 12 replies
- Do any of you have your angels in sports right now? My son sees his big sister playing soccer and wants to know when he can play. I don't want him to get sick doing so. Any advice ...
Relationship btw allergies and NS
- By LauraG · New reply October 29, 2009
- 16 replies
- I know we have all talked about this at length so what I am about to say might have already been said. I personally believe allergies are related to NS. Both of my daughters have pretty bad allergies ...
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