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Adults with nephrotic syndrome
Discuss your experiences with nephrotic syndrome here.
Prednisone taper and joint pain
- By TxSaphyre · New reply 12:48 am
- 7 replies
- I have read many posts on joint pain in this forum but I didn't find any that really "hit the spot" so to speak. I was on 80 MG of pred every other day for 6 months. My neph scheduled my taper as follows ...
Help
- By littleflowercure · New reply November 19, 2009
- 2 replies
- My father is in ICU right now. He is stuck in a continous afib loop, Dialysis, edema, olcers, he is type A positive, it came on suddenly, He is on predisone, lasix, sorry my spelling stinks. I feel like ...
Membranous Nephropathy are my results
- By Alfonso123 · New reply November 19, 2009
- 12 replies
- I got the results of my biopsy, the Neph says membranous nephropathy, but the report says membranous glomerulopathy?? Looks like I have less than 10% scaring. I was told about 1/3 of cases go into remission ...
Your Disease...
- By acain0022 · New reply November 19, 2009
- 4 replies
- How old were you when you were diagnosed? What disease do you have? How many years have you had it? What drugs are you on or have been on ...
Sore throats??
- By acain0022 · New reply November 13, 2009
- 5 replies
- I have talked to one other person with this disease and she has agree with me that she gets sore throats all of the time. I was wondering if anyone else does?? And if you know where it comes from?? I ...
Pregnancy...
- By acain0022 · New reply November 13, 2009
- 2 replies
- My doctor told me since I have been on prednisone for so long. (On and off for every relapse since 18 months old.) That it would be hard or I may not be able to have children. Does anyone know anything ...
Cyclosporine...
- By acain0022 · New reply November 12, 2009
- 10 replies
- I became ill with ns when I was 18 months old, was on prednisone treatments since. Now 22 and a new relapse my doctor is trying cyclosporine with me, he put me on prednisone and cyclosporine at same time ...
Minimal Change -
- By SusanKidneyQueen · New reply November 12, 2009
- 2 replies
- Hi, I'm not getting any results from the prendisolone yet. It's been 10 days on 62.5mg. It's the first relapse I've had (the first time It went away in a week). Does it just go all of a sudden.? I just ...
New Swine Flu Shot
- By Deb3 · New reply November 11, 2009
- 30 replies
- I am confused if the new swine flu shot is a good idea for adults/children with NS or MCD. I have already read that they should not receive vaccations. Anyone been advised by their doctors or Neph. doctors ...
Belatacept
- By MacLean · Posted November 9, 2009
- 0 replies
- Does anyone have any information on the new immunosuppressant Belatacept? It has undergone Phase 3 trials and seems to be as effective as cyclosporine when used as an anti-rejection med. after a kidney ...
Anyone using Acthar Gel to treat Nephrotic Syndrome?
- By PWinMO · New reply November 9, 2009
- 2 replies
- I have just been diagnosed with Nephrotic Syndrome that was confirmed with a kidney biopsy. It has been caused by diabetes. I have been a diabetic for 27 years. Dr. has started treatment with ACE inhibitors ...
30 year remission and its back
- By dink2061 · New reply November 1, 2009
- 10 replies
- Hi everyone. I was diagnosed with NS at 2 yrs old and continued with this crappy disease till I was 14 yrs old. That was 30 years ago and a few weeks ago, IT returned. I am reliving at 43 yrs old all ...
Newly diagnosed w MCD - What is this thing?
- By 42withMCD · New reply October 29, 2009
- 12 replies
- I am late to this party. I am a 42 yr old male in good health but with symptoms. I just had a kidney biopsy and was told I have MCD. My sense is that it is not serious and very treatable. Am I right ...
I'm really struggling with FOOD!
- By AmberKGraham · New reply October 28, 2009
- 10 replies
- I am having no luck with food. I cant seem to find anything to eat, ever! I dont have time to make my meals as I am working 9 hours a day, but I need to figure something out because im constantly swollen ...
Puffy Face on Predisone
- By PatriceM · New reply October 27, 2009
- 12 replies
- I have been on 80 mgs of predisone. My body has blown up like the pillsbury doughgirl but have not actually gained weight. Mostly my face. Now on 40 mgs and hoping to reduce the dosage next week. Does ...
Minimal Change Disease and Cellcept treatment
- By OpalG · New reply October 27, 2009
- 11 replies
- I have suffered with Minimal Change Disease, on and off, over the past six years. Currently I am in remission after a relapse earlier this year. Previously I had been clear of any symptoms of MCD for ...
Prednisone and exercise...
- By wandering_mainer · New reply October 22, 2009
- 7 replies
- Has anyone out there on Prednisone tried to ease the symptoms through exercise? I am very interested in this, as I believe it has helped me greatly. I would like to hear your thoughts. -mainer ...
Cyclosporine vs. cyclophosphamide/cytoxin decision
- By lriso · New reply October 22, 2009
- 4 replies
- I have been completely controlled on cyclosporine (normal protein) for almost two years. Although it is great that I am controlled, my neph wants to switch my medication, possibly to cyclophosphamide ...
Cellcept Warning
- By GinnyO · New reply October 18, 2009
- 21 replies
- I found this article while researching MCD. If anyone wants the full article, you can e-mail me at tobvob@aol.com. WASHINGTON, April 10 (Reuters) - U.S. health regulators are investigating whether two ...
Hair loss/thinning and Prednisone
- By skimonger22 · New reply October 18, 2009
- 16 replies
- Any other women out there on pred experience any hair loss or thinning while on pred? If so, what dose are you at and for how long have you been on it? Any response would be greatly appreciated ...
Events and resources
