Discuss your experiences with nephrotic syndrome here.
- By Howdee · October 8, 2008
- 9 replies
- OK, so I have this kidney disease I'm not going to say the name of ... because I've already said it and because I'm not saying it today. Not giving it the glory. LOL. But... it comes with Nephrotic Syndrome ...
- By Howdee · September 29, 2008
- 2 replies
- Fibrillary Glomerulopathy. That's the name of my "firm diagnosis" of a very rare kidney disease. Dr. has seen it 3 times himself, and between he and the 23 other nephrologists, they see it about once ...
- By Beth75 · September 25, 2008
- 10 replies
- I have been at 5mg of pred for a month now, YAY! My swelling has gone down a lot. Two months ago my proteins were 7.5 and I was super swollen @ 20mg of pred. A few weeks ago when I got down to 5mg the ...
- By Carly83 · September 19, 2008
- 0 replies
- Hello, I was recently diagnosed with MCD with nephrosis/NS confirmed by biopsy. I also have other medical problems - type 1 diabetes, asthma and fat malabsorption (my pancreas doesn't make the enzymes ...
- By Clio1973 · September 17, 2008
- 5 replies
- I want to thank everyone for all the good advice that everyone have given me regarding my brother-in-laws condition. He has been on the Prednisone now for 3 weeks and he is starting to get better. All ...
- By Beth75 · September 11, 2008
- 3 replies
- before my labs where my proteins were @ 1 about two weeks prior I stopped taking my prilosec. I have since stopped taking furosemide (I don't really need it anymore and it never really helped me anyway ...
- By Beth75 · September 8, 2008
- 13 replies
- My proteins are at the lowest yet!!! In July they were 7.5 and now they are at 1 (goal is 0), my albumin is at 2.9 which is good (goal is 4). It was a huge jump, my Nephrologist was very happy and so ...
- By rob38 · September 7, 2008
- 8 replies
- I just wanted to share with you all my experience. I was diagnosed with MCNS in May, after a renal biopsy. I have Iga deposits, which I'm told make me harder to treat and put me at higher risk for relapses ...
- By hope4health · September 6, 2008
- 4 replies
- Has anyone had problems with cholesterol medications? I was on Lipitor and then Crestor. Both meds gave me joint pain which I later found out could be dangerous for the kidneys (something to do with enzymes ...
- By juliomexicano · September 4, 2008
- 1 reply
- Well all, I just wanted you all to know that I finished my six month treatment program on cytoxin.(6 mos is all I can do) It was going good till my last visit with the Dr. and she told me that my protien ...
- By kstreza · September 3, 2008
- 4 replies
- I'm the first to admit it. I'm terrified of getting my results back from tests. I typically get a test the first of the week and see my doctor on Friday, so I spend at least a week worrying. The weekend ...
- By Clio1973 · September 2, 2008
- 11 replies
- Hi, I hope someone could help! My brother-in-law just got diagnosed with Minimal Change Disease and is having a really hard time of it. I was wondering if someone could shed some light on what he going ...
- By Beth75 · August 21, 2008
- 2 replies
- I have MCD, and just went for a 2nd opinion on my ulcerative colitis. Remicade is a drug option for colitis and that Doc thought it might be good to see if Remicade would put my MCD into remission and ...
- By meganc · August 17, 2008
- 1 reply
- I just got a total hip replacement due to the steroids basically eating away at bones. I had no idea that high dose steroids could cause so much damage. I have to get the other hip replaced and possibly ...
- By amelieMA · August 16, 2008
- 7 replies
- Steven has developed a very sore big toe and first was given an antibiotic for infection but now the diagnosis changed to gout!! Guess what? 50 mg prednisone for three days and then back to where he was ...
- By Beth75 · August 13, 2008
- 5 replies
- So I think Cellcept is next for me. Anyone go into remission w/Cellcept? If so what other drugs were you on at the time? I have been on stupid pred for the past year and had a partial remission (just ...
- By rob38 · August 11, 2008
- 6 replies
- I was diagnosed with MCNS in May. Since then I've been on prednisone (120mg, alternate-day treatment), but I'm not in remission yet. Protein leakage has decreased from over 9,000 to around 2,000, but ...
- By lriso · August 4, 2008
- 5 replies
- I am on 300mg of cyclosporine per day (my diagnosis is MCD). My neph wants me to take low dose bactrim (that is, three days per week instead of daily) while I'm on cyclosporine as a safeguard against ...
- By amelieMA · July 29, 2008
- 5 replies
- I have found a site in www.celiac.com at; http://www.glutenfreeforum.com/index.php ?act=Post&CODE=02&f=5&t=45116&qpid=45077 6 and found several persons with MCD who were helped by a gluten free diet ...
- By TwinIntern1 · July 25, 2008
- 5 replies
- Hi everyone. My name is Dave and I’m currently interning at The NephCure Foundation. My responsibilities include organizing free Patient Family Education Seminars. NephCure has done many of these in the ...
