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Adults with FSGS
Discuss your experiences with FSGS here.
Dr. Oz
- By linda717 · Posted September 25, 2009
- 0 replies
- Did anyone see Dr. Oz yesterday with all the kidney transplant patients? It was a great show, 8 people recieved kidneys, and it all started with a donor that wanted to give back after his daughter's brain ...
High protein and creatinine levels
- By L-L-B · New reply September 23, 2009
- 7 replies
- I went to my Neph today...He said my creatinine is 161 and protein levels are over 600. Cyclosporine is not working. can anyone tell me just what this means..When I asked my protein levels he hesitated ...
Your pre-renal diet and your spouse
- By MooseMom · New reply September 22, 2009
- 16 replies
- My husband likes food. He sees it as comfort and reward. He would never ever ever ever ever ever ever be able to follow a renal diet; he would find it soul-destroying. I don't ever force my diet upon ...
More Dialysis questions
- By RiverWhispering · New reply September 21, 2009
- 9 replies
- I have a few questions now that my husband and I had this hour long class with the nurse on dialysis... These questions didn't come to me at the time. 1. After a person gets a fistula done do they wear ...
Yikes! A "year and a half" for cellcept to have an effect?
- By Andre33 · New reply September 20, 2009
- 9 replies
- Been trying to wean off prednisone... first was cyclosporin, 3 months, then changed to cellcept. I have been on 1,000 mg per day for almost three months, then they dropped pred from 30 to 20 a couple ...
Prograf is being used in the U.S.
- By GinnyO · New reply September 20, 2009
- 4 replies
- I just found out last night that Prograf is being used at the Northwestern Memorial Hospital in Chicago, IL, for transplant patients. The generic version of Prograf was released on August 18, 2009. The ...
pregnancy with FSGS
- By shenangwyn · New reply September 19, 2009
- 8 replies
- Hi, I was diagnosed with FSGS about 7 years ago now and one of the first things I wanted to know was whether I would be able to have a baby. My first two consultants said that I would not and very nearly ...
some insight
- By littlefoots08 · Posted September 18, 2009
- 0 replies
- I am 24 years old In 2003 I had an ultrasound done on my kidneys they were working just fine.The doctors did one because They would all ways find blood and protein in my urine. I would always through ...
How long is remission before Renal Failure
- By msoko · New reply September 16, 2009
- 6 replies
- Hi, I have been battling FSGS for 15 years with multiple flare ups. I was just wondering what's the longest anyone has ever had FSGS before having to go on dialysis or have transplant? Is it possible ...
Steroids vs Immunosuppressants
- By MooseMom · New reply September 15, 2009
- 8 replies
- Can anyone explain to me why a nephrologist would choose the steroid route over the immunosuppressant route when treating FSGS, or vice versa? I am on cyclosporine, so my doc went down the immunosuppressant ...
Dialysis questions again
- By RiverWhispering · New reply September 15, 2009
- 7 replies
- What about pain? I'm not on dialysis yet but was wondering how bad the pain is? Is there much pain when they make the fistula? Can they put the port in the fistula? This is one of my fears, I hate needles ...
Swelling and progression of loss of kidney function
- By JaiJai · New reply September 14, 2009
- 3 replies
- I was just diagnosed with FGS in August. I had labwork done in July which showed a creatinine level of 1.74 and last Friday had a creatinine level of 1.89. I am aware that creatinine levels can fluctuate ...
Aldactone
- By frankamend · Posted September 14, 2009
- 0 replies
- I was diagnosed with FSGS about nine months ago. First I had a large dose of prednisone which was tapered to zero at the beginning of this month and now I've ramped up on Cyclosporine to 100 mg twice ...
Allopurinol and remission
- By Mikieg · New reply September 13, 2009
- 3 replies
- I am 49 years old and was diagnosed with FSGS when I was one. For the past 15 years I've been pretty much steroid dependent. The typical cycle being 20mg prednisone until I start running negative protein ...
has anyone ever taken N-acetylcysteine or NAC?
- By 040156 · Posted September 13, 2009
- 0 replies
- Hello everyone! I stumbled upon this page which says that N-acetylcysteine or NAC decreased serum creatinine levels of some individuals. I looked at wikipedia and it said that the drugs that contain this ...
How to convince dad to go on a diet?
- By 040156 · New reply September 13, 2009
- 5 replies
- Hello everyone! I am new here, though I've been reading entries for quite a while now. I've learned a lot since I've read stories from this site. I'm from the Philippines and FSGS is almost unknown here ...
How long until kidney failure?
- By jijbarton · New reply September 13, 2009
- 47 replies
- I was got sick back in March 2001 and was later diagnoised w/ FSGS. I get tested every 4 months or so to see where I am on the progression of this disease. I am around 35pct function right now and my ...
Body Aches and Pain
- By egger46 · New reply September 11, 2009
- 10 replies
- I was just curious to see how many people are suffering with whole body pain on a daily basis. I have been diagnosed with FSGS for six years now. My body aches everyday when I wake up. I'm on prednisone ...
Total Loss of Appetite
- By HeidiMik · New reply September 11, 2009
- 12 replies
- Did anyone else lose their appetite when they got FSGS? About mid June I lost my appetite. I started to gain 1-2lbs a day in spite of not eating much. By mid July I had gained 50lbs. I saw a nephrologist ...
complete faliure symptoms? Transplant canadate...Cadavir/living?
- By leigho · New reply September 10, 2009
- 15 replies
- John's GFR is now at 15 and all his other lab work is looking bad. We were told to notify the neph if his symptoms get any worse. I was wondering what everyone that is or has been at this stage went through ...
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