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Adults with FSGS
Discuss your experiences with FSGS here.
new diagnosis,
- By lifedrills101 · New reply October 27, 2009
- 2 replies
- I am wanting a second opinion on the treatment options in Nashville, TN. Does anyone have a reccommended Neph in Nashville or the surrounding area ...
Primary FSGS
- By klocka · New reply October 25, 2009
- 4 replies
- Just wanted any possible feedback from anybody with this disease? I am currently at stage 3 with GFR of 42 three months ago was at stage 1 with GFR over 60. Been on all the immuno drugs and have never ...
Question with creatinine levels
- By Chrissytosh · New reply October 23, 2009
- 4 replies
- I've had FSGS for 10 years now and have never not spilt protein. I've been on prograf for 3 years now at 2mg 2x daily. My creatinine has consistanty been under 1. I had a Dr appointment on tuesday and ...
FSGS Remission
- By Allan · New reply October 23, 2009
- 28 replies
- Hello all. I've noticed some people saying that their FSGS is in remission after having the disease for X amount of years. My question is, was it after being on a certain drug therapy or did it accur ...
Early Treatment Questions
- By lifedrills101 · New reply October 21, 2009
- 6 replies
- Just diagnoised classic FSGS last week. After freaking out for the weekend, I am now trying to make sure I am on the best plan for remission. Current tx is Lisinopril 80mg(bp not going down enough yet ...
Back (flank) pain
- By Tanya1 · New reply October 21, 2009
- 3 replies
- was wondering if anyone else has back or flank pain. For the past 6-7 mo I have had pain on the left side of my back. It is like a muscle spasm sometimes. I read where this is comon with people that have ...
Chronic Gastritis
- By msoko · New reply October 18, 2009
- 1 reply
- Hi, I was wondering if anyone else with FSGS suffers from chronic gastritis? I was diagnosed last year after being hospitalized for dark stools and a low hemoglobin. The doctor performed an Endoscopy ...
New to NephSpace
- By Mrs_C · New reply October 16, 2009
- 12 replies
- Hi! I am new to this website (obviously lol), I was diagnosed as having kidney problems in late May early June and was eventually diagnosed as having FSGS towards the end of June. I've been on Prednisone ...
Hemo vs. PD Dialysis....personal expreriences.
- By fsgsblahs · New reply October 14, 2009
- 28 replies
- I am sure there is already a thread on this somewhere, but there may be new people with input. What I would like to know, is why people change from one type of dialysis to another...personal experiences ...
Gallstones, anyone?
- By MooseMom · New reply October 12, 2009
- 5 replies
- I know I have gallstones because they were detected during an examination for something else entirely. In the past three or four years, I have had the occasional attack that I really suspect are gallbladder-y ...
Prednisone...what am I in for?
- By suzikam · New reply October 10, 2009
- 5 replies
- Hi All, I'm an adult who was just diagnosed with FGS, about 3 months after being told I had Nephrotic Syndrome. My neph put me on 60 mg Prednisone (along with about 10 other meds, but Prednisone is the ...
Passing out?
- By Arison · New reply October 8, 2009
- 29 replies
- Okay, I passed out again last night in the middle of dinner. This is the second time it has happened. Nobody can figure out what is going on. This scares me after reading the post about strokes. They ...
Too many doctors!
- By karen5 · New reply October 6, 2009
- 2 replies
- Could someone tell me why I have to see so many different doctors? I have a primary dr, a neph for my fsgs, a pulm for my sarcoidosis, an endo for my low bone density, and a gastro for my stomach problems ...
galactose
- By debmiller · New reply October 3, 2009
- 24 replies
- Looking for more inofrmation on the sugar galactose and who has tried it to stop protein from leaking from the kidney. I have read a few posts about this but am interested in learnign more ...
Headaches
- By wedad · New reply October 2, 2009
- 9 replies
- Does anyone have headaches?? I have been getting these terrible headaches that stop me in my tracks, it feels like someone just put bengay on my head, one minute its a hot rush,then it cools,don't know ...
Low Sodium Diet
- By JaiJai · New reply October 2, 2009
- 8 replies
- Recently I have been put on a very low sodium diet due to swelling. I'm finding it extremely hard to find foods high in calories that are low in sodium. I need to eat a lot of calories because I need ...
Great News from DR today
- By TxSaphyre · New reply October 2, 2009
- 3 replies
- Saw my neph today and received fabulous news - as 150MG or less of protein inthe urine is "normal" . . . my count was 22!!!! All other blood tests fell within the normal range as well with the exception ...
Anyone tried to get an intermittent leave through work?
- By storaloppan · New reply September 30, 2009
- 11 replies
- I've been trying to get an intermittent leave through work due to the prednisone and it's side effects from my MCD, but I seem to be having difficulty explaining to the powers that be why I am requesting ...
Anyone going to the info session in Montreal on Oct.17 2009?
- By amelieMA · New reply September 29, 2009
- 2 replies
- This might be a combination of "getting more info" and "take a trip". I wonder if anyone else from this group is thinking of going? Amelie ...
Dialysis problem
- By johnwilson · New reply September 28, 2009
- 2 replies
- Hi Feeling abit low at the moment as dialysis not going very well.Has anyone had problems with cold sweats and tremors while on dialysis.Dont seem to be able to find out why dont have temperature,no infection,bloods ...
Events and resources
