Discuss your experiences with FSGS here.
- By TwinIntern1 · Yesterday at 10:52 am
- 0 replies
- The NephCure Foundation is excited to announce the upcoming Patient / Family Education Seminar in New York City on November 22nd, 2008. It will be taking place at the Joan and Joel Smilow Research Center ...
- By rferrerj · Yesterday at 5:56 am
- 4 replies
- Hello Everyone. I have been diagnosed with fsgs since Oct. 2005 and since then, I have been able to keep away from the issue of being on dialysis, but it looks like I can't hold off much longer. I was ...
- By reginapatricio · August 3, 2008
- 11 replies
- How do I know if I am getting enough treatment? I don't feel in better or worse. My neph. has got me on Cozaar 50 mil., but I'm still spilling protein. She told me this would stop the protein spillage ...
- By stephenh5255 · July 30, 2008
- 2 replies
- I am just curious if anyone else had flu like symptoms and went to the doctor only to have a high white cell count and high protien count. That is what started everything for me. I went to get doctor ...
- By RiverWhispering · July 29, 2008
- 4 replies
- I have a few questions now that my husband and I had this hour long class with the nurse on dialysis... These questions didn't come to me at the time. 1. After a person gets a fistula done do they wear ...
- By reginapatricio · July 28, 2008
- 3 replies
- My GFR goes up and down. Is this the way it suppose to? My neph. seems to tell me You're a mystery. If so I do I know what stage I'm in? Will I ever know when I'm ready to start treatment? No help from ...
- By ballerina08 · July 27, 2008
- 8 replies
- I had a biopsy last year and found out I have fsgs. Since then my kidneys have been on a fast track to failure. I was on prednisone for awhile, then switched to cellcept. Anyone else on the fast track ...
- By reginapatricio · July 25, 2008
- 9 replies
- OK OK! How do I get my neph. to tell me what caused it? In the past I was somewhat heathly other than asmtha. I don't have HIV, no known birth defects, and the only way I found when we did. I just had ...
- By Morse · July 24, 2008
- 2 replies
- Hey all... I just found this article and thought is was interesting. It is talking about a new way of removing a kidney for transplant through the navel which means less recover time for those who are ...
- By fsgsblahs · July 23, 2008
- 5 replies
- There was a blind girl who hated herself because she was blind. She hated everyone, except her loving boyfriend. He was always there for her. She told her boyfriend, 'If I could only see the world, I ...
- By linda717 · July 22, 2008
- 3 replies
- Are we just less immune than your average person, who gets strep in July?? ME! Anyone else sick of being sick, another pill oh boy! I want to wake up one day and feel great! Someday this will happen and ...
- By Mrs_M · July 22, 2008
- 3 replies
- My husband has Advanced FSGS. We are not on a particular diet (we should be). We "try" and watch his sodium and protein intake and its so hard. I love Vegeterian type dishes, and I am a meat eater! When ...
- By RiverWhispering · July 20, 2008
- 5 replies
- Can anyone please tell me what is the difference between Secondary FSGS and FSGS? I have secondary fsgs and have no clue. Thank you, River ...
- By Aweson-son · July 20, 2008
- 18 replies
- Okay, I passed out again last night in the middle of dinner. This is the second time it has happened. Nobody can figure out what is going on. This scares me after reading the post about strokes. They ...
- By reginapatricio · July 20, 2008
- 8 replies
- Do any of you have thyroid problems? My memory is slipping and I don't remember if ya'll did say so or not. I was just dianosged with this and I don't much about it. My doc. is acting like its the end ...
- By hsenid_k · July 18, 2008
- 0 replies
- Has anyone heard or tried out Wheatgrass Juice for kidney disorders? Some websites claim it heals kidneys. Is this true? Any input would be of great help ...
- By Aweson-son · July 16, 2008
- 6 replies
- I called my doctor today to see what my protein levels were. The reason I was so curious was because she had told me last Thursday that she thought I was not that swollen and not losing a lot of protein ...
- By reginapatricio · July 13, 2008
- 0 replies
- Does any one know which one is different, between, MCD or FSGS? I have FSGS, (lucky me it took 8 yrs to get to GFR 71) with little knowledge of this disease. Between you guys and the sites you have suggested ...
- By linda717 · July 13, 2008
- 13 replies
- Anyone experiencing knee pain? I don't know if it's related to FSGS, the medicine, or if my 47 year old body is just getting old. I have gained about 30 pounds since I got sick, but I get up from a chair ...
- By vanessakb · July 13, 2008
- 6 replies
- So I have done a lot of research on whether or not FSGS can be classified as an autoimmune disease. Some say yes some say no. They say yes because there is a certain gene making the protein attack one ...
