Discuss your experiences with FSGS here.
- By evag · Yesterday at 7:32 pm
- 4 replies
- Hey I would like to know how you feel or felt while taking cyclosporine. What are some of your sideffects and did or is it helping you. Also I am told that this drug can cause neuropathy among other things ...
Discuss your experiences with FSGS here.
- By Sev · Yesterday at 5:46 pm
- 15 replies
- Does anyone know what the next treatment is after prednisone? my 6 year old niece is all the way on the other side of the world in cyprus. She has been in hospital for 4 weeks taking prednisone . She ...
Discuss your experiences with nephrotic syndrome here.
- By Howdee · September 30, 2008
- 2 replies
- Fibrillary Glomerulopathy. That's the name of my "firm diagnosis" of a very rare kidney disease. Dr. has seen it 3 times himself, and between he and the 23 other nephrologists, they see it about once ...
Discuss your experiences with nephrotic syndrome here.
- By aartin · October 3, 2008
- 9 replies
- Hi, my 3 year old was diagnosed with MCNS on Tuesday (today is sunday in Australia). He started on pred 40mg on Tuesday and by Friday we were told to reduce this to 30mg as he couldn't sleep and was exhausted ...
Discuss genetic studies here.
- By mwl_NCF · June 2, 2008
- 24 replies
- POST YOUR QUESTIONS IN THIS FORUM! Andrea Uscinski, MS, Genetic Counselor and Research Coordinator at Harvard Institutes of Medicine will respond to your questions related to genetics and genetic testing ...
Discuss clinical trials here.
- By mwl_NCF · April 29, 2008
- 0 replies
- For information on current clinical trials, visit http://www.nephcure.org/News_Trials.htm or contact info@nephcure.org. The NephCure Foundation ...
Your involvement is crucial! Advocacy is defined as the process of actively showing support and pleading the cause of another. Send letters and call your local representatives to inform them about your situation and take an active role in shaping public policy and increasing funding for research into these conditions.
- By jmuchytil · September 20, 2008
- 0 replies
- You are invited to attend NephCure's free Patient/Family Education Seminar. This is a great opportunity to learn more about current treatment options, advances on Nephrotic Syndrome and FSGS research ...
There are many ways for you, your family and your friends to become involved and support the NephCure mission. Here are some ideas:
Letters for Life
Start a letter campaign and send letters to your family and friends to tell them that their support is crucial. NephCure provides the tools: sample letters, return envelopes, and brochures!
STEP FORWARD for NephCure
Locate a walk to save kidneys and save lives in your community.
Change for a Cure
How much loose change do you have in your house or car? NephCure's Change for a Cure initiative will place donation boxes next to cash registers and in homes across America.
- By ChristiL · Yesterday at 3:17 pm
- 3 replies
- Hi Everyone, I'm working on my myspace profile located at http://www.myspace.com/lesliefamily5, sharing my story and my family with others in hopes of creating more interest/support for those of us suffering ...
Have a question about using the site? An idea for making it better? Post here and let us know how we can help.
- By nice_thick2005 · September 30, 2008
- 3 replies
- two days ago my knee was hurting me then i woke up this morning and my feet are swollen does anybody know what could cause this and i am not pregnant ...
