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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Recommended
Guestbooks - An exciting addition to Inspire
- By TeamInspire · Posted May 20, 2009
- Journal · 23 recommendations
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · Posted June 10, 2009
- Journal · 12 recommendations
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Inspire members featured
- By Brian · Posted October 28, 2009
- Journal · 10 recommendations
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
I'm so depressed...
- By avb9920 · Posted November 21, 2009
- Discussion in Children with FSGS · 2 recommendations
- Hi all... I feel like I am really spiraling down. My three year-old daughter, the sweetest thing in my world, was diagonosed in May of 08 with FSGS. I cry and get upset every so often, but lately, if ...
New Swine Flu Shot
- By Deb3 · Posted September 2, 2009
- Discussion in Adults with nephrotic syndrome · 2 recommendations
- I am confused if the new swine flu shot is a good idea for adults/children with NS or MCD. I have already read that they should not receive vaccations. Anyone been advised by their doctors or Neph. doctors ...
What if we get Swine Flu?
- By MooseMom · Posted November 17, 2009
- Discussion in Adults with FSGS · 1 recommendation
- Ok, so we all have an underlying medical condition, and I am assuming that at least most of us are immunosuppressed, meaning that we need the H1N1 vaccine, right? I volunteer at our local hospital, just ...
Help the Albumin Levels are not higher!
- By SoaringHigh · Posted November 13, 2009
- Discussion in Children with FSGS · 1 recommendation
- My son 13, has new diagnosis of fSGS and has been on prograf and 2 blood pressure meds for 4 weeks now. We are tapering his Prednisone down where he only has 3 doses left. His blood work from this week ...
What if nothing works
- By birdlegs · Posted October 29, 2009
- Discussion in Adults with FSGS · 1 recommendation
- My last two treatments have not improved my spillage at all. My Dr believes that I have progessed to stage 3 CKD. I've just started Cellcept for the next two months. Just in case this doesn't work either ...
Swelling and dealing???
- By lalo · Posted October 22, 2009
- Discussion in Children with nephrotic syndrome · 1 recommendation
- Can anyone tell me how to live with this edema? My daughter is going through a bad relapse at the moment, and has less pee and more puff! I try to stay positive, and we keep her on a very low salt diet ...
Back (flank) pain
- By Tanya1 · Posted October 20, 2009
- Discussion in Adults with FSGS · 1 recommendation
- was wondering if anyone else has back or flank pain. For the past 6-7 mo I have had pain on the left side of my back. It is like a muscle spasm sometimes. I read where this is comon with people that have ...
How long is remission before Renal Failure
- By msoko · Posted September 8, 2009
- Discussion in Adults with FSGS · 1 recommendation
- Hi, I have been battling FSGS for 15 years with multiple flare ups. I was just wondering what's the longest anyone has ever had FSGS before having to go on dialysis or have transplant? Is it possible ...
FSGS and Anemia
- By msoko · Posted August 22, 2009
- Discussion in Adults with FSGS · 1 recommendation
- Anyone out there suffer from Anemia? I have had FSGS since 1995 and ever since have had low hemoglobin. My doctor always tells me that she does not know why because my kidney function is too good to have ...
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