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By Tori2009 · Posted July 10, 2009
Discussion in Children with nephrotic syndrome · 1 recommendation
Hello Everyone, My daughter has been diagnosed with MCD since Dec 08. After treatment with Prednisolone and several relapses, she has grown resistant to steroids alone. She had her Renal biopsy last month ...

Relapse

By bobbikins · Posted July 9, 2009
Discussion in Children with FSGS · 1 recommendation
I just need to vent! My 5 yr old son, Matt, has had FSGS since he was 2 and as of April 14, was in remission and just on enalapril. As of late last week , he has relapsed and is so swollen he can barely ...

Emma's follow up dr visit

By kbarber2007 · Posted July 9, 2009
Journal · 1 recommendation
Hey everyone! I wanted to share some great news regarding my daughter Emma's battle with Nephrotic Syndrome. I have posted many journal entries and discussions over the past year and a half since she ...

Surviving at school

By MelissaShuford · Posted July 9, 2009
Discussion in Children with FSGS · 1 recommendation
My daughter Emmy has been very ill. We were just told her biopsy indicates probable FSGS. They were not able to be absolute with the DX criteria but the were unable to rule it out as well. We go back ...

medical insurance help

By kimikiwi1987 · Posted June 15, 2009
Journal · 1 recommendation
okay im 21 and im on welfare for my medical and if i work and make over 200 dollars a month they will take me off of my medical. so is there any medical insurance out there that doesnt cost an arm and ...

Electrolyte Abnormalities

By mandyblue · Posted June 7, 2009
Journal · 1 recommendation
This information is being posted in "My Journal" for anyone who wishes to use it as reference material to help understand their electrolytes, and metabolic disorders. I have previously promised my friends ...

purple stria

By kimikiwi1987 · Posted May 29, 2009
Journal · 1 recommendation
has anyone gotten these strech marks , and if so how did u deal with them. casue i got them all over and from what i understand is its a side effect from the pred. and well ive gotten them all over my ...

low sodium snack [great for kids ] but its for me!

By sharlene1_n · Posted May 29, 2009
Journal · 1 recommendation
peanut butter play dough or halvah use any nut butter even sesame butter! [most health stores let you buy nuts or sesame seeds and grind them there in there grinder ; hence no salt! ingredients are 1 ...

galactose

By debmiller · Posted May 28, 2009
Discussion in Adults with FSGS · 1 recommendation
Looking for more inofrmation on the sugar galactose and who has tried it to stop protein from leaking from the kidney. I have read a few posts about this but am interested in learnign more ...

Information Concerning Hypokalemia/Low Potassium Levels

By mandyblue · Posted May 28, 2009
Journal · 1 recommendation
This is information that I think is very important for those who have problems with low potassium levels. Sometimes it is a metabolic problem that causes the loss of potassium, instead of just the use ...

MY STORY

By Katnet · Posted May 27, 2009
Journal · 1 recommendation
This is my story... First of all, I am new and so thankful I found this site. So much inspiration. I love it.... I am 24 years old with nephrotic syndrome and membranous glomerulonephritis. It started ...

to kamari mou

By agapi · Posted May 20, 2009
Discussion in Children with nephrotic syndrome · 1 recommendation
o gios prin enamisi xrono diagnostike me nefrosiko syndromo,to sok terastio den gnorizame ti itan kai pos na to antimetopisoume.eimastan sto skotadi ousiastika.loipon ksekinisame me to prezolon kai gia ...

Bad throat infection from prednisone

By Ganso · Posted May 8, 2009
Discussion in Adults with FSGS · 1 recommendation
here we go again! I had intense pain in my throat starting on Sat overnight and getting steadily worse until Tues morn at 1:30 when I felt my throat closing up. PAIN! 9 hours in emergency room, complicated ...

NephCure Lunch and Learn Houston

By psafaeian · Posted May 8, 2009
Journal · 1 recommendation
The NephCure Foundation will be hosting a Lunch and Learn patient education seminar in Houston on June 6th 2009! This is a great opportunity to learn more about nephrotic syndrome and FSGS, get your questions ...

Lisinopril Muscle Cramps

By Alfonso123 · Posted May 7, 2009
Discussion in Adults with FSGS · 1 recommendation
I am taking 20mg of Lisinopril... I really didnt have any issues until i decided to start working out again. Now my Muscles have a slight cramp (the muscles i just worked out). In the past that never ...

What happens next? What if my child isn't responding to prednisone any more

By jill-lynn · Posted April 30, 2009
Discussion in Children with nephrotic syndrome · 1 recommendation
My 4 year old son was diagnosed w/ NS in February. He initially responded to pred at 37.5 mg (12cc/day) after 1 week. He relapsed (no sickness, no clue why) during our weaning when we were at 10ml every ...

Dialysis Options?

By bandgram · Posted April 27, 2009
Discussion in Adults with nephrotic syndrome · 1 recommendation
I went to a meeting today on dialysis and the options available. Would some of you share with me what option you chose and why? Right now I am leaning toward the overnight option. My head is so full of ...