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Recommended
I'm so depressed...
- By avb9920 · Posted November 21, 2009
- Discussion in Children with FSGS · 2 recommendations
- Hi all... I feel like I am really spiraling down. My three year-old daughter, the sweetest thing in my world, was diagonosed in May of 08 with FSGS. I cry and get upset every so often, but lately, if ...
New Swine Flu Shot
- By Deb3 · Posted September 2, 2009
- Discussion in Adults with nephrotic syndrome · 2 recommendations
- I am confused if the new swine flu shot is a good idea for adults/children with NS or MCD. I have already read that they should not receive vaccations. Anyone been advised by their doctors or Neph. doctors ...
PREDNISONE VERSES PROGRAF
- By GAILRD · Posted August 12, 2009
- Discussion in Children with nephrotic syndrome · 2 recommendations
- I NEED SOME IMPUT ABOUT THESE MEDS. MY CHILD HAS BEEN ON PREDS FOR OVER TWO YEARS NOW AND ALWAYS RELAPSES AT ABOUT 10MG. EVERYTHING ABOUT HIM SEEMS TO BE DOING FINE EXCEPT FOR THE RELAPSES. TODAY OUR ...
Where to Begin!?
- By magdelena · Posted July 21, 2009
- Journal · 2 recommendations
- I have not posted an entry for quite a while. Hard to know where to begin--will try to go for the abbreviated version. Jeremy participated in a soccer tournament the weekend of June 27th, and when we ...
i think im losing my hair
- By kimikiwi1987 · Posted June 21, 2009
- Journal · 2 recommendations
- okay ive been on cyclosporine for like 3 wks now and i think im starting to lose my hair, its like one bad side effect after another.....when is this missory going to end....idk but i am glad im getting ...
Stem Cell Research - Cord Blood - FSGS
- By sjr · Posted June 9, 2009
- Discussion in Adults with FSGS · 2 recommendations
- Hello Everyone, My sister has FSGS. She's 28 y/o and has had it for 14 years. I am having my first child in December and was wondering if anyone has heard anything about saving cord blood for the stem ...
FSGS Possible Origin (or just a coincidence?)
- By Andre33 · Posted March 1, 2009
- Discussion in Adults with FSGS · 2 recommendations
- This may sound crazy, but crazier things have probably been suggested! Some 3 weeks after my slab foundation house was treated for termites with 500 gallons of what the pest control company called Termidor ...
Galactose trial
- By stretch · Posted February 14, 2009
- Discussion in Children with FSGS · 2 recommendations
- Hi all. I was wondering has anyone tried the Galactose trial for fsgs ans what was the outcome ...
levamisole
- By ness1 · Posted March 29, 2008
- Discussion in Children with nephrotic syndrome · 2 recommendations
- My son stopped responding to steroids after 4 years and the doctor put him on Levamisole which is a drug primarily used for colan cancer. He had to take these for a year. He never relapsed on it and has ...
What if we get Swine Flu?
- By MooseMom · Posted November 17, 2009
- Discussion in Adults with FSGS · 1 recommendation
- Ok, so we all have an underlying medical condition, and I am assuming that at least most of us are immunosuppressed, meaning that we need the H1N1 vaccine, right? I volunteer at our local hospital, just ...
Help the Albumin Levels are not higher!
- By SoaringHigh · Posted November 13, 2009
- Discussion in Children with FSGS · 1 recommendation
- My son 13, has new diagnosis of fSGS and has been on prograf and 2 blood pressure meds for 4 weeks now. We are tapering his Prednisone down where he only has 3 doses left. His blood work from this week ...
What if nothing works
- By birdlegs · Posted October 29, 2009
- Discussion in Adults with FSGS · 1 recommendation
- My last two treatments have not improved my spillage at all. My Dr believes that I have progessed to stage 3 CKD. I've just started Cellcept for the next two months. Just in case this doesn't work either ...
Swelling and dealing???
- By lalo · Posted October 22, 2009
- Discussion in Children with nephrotic syndrome · 1 recommendation
- Can anyone tell me how to live with this edema? My daughter is going through a bad relapse at the moment, and has less pee and more puff! I try to stay positive, and we keep her on a very low salt diet ...
Back (flank) pain
- By Tanya1 · Posted October 20, 2009
- Discussion in Adults with FSGS · 1 recommendation
- was wondering if anyone else has back or flank pain. For the past 6-7 mo I have had pain on the left side of my back. It is like a muscle spasm sometimes. I read where this is comon with people that have ...
Allergy to Mold & Yeast Mycotoxins - IgA nephropathy
- By moz100 · Posted September 22, 2009
- Discussion in Adults with nephrotic syndrome · 1 recommendation
- My 21 year old son was recently diagnosed with IgA nephropathy after a sore throat and eczema flare up. We think he may be allergic to molds and yeasts, he is cutting them out of his diet, below is what ...
Yikes! A "year and a half" for cellcept to have an effect?
- By Andre33 · Posted September 14, 2009
- Discussion in Adults with FSGS · 1 recommendation
- Been trying to wean off prednisone... first was cyclosporin, 3 months, then changed to cellcept. I have been on 1,000 mg per day for almost three months, then they dropped pred from 30 to 20 a couple ...
MCD NS
- By debra59 · Posted September 13, 2009
- Journal · 1 recommendation
- My daughter had NS when she was 2and a half.She went into remission when she was 5. 17 years later she got an attack of NS she is now on 10mg of predisone aday. I am afraid of when she comes off she will ...
How long is remission before Renal Failure
- By msoko · Posted September 8, 2009
- Discussion in Adults with FSGS · 1 recommendation
- Hi, I have been battling FSGS for 15 years with multiple flare ups. I was just wondering what's the longest anyone has ever had FSGS before having to go on dialysis or have transplant? Is it possible ...
Holistic treatment for Nephrotic Syndrome
- By JAYDARL · Posted August 26, 2009
- Discussion in Children with nephrotic syndrome · 1 recommendation
- Has anyone of you out there tried holistic treatment for your child with NS? Our daughter Julia has steroid dependent NS and has been on and off the Prednisone since March 09. Everytime the MD tapers ...
FSGS and Anemia
- By msoko · Posted August 22, 2009
- Discussion in Adults with FSGS · 1 recommendation
- Anyone out there suffer from Anemia? I have had FSGS since 1995 and ever since have had low hemoglobin. My doctor always tells me that she does not know why because my kidney function is too good to have ...
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