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Support your group and raise awareness with badges

Walter
  • By Walter · June 20, 2008
  • Journal · 18 recommendations
  • Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...

New feature - See what you've replied to

Walter
  • By Walter · April 25, 2008
  • Journal · 15 recommendations
  • Hello everyone. We just added a feature that many of you have requested - a list of all of the posts that you have replied to. To get to your list, all you need to do is: 1. Sign in 2. Click "Me ...

Sometimes we make mistakes

Brian
  • By Brian · May 23, 2008
  • Journal · 14 recommendations
  • Two months ago, when we launched Inspire 2.0, we added a group called 'Team Inspire'. We did this with the best intentions: we wanted the group to be a space for new members to get oriented, ask quest ...

Welcome from TeamInspire!

TeamInspire
  • By TeamInspire · March 13, 2008
  • Journal · 13 recommendations
  • Hello, old friends and new. Today is a big day for us! We have made numerous improvements to your community, most that were suggestions from you. As you can see the site is very different then befo ...

Welcome!

Brian
  • By Brian · March 13, 2008
  • Journal · 11 recommendations
  • I am pleased to present Inspire 2.0 -- the result of many months of fun and hard work. We have made numerous improvements to your community, the vast majority of which are ideas that came from you ...

New feature: video!

Brian
  • By Brian · June 28, 2008
  • Journal · 10 recommendations
  • I am pleased to announce that we have updated Inspire to support video. You can now share a video of yourself, videos that you find inspirational or informative, and more. I've included one of myself ...

Changes that you have requested are on the way

Beth
  • By Beth · March 28, 2008
  • Journal · 9 recommendations
  • Hello everyone. We've been hard at work on many of the great suggestions that you've sent us. This week we've been cooking up some changes to the group home page, and hope to make them public very so ...

New feature - additional reply notifications

Walter
  • By Walter · May 5, 2008
  • Journal · 8 recommendations
  • Hello everyone. We just added a new feature to help you follow the conversations that you are participating in. You will now get a notification whenever someone replies directly to one of your replies ...

Upcoming improvements to the messaging system

Walter
  • By Walter · June 1, 2008
  • Journal · 7 recommendations
  • Hello everyone. I'm writing to let you know about some long overdue improvements that we'll be making to this site's messaging system later this week. The messages section is the most frequently visit ...

Improvements to the message system are complete

Walter
  • By Walter · June 10, 2008
  • Journal · 6 recommendations
  • Hello everyone. Just a quick note to let you know that the improvements to the message system that I wrote about previously are complete. You can check them out now. You ...

New feature - profile completeness gauge

Tasha
  • By Tasha · June 12, 2008
  • Journal · 5 recommendations
  • Greetings from TeamInspire! I'm your friendly neighborhood designer, here to tell you about some new features. You might notice that today we revamped your member homepage - https://www.inspire.co ...

**Updated** System maintenance: Tuesday June 10th, 5 am - 7 am Eastern

Walter
  • By Walter · June 4, 2008
  • Journal · 2 recommendations
  • ** Updated ** Due to power outages caused by storms in the Washington, DC area, we need to postpone this maintenance until Tuesday June 10th, from 5 am to 7 am. Thanks for your patience. ** Upda ...

levamisole

ness1
  • By ness1 · March 29, 2008
  • Discussion in · 2 recommendations
  • My son stopped responding to steroids after 4 years and the doctor put him on Levamisole which is a drug primarily used for colan cancer. He had to take these for a year. He never relapsed on it and h ...

Another false read on biopsy, no clue what he has

Shawnsmom
  • By Shawnsmom · March 14, 2008
  • Journal · 2 recommendations
  • Well we went for our doctors app. yesterday and they are now saying our son does not have FSGS. But the really bad news is they have no clue what he has. The blood vessels in his kidneys are too thick ...

Kidney Kid could be coming to your town...

mwl_NCF
  • By mwl_NCF · April 29, 2008
  • Discussion in · 1 recommendation
  • ...but first it needs a name. Kidney Kid made its premier at Jet Food Stores across Georgia to raise funds for NephCure's mission to support research seeking the cause and cure for Nephrotic Syndr ...

Home from transplant

princessjacobson
  • By princessjacobson · April 21, 2008
  • Journal · 1 recommendation
  • Hello! I made it through and feel very blessed. The first two days after the transplant were really rough. I won't lie to you. I laid there and wondered why I had done this. But then I pulled mys ...

Idea for bad tasting, burning prednisone

abiyari
  • By abiyari · April 17, 2008
  • Discussion in · 1 recommendation
  • I read on another web site that a mother is giving her son his medication (prednisolone) in an empty capsule to eliminate the bad taste and the burning sensation. I think is a wonderful idea, my Yahri ...

CellCept...?

tr9736
  • By tr9736 · April 3, 2008
  • Discussion in · 1 recommendation
  • 2nd line drugs are very confusing... I've read so many posts of different drugs once you become pred dependent, resistant, etc... I am confused as to what determines the 2nd drug is used? Cytoxan, c ...

Ya know....

mamagemini
  • By mamagemini · April 1, 2008
  • Journal · 1 recommendation
  • I was just thinking...dangerous I know...but the 2 nephro doctors I have seen both tell me that I am the ONLY white female here that has this. I see on here A LOT of us have it no matter what color or ...

Cytoxin not working!

levismom
  • By levismom · March 28, 2008
  • Discussion in · 1 recommendation
  • My 3 1/2 year old son, has been on cytoxin for 7 weeks, we have 5 more to go, he still has not gone into remission. Has anyone ever experienced this before. What was your next course of treatment? We ...

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The NephSpace Support Community connects patients, families, friends and caregivers for support and inspiration. The NephSpace Support Community is sponsored by The NephCure Foundation in partnership with Inspire.