New journals
- By arrows91 · 10:53 am
- 0 replies
- Hi everyone, I decided to join after reading alot of helpful posts. I'm a 20 year old with primary FSGS, this condition as messed alot of things up in my life, cant play sport due to my neck line, lost ...
- By Morse · Yesterday at 8:01 am
- 1 reply
- Hey all... It's been awhile since I have posted anything but there has been a lot going on... School has started back in and that makes it super busy but my kids are great and that helps a lot but it ...
- By luv2cook · September 30, 2008
- 0 replies
- I am just looking for any new information on fsgs for someone who has tried just about everything that has been available to me. I was diagnosed with focal segmental glumerolsclerosis in 1992 when I was ...
- By JosephsMom · September 22, 2008
- 1 reply
- My eight yr old son who has FSGS is now on the list for transplant. If anyone has had one before could you share ...
- By Howdee · September 22, 2008
- 0 replies
- I really need to hear some GOOD news - more of Christi's kind of stories, PLEASE. I'm a 39yo mother of two great kids. I have suffered with an anxiety disorder that flares off and on for 8 years. I recently ...
- By pinkflowers24 · September 22, 2008
- 9 replies
- I had a needle core biopsy done on August 25th. I did what they told me to do, but when the sterrie strips came off it got infected. I had red streaks coming from it, so I went to my doctor and they put ...
- By ChristiL · September 19, 2008
- 14 replies
- My Personal Battle against Kidney Disease… I hope my story can help you write yours... I'm not sure how to share my story/my illness with you. So, I guess I'll just jump in and hope you can follow. I ...
- By mamagemini · September 16, 2008
- 7 replies
- Is anyone here on Diovan? I seem to be having more palpitations and hot flashes more than before. Plus my blood pressure went back up to 134/84. It had leveled down to 118/88..now back up. Not much but ...
- By TriciaJ · September 15, 2008
- 3 replies
- just letting anyone know that was interested that my son is getting better... he is starting to show signs that he might go into a remission he is testing at a 1+ or trace. so we have cancelled the solumedrol ...
- By TriciaJ · September 10, 2008
- 3 replies
- today we went to the neph. and they are going to do another biopsy and then start my son on solumedrol infusions. I am not real farmiliar with this treatment and wondered if there was anyone that had ...
- By mylifenow · September 8, 2008
- 1 reply
- I am in Dallas and currently going to childrens for my son, does any one else live here or go to childrens ...
- By mylifenow · September 5, 2008
- 5 replies
- Ok so my son was diagnosed at 11 months old, and he is now 4. He has FSGS, and it has been one heck of a journey. I promise he has had everything under the sun! There was a time right before his 3rd birthday ...
- By Beth75 · September 2, 2008
- 3 replies
- on pred for a year, still not in remission, unless there is a flipping miracle and my test show I am there. So I wasted a year on pred got all the side effects and no remission. I have some lovely purple ...
- By TriciaJ · August 31, 2008
- 9 replies
- I am new to this group and I am not sure of how to post on here yet so, here it goes.. they just recently started my 13 year old son on cozaar a protein lowering med and for blood pressure is anyone farmiliar ...
- By Brian · August 27, 2008
- 48 replies
- At Inspire, we think about privacy all the time. Virtually every web site has a privacy policy; you can read ours here: http://www.inspire.com/about/privacy/. But simply following the letter of a privacy ...
- By Morse · August 16, 2008
- 0 replies
- Hey there... I'm hurting so bad this morning in so many different places! I had my braces put on last Tuesday and now I have three spots in my mouth that are nearly raw and they are killing me... I have ...
- By mamagemini · August 15, 2008
- 4 replies
- Ack. I got my new ones yesterday and kinda put me in a funk. My calcium is high and my chloride is high. My cholesterol still way up there. Now it is 315....sucks. They want to put me on another cholesterol ...
- By JosephsMom · August 15, 2008
- 5 replies
- Two years ago my son started to break out in a rash. I took him to the allergist to be tested. Through that they found out that he had hypothyroidsm. This sent us to an endocronologist at UCSF. Through ...
- By rferrerj · August 15, 2008
- 25 replies
- I will be on dialysis soon. I can only hope that I will finally begin to feel better.I woke up this morning with some serious dizziness and feeling really sick. If only I could throw up and make it all ...
- By adsg · August 13, 2008
- 2 replies
- I have a son that is 7 years old. He was diagonsed with fsgs at 5 years old. He is on blood pressure medicine and is doing great. I have been told that it is very rare for two people in the same family ...
