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New discussions
MCD or FSGS--they aren't sure...help?
- By buffie · Posted yesterday at 8:33 pm
- In Adults with nephrotic syndrome · 1 reply
- Hi... Thanks for reading. I first became nephrotic in June...after a biopsy, they diagnosed me with MCD. I took prednisone and went into remission, thankfully. My doctors weaned me off prednisone because ...
H1N1 and flu shot
- By pamela06201 · Posted yesterday at 6:20 pm
- In Children with nephrotic syndrome · 0 replies
- Is it safe to get the H1N1 or the flu shot if I have minimal change disease? I am 16 years old and am currently taking medications. Will it interfere with anything ...
Happy Thanksgiving
- By shawny816 · Posted yesterday at 12:42 pm
- In Children with nephrotic syndrome · 0 replies
- Have a very Happy Thanksgiving. Dont eat too much ...
Vote for NephCure and help us win $$$ for research into FSGS/NS
- By mwl_NCF · Posted yesterday at 9:36 am
- In NephCure advocacy · 0 replies
- The NephCure Foundation is among a group of charities competing for a $25,000 grant from J.P. Morgan Chase & Co. with the possibility of winning a $1 million research stipend. This is a Facebook voting ...
Educate me please
- By lifedrills101 · Posted November 24, 2009
- In Adults with FSGS · 2 replies
- Ok so it's ben a month post diagnosis and the first news of the blood work was encouraging. Kidney function is still 86gfr and cholesterol came down. The disappointing part came when the urine showed ...
Help NephCure Win the $25,000 Chase Challenge
- By Sarretta · Posted November 24, 2009
- In Fundraise for NephCure · 0 replies
- The NephCure Foundation is among a group of charities competing for a $25,000 grant from J.P. Morgan Chase & Co. with the possibility of winning a $1 million research stipend. This is a Facebook voting ...
Amount of Protein in Urine.
- By Sreetama · Posted November 24, 2009
- In Children with nephrotic syndrome · 3 replies
- Hi I am bit confused regarding the amount of protein in my son's urine. For the past 7 months I am measuring his urine regularly. I always used to take the morning urine. Now from few days I am measuring ...
Help Support Nephcure through Facebook
- By ivyc · Posted November 24, 2009
- In Fundraise for NephCure · 0 replies
- Help the NephCure Foundation win $1,000,000 for kidney disease research http://apps.facebook.com/chasecommunityg iving/ ATTN NephCure Supporters: The NephCure Foundation is among a group of charities ...
Cyclosporine vs Prograf or Cellcept
- By alisan · Posted November 22, 2009
- In Children with FSGS · 5 replies
- Hi all. My 6 year old son was diagnosed with FSGS about 2 months ago. We tried pred for 2 weeks and due to side effects, they are weaning him off. We started Cyclosporine this week b/c my neph said she's ...
I'm so depressed...
- By avb9920 · Posted November 21, 2009
- In Children with FSGS · 11 replies
- Hi all... I feel like I am really spiraling down. My three year-old daughter, the sweetest thing in my world, was diagonosed in May of 08 with FSGS. I cry and get upset every so often, but lately, if ...
Diet with FSGS
- By jyakubov · Posted November 20, 2009
- In Adults with FSGS · 5 replies
- I am new member to this site-- I just recently got diagnosed with FSGS about a month ago. I have not yet started treatment (specifically prednisone) because I want to get 2nd and 3rd opinion from other ...
Prednisone taper and joint pain
- By TxSaphyre · Posted November 19, 2009
- In Adults with nephrotic syndrome · 11 replies
- I have read many posts on joint pain in this forum but I didn't find any that really "hit the spot" so to speak. I was on 80 MG of pred every other day for 6 months. My neph scheduled my taper as follows ...
SPILLING QUESTION
- By BABYWITHFSGS · Posted November 19, 2009
- In Children with FSGS · 6 replies
- My son is spilling 3+ but he has no swelling! He just got over a relapse about 2 months ago at that time still had no swelling! What does that mean is he still in a somewhat of a remission? In the past ...
secondary FSGS
- By lookonthebrightside · Posted November 17, 2009
- In Adults with FSGS · 8 replies
- Hi, I was just diagnosed today with secondary FSGA. My doctor made it seem like i was lucky i was diagnosed with this and not something else. I have spent the day researching online and i am seeing that ...
What if we get Swine Flu?
- By MooseMom · Posted November 17, 2009
- In Adults with FSGS · 5 replies
- Ok, so we all have an underlying medical condition, and I am assuming that at least most of us are immunosuppressed, meaning that we need the H1N1 vaccine, right? I volunteer at our local hospital, just ...
Your Disease...
- By acain0022 · Posted November 16, 2009
- In Adults with nephrotic syndrome · 5 replies
- How old were you when you were diagnosed? What disease do you have? How many years have you had it? What drugs are you on or have been on ...
Heading Towards Transplant Road
- By kalebsmommy · Posted November 14, 2009
- In Children with FSGS · 7 replies
- My son was diagnosed with FSGS this summer. His kidneys showed 50% scarring. They took him off of prednisone and put him on cyclosporine, but that was ineffective. A month ago he was given a peritoneal ...
Help the Albumin Levels are not higher!
- By SoaringHigh · Posted November 13, 2009
- In Children with FSGS · 10 replies
- My son 13, has new diagnosis of fSGS and has been on prograf and 2 blood pressure meds for 4 weeks now. We are tapering his Prednisone down where he only has 3 doses left. His blood work from this week ...
Advice please!
- By SHARONIRELAND · Posted November 13, 2009
- In Children with FSGS · 6 replies
- Can any please advise me on what will happen next! My son is going into his 8th week of cyclophosphamide treatment, he relapsed 2 weeks ago and thankfully today is his 3rd day negative. He was on prograf ...
Pregnancy...
- By acain0022 · Posted November 12, 2009
- In Adults with nephrotic syndrome · 2 replies
- My doctor told me since I have been on prednisone for so long. (On and off for every relapse since 18 months old.) That it would be hard or I may not be able to have children. Does anyone know anything ...
Events and resources
