I just wanted to share with you all my experience. I was diagnosed with MCNS in May, after a renal biopsy. I have Iga deposits, which I'm told make me harder to treat and put me at higher risk for relapses ...
Hi, my 3 year old was diagnosed with MCNS on Tuesday (today is sunday in Australia). He started on pred 40mg on Tuesday and by Friday we were told to reduce this to 30mg as he couldn't sleep and was exhausted ...
Has anyone had problems with cholesterol medications? I was on Lipitor and then Crestor. Both meds gave me joint pain which I later found out could be dangerous for the kidneys (something to do with enzymes ...
Well all, I just wanted you all to know that I finished my six month treatment program on cytoxin.(6 mos is all I can do) It was going good till my last visit with the Dr. and she told me that my protien ...
I'm the first to admit it. I'm terrified of getting my results back from tests. I typically get a test the first of the week and see my doctor on Friday, so I spend at least a week worrying. The weekend ...
Step Forward North Jersey When: September 14, 2008 10:00a.m. – 4:00p.m. rain or shine… Where: Over Peck Park, Leonia, NJ Email address: Decesquared@verizon.net or nephcure.org STEP FORWARD NORTH JERSEY ...
Hi, I hope someone could help! My brother-in-law just got diagnosed with Minimal Change Disease and is having a really hard time of it. I was wondering if someone could shed some light on what he going ...
Hi, I wanted to put this out there to see if anyone else has any of these problems. I have good kidney function and found out I have fsgs two years ago. I take a water pill, lisinipril 5mg and cyclosporine ...
I met with my neph doctor friday, the good news is my gfr is about the same as a year ago... happy about that news. I asked him if people with fsgs need to wear a medic alert bracelet once they have a ...
I know I've posted a few times about babies and blah blah blah, but I finally went and visited with an OB today. Lets just say I did not leave there feeling very positive. She pretty much scared the living ...
Australian scientists say they have developed a drug with the potential to save millions of lives from kidney disease. The scientists from the University of Melbourne, St Vincent's Hospital and Bio21 ...
I have MCD, and just went for a 2nd opinion on my ulcerative colitis. Remicade is a drug option for colitis and that Doc thought it might be good to see if Remicade would put my MCD into remission and ...
Hi Everyone! I'm new to this site, but I'm so glad I found it. For anyone in the chicago area, we are having a fundraising walk on September 14th. It's are second Annual Chicago walk and it is a lot of ...
I went to my doctor today for a check up. She asked how my daughter who has FSGS was doing? (she takes care of her also) I said the epo shots have kicked in. She knew her level was 8.75, I said it should ...
My 2 year old son was just diagnosed with Nephrotic Syndrome on July 10, 2008. After about a week of receiving Prednisolone, he showed neg. in his urine for about 10 days. But, at the end of July, he ...
Hey all... Ok... Quick question about GFR falling off the fence just like Humpty Dumpty! It is crashing with a big old boom! (Sorry, trying to stay as upbeat as possible with no answers!) Here is the ...
hi friends, my wife, Archana, 33 yrs., is suffering from FSGS and AIHA. her S. CR. is 5.1 and doctors have advised transplant. can you all tell me what would be the chance s of success in transplant ...
I just got a total hip replacement due to the steroids basically eating away at bones. I had no idea that high dose steroids could cause so much damage. I have to get the other hip replaced and possibly ...
New study of 50 patients with membranous nephropathy showed that the monoclonal antibody Rituximab put 10 of them into complete remission. Stopped proteinuria, even healed kidney damage. See article here ...
My son is 3 1/2 years old, and was diagnosed with ns/mcd, in September 2007. We just completed 9 months of Predisone, 12 weeks cytoxan, and Lasik. He also developed high blood pressure. Everything was ...
