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Welcome to Inspire!
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Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Advice please!
- By SHARONIRELAND · New reply 6:02 pm
- Discussion in Children with FSGS · 7 replies
- Can any please advise me on what will happen next! My son is going into his 8th week of cyclophosphamide treatment, he relapsed 2 weeks ago and thankfully today is his 3rd day negative. He was on prograf ...
a "cure" for FSGS?
- By DennisD · New reply 4:34 pm
- Journal · 38 replies
- Hi everyone - I was reading some of your posts and thought I would join to share some info you might be able to use. I am 59 and have been diagnosed with FSGS for a little over 5 years. The first year ...
Educate me please
- By lifedrills101 · New reply 11:09 am
- Discussion in Adults with FSGS · 4 replies
- Ok so it's ben a month post diagnosis and the first news of the blood work was encouraging. Kidney function is still 86gfr and cholesterol came down. The disappointing part came when the urine showed ...
MCD or FSGS--they aren't sure...help?
- By buffie · New reply 9:35 am
- Discussion in Adults with nephrotic syndrome · 2 replies
- Hi... Thanks for reading. I first became nephrotic in June...after a biopsy, they diagnosed me with MCD. I took prednisone and went into remission, thankfully. My doctors weaned me off prednisone because ...
My Story
- By amanda_gee · New reply 8:27 am
- Journal · 23 replies
- Well I know that most of you have no idea what I've been through so I decided to write my story, showing how completely ill I was to becoming in remission as I have now. Honestly, I do not tell anyone ...
Cyclosporine vs Prograf or Cellcept
- By alisan · New reply 12:41 am
- Discussion in Children with FSGS · 5 replies
- Hi all. My 6 year old son was diagnosed with FSGS about 2 months ago. We tried pred for 2 weeks and due to side effects, they are weaning him off. We started Cyclosporine this week b/c my neph said she's ...
Hair loss/thinning and Prednisone
- By skimonger22 · New reply 12:03 am
- Discussion in Adults with nephrotic syndrome · 17 replies
- Any other women out there on pred experience any hair loss or thinning while on pred? If so, what dose are you at and for how long have you been on it? Any response would be greatly appreciated ...
Amount of Protein in Urine.
- By Sreetama · New reply yesterday at 7:43 pm
- Discussion in Children with nephrotic syndrome · 3 replies
- Hi I am bit confused regarding the amount of protein in my son's urine. For the past 7 months I am measuring his urine regularly. I always used to take the morning urine. Now from few days I am measuring ...
H1N1 and flu shot
- By pamela06201 · Posted yesterday at 6:20 pm
- Discussion in Children with nephrotic syndrome · 0 replies
- Is it safe to get the H1N1 or the flu shot if I have minimal change disease? I am 16 years old and am currently taking medications. Will it interfere with anything ...
SPILLING QUESTION
- By BABYWITHFSGS · New reply yesterday at 3:41 pm
- Discussion in Children with FSGS · 6 replies
- My son is spilling 3+ but he has no swelling! He just got over a relapse about 2 months ago at that time still had no swelling! What does that mean is he still in a somewhat of a remission? In the past ...
Happy Thanksgiving
- By shawny816 · Posted yesterday at 12:42 pm
- Discussion in Children with nephrotic syndrome · 0 replies
- Have a very Happy Thanksgiving. Dont eat too much ...
Happy Thanksgiving!
- By T-rae · Posted yesterday at 11:48 am
- Journal · 0 replies
- I just wanted to say I hope that everyone has a Happy Thanksgiving. I wish everyone and their families the best. This has been a long month and I am finally happy to say I am on my way to remission. I ...
Side effects of Prednisone
- By storaloppan · New reply yesterday at 11:32 am
- Journal · 2 replies
- I'm really starting to feel the side effects of prenisone. I feel "thick"...guess there's no other way to describe it. The fat that surrounds my neck and torso is a weight that's getting harder to bear ...
Diagnosed with MCD 3.5 years ago...
- By storaloppan · New reply yesterday at 11:17 am
- Discussion in Adults with nephrotic syndrome · 7 replies
- OK, so after lurking around here for awhile, I figured I'd finally start posting. I was diagnosed with MCD 3.5 years ago. I went through 1 round of prednisone for a total of 8 months and went into "remission ...
Vote for NephCure and help us win $$$ for research into FSGS/NS
- By mwl_NCF · Posted yesterday at 9:36 am
- Discussion in NephCure advocacy · 0 replies
- The NephCure Foundation is among a group of charities competing for a $25,000 grant from J.P. Morgan Chase & Co. with the possibility of winning a $1 million research stipend. This is a Facebook voting ...
Diagnosed with another disease.
- By 1955-53 · Posted yesterday at 8:12 am
- Journal · 0 replies
- Now I have been diagnosed with diabetes along with Stiff Person Syndrome. It has been quite a year, two disease diagnosed in 6 months. Oh well, you just have to keep on keeping on. Fight to the finish ...
anyone have relapse after allergy skin test??
- By ctrb · New reply yesterday at 2:16 am
- Discussion in Children with nephrotic syndrome · 4 replies
- My 3 year old was diagnosed with NS 11 months ago. I have kept detailed food logs and discovered many allergens/sensitivities since that time but still feel I am missing something. (Relapse free since ...
Your Disease...
- By acain0022 · New reply November 24, 2009
- Discussion in Adults with nephrotic syndrome · 5 replies
- How old were you when you were diagnosed? What disease do you have? How many years have you had it? What drugs are you on or have been on ...
I'm so depressed...
- By avb9920 · New reply November 24, 2009
- Discussion in Children with FSGS · 11 replies
- Hi all... I feel like I am really spiraling down. My three year-old daughter, the sweetest thing in my world, was diagonosed in May of 08 with FSGS. I cry and get upset every so often, but lately, if ...
Today's visit
- By mamagemini · Posted November 24, 2009
- Journal · 0 replies
- I went to see my Neph today after 4 months. I asked him point blank, "Will my kidneys get better?" He said "No, I am surprised they have stayed with you this long. Usually with your 3 it brings on failure ...
Events and resources
