Active
- By andisc40 · New reply 12:00 pm
- Journal · 9 replies
- Well, I am coming down off prednisone despite what my doctor wants. I made it to 5 months at 60mg daily. Never had mood changes, but other side effects have made it so horrible that I feel like I have ...
- By Kyleesmom · New reply 10:39 am
- Discussion in Children with nephrotic syndrome · 6 replies
- We found out June 2, 2008 that my daughter has MCNS and she has been on prednisolone for the past four months and its not keeping her into remission. Her feet fall asleep alot and she is always hot. Never ...
- By arrows91 · New reply 10:00 am
- Journal · 5 replies
- Hi everyone, I decided to join after reading alot of helpful posts. I'm a 20 year old with primary FSGS, this condition as messed alot of things up in my life, cant play sport due to my neck line, lost ...
- By Howdee · New reply 5:29 am
- Discussion in Adults with nephrotic syndrome · 8 replies
- OK, so I have this kidney disease I'm not going to say the name of ... because I've already said it and because I'm not saying it today. Not giving it the glory. LOL. But... it comes with Nephrotic Syndrome ...
- By Pmorris · New reply 3:45 am
- Journal · 3 replies
- Being 18 and only 7 months in having membranous nephropathy, it is hard. All of the medications seem to have stop working now. My condition has gotten even worse than when I first started. So now I'm ...
- By rferrerj · New reply yesterday at 11:26 pm
- Discussion in Adults with FSGS · 2 replies
- Hello Everyone, Yesterday was my monthly visit to the Neph and no good news at all. I have been feeling sick for way to long and just this past month things just got worse. I'm really tired of feeling ...
- By brian_josephs_mommy · New reply yesterday at 10:54 pm
- Discussion in Children with nephrotic syndrome · 2 replies
- Hi my son Brian was diagnosed with Nephrotic Syndrome Augest 23, 2008 a week before his second birthday. He had a few hospitalizations and a kidney biopsy. I live in Philadelphia, PA...If there is anyone ...
- By Beth75 · Posted yesterday at 4:38 pm
- Journal · 0 replies
- so I am going to see my Neph in two weeks. Last time my proteins were down to 1, which was Fab. I still have bubbles and some edema. I am so scared that I am not in remission yet, it has been over a year ...
- By evag · New reply yesterday at 3:35 pm
- Discussion in Adults with FSGS · 9 replies
- Hey I would like to know how you feel or felt while taking cyclosporine. What are some of your sideffects and did or is it helping you. Also I am told that this drug can cause neuropathy among other things ...
- By Sev · New reply yesterday at 3:31 pm
- Discussion in Children with FSGS · 17 replies
- Does anyone know what the next treatment is after prednisone? my 6 year old niece is all the way on the other side of the world in cyprus. She has been in hospital for 4 weeks taking prednisone . She ...
- By luv2cook · Posted yesterday at 9:21 am
- Discussion in Adults with FSGS · 0 replies
- I have had this deadly disease twice, along with my FSGS. They said it was because of a high calcium and phos product. They removed all of my peri-thyroid glands in my neck, thinking it would help but ...
- By shamrocker · New reply yesterday at 8:55 am
- Discussion in Adults with FSGS · 7 replies
- Hi everyone! I'm new here and hope to make some friends and to learn more about my disease. I have read some discussions and I have a lot in common with some of you in regards to FSGS. I am now at 20 ...
- By Rileys-parents · New reply yesterday at 12:22 am
- Discussion in Children with nephrotic syndrome · 5 replies
- Hello All, My son is 4 and has relapses frequently from MCNS. Everything I have read stated that when a relapse occurs it does not do much damage to the kidneys unless it is not controlled and goes on ...
- By ivyc · Posted October 8, 2008
- Discussion in Fundraise for NephCure · 0 replies
- The annual Step Forward to Save Kidneys, a walk to save lives is scheduled for this Sunday, October 12 at the Wilson Farm Park in Chesterbrook, PA. All proceeds will benefit the NephCure Foundation- raising ...
- By luv2cook · New reply October 7, 2008
- Discussion in Adults with FSGS · 6 replies
- I had a living donor transplant in 98 and the FSGS came right back into the new kidney within months. I was told that because of the re-occurenece it was likely to happen again if I recieved another transplant ...
- By ChristiL · New reply October 7, 2008
- Discussion in Fundraise for NephCure · 3 replies
- Hi Everyone, I'm working on my myspace profile located at http://www.myspace.com/lesliefamily5, sharing my story and my family with others in hopes of creating more interest/support for those of us suffering ...
- By Heartly · New reply October 6, 2008
- Discussion in Adults with FSGS · 8 replies
- HI I see everyone here is diagnoised with their kidndeys. I wish I knew why my kidneys are failing? Does anyone else on here have this same problem? I went into kidney failure about 4 years ago and I ...
- By Morse · New reply October 5, 2008
- Journal · 1 reply
- Hey all... It's been awhile since I have posted anything but there has been a lot going on... School has started back in and that makes it super busy but my kids are great and that helps a lot but it ...
- By AmosB · New reply October 4, 2008
- Discussion in Children with FSGS · 7 replies
- Instruction manual Did any of you receive an instruction manual when your child was diagnosed? I wish, don’t you……Do any of you feel like we need to compile an owner’s manual for all of this? Just when ...
- By magdelena · New reply October 3, 2008
- Discussion in Children with FSGS · 4 replies
- I am new to this group and have spent a lot of time reading though the different discussions. The one thing that that has jumped out at me is how different everyone's treatments are! Some people are on ...
