I am new to this group and I am not sure of how to post on here yet so, here it goes.. they just recently started my 13 year old son on cozaar a protein lowering med and for blood pressure is anyone farmiliar ...
Ok so my son was diagnosed at 11 months old, and he is now 4. He has FSGS, and it has been one heck of a journey. I promise he has had everything under the sun! There was a time right before his 3rd birthday ...
on pred for a year, still not in remission, unless there is a flipping miracle and my test show I am there. So I wasted a year on pred got all the side effects and no remission. I have some lovely purple ...
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Ack. I got my new ones yesterday and kinda put me in a funk. My calcium is high and my chloride is high. My cholesterol still way up there. Now it is 315....sucks. They want to put me on another cholesterol ...
I will be on dialysis soon. I can only hope that I will finally begin to feel better.I woke up this morning with some serious dizziness and feeling really sick. If only I could throw up and make it all ...
Just wanted to update my page. I was diagnosed with FSGS in Jan. 07. My doctor asked me to give him one year to treat me with some meds other than steroids. I agreed, and still have not had to go on steroids ...
I have a fantastic 9-year-old daughter who was conclusively diagnosed three years ago with idiopathic FSGS. Despite a total lack of respose to every possible drug, and spilling 3/4+ protein the entire ...
The princess has had a headache for 7 days, along with vomiting. We took her to the clinic Saturday and they concluded that she is having blood pressure headaches. They changed her blood pressure medicince ...
Two years ago my son started to break out in a rash. I took him to the allergist to be tested. Through that they found out that he had hypothyroidsm. This sent us to an endocronologist at UCSF. Through ...
So the past couple of weeks, I have had barely any bubbles in my urine and I had normal ankles (well pretty close w/out taking the diuretic) and so I am thinking I can't wait to do my test and I must ...
I started my first dose today. I went from taking next to nothing to taking a ton of stuff. My lasix were not working so they gave me some extra to boost it. I refuse to take steroids so I happened to ...
Hey there... I'm hurting so bad this morning in so many different places! I had my braces put on last Tuesday and now I have three spots in my mouth that are nearly raw and they are killing me... I have ...
I have a son that is 7 years old. He was diagonsed with fsgs at 5 years old. He is on blood pressure medicine and is doing great. I have been told that it is very rare for two people in the same family ...
Someone posted the definition of FSGS and it got me looking so I went and found the types. I was told I had "Tip Lesion FSGS" and all that came into my picture was the tip of the kidney was scarred. So ...
Hello everybody, I want to get in contact with people that have IGA nephropathy after having started Nephrotic Syndrome at early childhood stage. What medication have you had, prognosis given by nephrologists ...
I have found myself crying over little stuff the past few weeks & I have found myself thinking of what the future has in store for me. I have been blaming myself for having FSGS. If only I had seen a ...
Well we have reduced our protein again. We have been taking Mary off the prednisone VERY! slowly this time. I don't know if it is the summer months and she is healthier in the summer or if we are just ...
Hey there... ok... it has been a weird last month... I went to Phoenix and Las Vegas for a week and that was a great experience... I got to meet Wayne Brady... I also saw his show (we sat front row center ...
