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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Active journals
a "cure" for FSGS?
- By DennisD · New reply 1:21 pm
- 23 replies
- Hi everyone - I was reading some of your posts and thought I would join to share some info you might be able to use. I am 59 and have been diagnosed with FSGS for a little over 5 years. The first year ...
food ideas, recipe staples and meal info
- By SJsMom · New reply 11:35 am
- 5 replies
- I have been meaning to post this info for quite some I have tried to compose a list of our household staples for a low sodium diet. My daughter has chronic kidney disease (fsgs and mn for all of you kidney ...
Not sure what to do
- By deenjmom · New reply 11:06 am
- 1 reply
- My son was diagnosed with ns in may of 2009.He was on predisone for 3 months. When his treatment was over 3 wks later he relapsed so they the doc put him for another 3 months and 3 wks later he relapsed ...
Still waiting
- By T-rae · New reply yesterday at 8:42 pm
- 2 replies
- I am still so swollen and I am b ack on 60mg of of pred. and 80 twice a day of lasix, but nothing is happening. I can't sleep now due to the pred! I had to go to the hospital on Saturday because I was ...
I was healed of Nephrotic Syndrome by God
- By I-am-a-testimony · New reply November 19, 2009
- 13 replies
- I was diagnosed of N/S at the age of five battled for a long time and got healed at the age of eighteen. With God all things are possible ...
Home dialysis Vs. Clinic Dialysis
- By MollyB · New reply November 19, 2009
- 6 replies
- We have just watched a video by a company , BAXTER concerning home dialysis. The people interviewed were all positive. What are the short comings if any and are there other companies that offer the same ...
Cinderella Emmy
- By MelissaShuford · New reply November 18, 2009
- 5 replies
- Thanks for all your prayers!!!!! Emmy won 2010 Junior Miss Claremont!!!! She is so giddy and excited!!! Love to see her so happy ...
cancel
- By amanda_gee · New reply November 18, 2009
- 13 replies
- I am just letting everyone know, that I might be canceling my nephspace soon. I just didnt want anyone to wonder where I went. Amanda ...
Tomorrow is the BIG Dr and many test day!!!!!
- By MelissaShuford · New reply November 18, 2009
- 3 replies
- I have butterflies and a little scared but tomorrow is the day...still can't figure out how I am gonna complete the metabolic stress test...nose clamped and mask on NO OXYGEN in either...hop on a treadmill ...
Can Allergy Test cause Relapse?
- By Mom2Gar · New reply November 17, 2009
- 3 replies
- Wondering if anyone's child was NOT Nephrotic at the time their child was tested by the pin prick allergy test and whether or not they relapsed. I'm afraid to have him tested, because when he is bit by ...
My Story
- By amanda_gee · New reply November 16, 2009
- 21 replies
- Well I know that most of you have no idea what I've been through so I decided to write my story, showing how completely ill I was to becoming in remission as I have now. Honestly, I do not tell anyone ...
Any advice on PH would be helpful and appreciated
- By MelissaShuford · New reply November 15, 2009
- 4 replies
- Now I have to focus a little on me and some medical issues...regarding my pulmonary hypertension...what are normal pressures and when do they usually start treatment...what kinds of treatments are the ...
Sleep?!?!
- By acain0022 · New reply November 14, 2009
- 9 replies
- All day long I am exhausted, want to take naps all the time, but when its night time, time to really go to sleep, I cant!! I just sit here and cant seem to relax long enough to fall asleep. I think it ...
NephCure Patient Education Seminar in Miami 11/15
- By psafaeian · New reply November 14, 2009
- 2 replies
- The NephCure Foundation will be hosting a Patient Education Seminar in Miami on Sunday November 15th 2009! This is a great opportunity to learn more about nephrotic syndrome and FSGS, get your questions ...
An Enchanted Evening to come tonight for Ms Emmy
- By MelissaShuford · New reply November 14, 2009
- 1 reply
- I am so excited for my Em....she is participating in a pageant tonight that is a fund raiser to help bring an exceptional gospel band to town that she loves...it ha s so far been a very special time for ...
Bored...
- By acain0022 · New reply November 13, 2009
- 2 replies
- I just wanted to say thanks to everyone...I am really starting to love this site. I finally feel like there are people out there who understand what I am going through and have been going through. Even ...
Monday Big Day with PH Dr
- By MelissaShuford · Posted November 13, 2009
- 0 replies
- Monday is my all day long Dr visits with Heart failure clinic for a Metabolic stress test...can't breathe well now with exertion but they are gonna clamp my nose mask me and put me on a treadmill...I ...
Cinderella Emmy
- By MelissaShuford · Posted November 12, 2009
- 0 replies
- My angel gets to be in her first pageant Sat...she is so excited...and we have been blessed...with a beautiful dress....and I just want her to have a enchanting nite...please pray for her!!!!!!Thank You ...
Too new to know what is happening
- By stars200 · New reply November 12, 2009
- 8 replies
- Just diagnosed with FSGS. Really nervous and scared so far about what I have read. The Neph was supposed to call today after she went over the report and to discuss what we should do. She did not call ...
Here we go again...
- By T-rae · Posted November 11, 2009
- 0 replies
- Well the nurse called me back yesterday and I missed her call, So I called her back and I was put on the line with another Nurse. Then she seemed so confused as to why I was calling in the first place ...
Events and resources
