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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
NephCure Lunch and Learn Raleigh, NC 9/26/2009
- By psafaeian · Posted September 18, 2009
- 0 replies
- The NephCure Foundation will be hosting a Lunch and Learn patient education seminar in Raleigh on September 26th 2009! This is a great opportunity to learn more about nephrotic syndrome and FSGS, get ...
Still doing pretty good
- By dionysos1 · Posted September 18, 2009
- 1 reply
- I was diagnosed with Nephrotic Syndrome in the ER in November 2007. I had a biopsy done in January 2008. I was told I had Primary FSGS perihilar variant. So my numbers have been up and down. I am steroid ...
New NS Mom
- By Moddy · Posted September 17, 2009
- 14 replies
- My 9 year-old son was diagnosed with NS early this year. He had a biopsy in April. He has been in steroid for 7 months. Lately he is not responding really well to it, and the dosis was increased recently ...
MCD NS
- By debra59 · Posted September 13, 2009
- 0 replies
- My daughter had NS when she was 2and a half.She went into remission when she was 5. 17 years later she got an attack of NS she is now on 10mg of predisone aday. I am afraid of when she comes off she will ...
Finally getting a fistula
- By pennyivy123 · Posted September 11, 2009
- 6 replies
- Hello. I'm new to inspire. Glad to be here! I got the call today with a date to get my fistula put in. I knew it was coming, but it hits hard when it becomes reality. Does it hurt? My kidney function ...
Update on Emmy and Me
- By MelissaShuford · Posted September 11, 2009
- 0 replies
- Today we go to her primary care Dr for a recheck of the rocky mt spotted fever and blood work. Then Monday we finally get to go to the Rheumatologist. Been waiting since May for an appt. She has made ...
Glacatose
- By debmiller · Posted September 10, 2009
- 11 replies
- Can anyone tell me how to get oral galactose in the United States. Do you have to have a doctor get it or can we get it on our own? Some posts have shown people who are losing protein have good luck with ...
I need a new Nephrologist
- By april_48f · Posted September 9, 2009
- 5 replies
- I was diagnosed in February 2009 with FSGS. I was put on prednisone 10mg, cyclosporine 200mg, lisiniril 10mg and lasix 10mg. I was having a lot of cramping and a lot of weight gain and nothing was happening ...
NephCure Lunch and Learn Raleigh, North Carolina 9/26/2009
- By psafaeian · Posted September 7, 2009
- 0 replies
- The NephCure Foundation will be hosting a Lunch and Learn patient education seminar in Raleigh on September 26th 2009! This is a great opportunity to learn more about nephrotic syndrome and FSGS, get ...
NephCure Lunch and Learn Montreal 10/17/2009
- By psafaeian · Posted September 7, 2009
- 0 replies
- The NephCure Foundation will be hosting a Lunch and Learn patient education seminar in Montreal on Saturday October 17th 2009! This is a great opportunity to learn more about nephrotic syndrome and FSGS ...
biopsy
- By kimikiwi1987 · Posted September 2, 2009
- 12 replies
- well tomorrow 9/3/09 im getting my second biopsy done my doc kinda sounds worried now, he says we need to do this to see what we are working with, now thats kinda scary... but oh well gotta keep going ...
+2 again
- By maloudevilla · Posted August 26, 2009
- 4 replies
- hi again to my friends and members of team inspire, I woke up today and test her urine( I do it everyday), and was shocked that her urine is spilling protein again....I felt so sad because here we go ...
How to know if a UTI is coming ahead using the multistix?
- By maloudevilla · Posted August 23, 2009
- 0 replies
- last two weeks was another sad days for our family, Nadine urine was +4 again and yes it was UTI again but its a regular UTI not the reflux one...after taking antibiotics for almost 2 weeks, her urine ...
I just ache
- By storaloppan · Posted August 20, 2009
- 3 replies
- Yesterday was not such a good day. I've been on 70mg prednisone for the last 4 weeks, and haven't really noticed any side effects yet (thankfully), but I felt like I had been hit by a truck yesterday ...
not the greatest news from my doc
- By kimikiwi1987 · Posted August 19, 2009
- 0 replies
- well i went to my kidney doc and he told me that since im not going down on my steriods that he wants to see me back in 3 wks and now hes also talking about doing another biopsy........blahhh ...
Steroid Pulse Therapy
- By hopeful_mom · Posted August 19, 2009
- 5 replies
- My 3 year old is steroid dependent and the neph wanted him to go through steroid pulse therapy where he takes Solu-Medrol IV treatments to ultimately lower his dosage of prednisone. He had one at the ...
Does diet really help?
- By Fosh · Posted August 19, 2009
- 10 replies
- My son is 7 and is on his 5th relapse in 18 months. He seems to be steriod dependent and has in 2 years only been off them for 7 weeks while on Levamisole but has relapsed again. has anyone been given ...
Relapse
- By kateDD23 · Posted August 18, 2009
- 1 reply
- My son was diagnosed out of the blue with Nephrotic syndrome at the age of 2-2 1/2. He has never had a biopsy, based on his response to medication it was suggested that he has Minimal Change Disease ...
I hate this Feeling.....
- By kimikiwi1987 · Posted August 16, 2009
- 35 replies
- I hate feeling like this, i feel sore all over and all. I think its depression, cause i have trouble sleeping and i dont wont to get out of bed cause its the same old same old everyday. i hate feeling ...
DR'S VISIT
- By GAILRD · Posted August 14, 2009
- 0 replies
- WE HAD OUR DR'S VISIT. LOOKS LIKE WE WILL BE CHANGING HIS MEDS TO PROGRAF IN THE NEXT COUPLE OF WEEKS. THATS IF HE RELAPSES AGAIN ...
Events and resources
