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Welcome to Inspire!
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Journals
NephCure Patient Education Seminar Houston 10/24/2009
- By psafaeian · Posted October 3, 2009
- 0 replies
- The NephCure Foundation will be hosting a Lunch and Learn patient education seminar in Houston on October 24th 2009! This is a great opportunity to learn more about nephrotic syndrome and FSGS, get your ...
NephCure Patient Education Seminar Montreal 10/17/2009
- By psafaeian · Posted October 3, 2009
- 0 replies
- The NephCure Foundation will be hosting a Lunch and Learn patient education seminar in Montreal on Saturday October 17th 2009! This is a great opportunity to learn more about nephrotic syndrome and FSGS ...
PLEASE HELP
- By obima · Posted October 3, 2009
- 1 reply
- please help i need to now what do you do when your secuond line treatment is failing? currently im on remision at 20mg steriod and 3g MMF but the doctors are saying the MMF is not working, are not contributing ...
Emmy's Biopsy report finally in hand
- By MelissaShuford · Posted October 2, 2009
- 5 replies
- After finally receiving Em's biopsy report from 6/19/2009 it reads....Early perihilar focal segmental glomerulosclerosis and it reads on in description but due to technical considerations electron microscopic ...
I feel so Blahhhhh................
- By kimikiwi1987 · Posted October 2, 2009
- 10 replies
- Lets see where to begin well got my biopsy results back about 2 wks ago i still have fsgs and know i also have iga, so the docs r taking me off my cyclosporine and utting me on cytoxin for 3 months since ...
teenagers with MCD
- By obima · Posted September 30, 2009
- 1 reply
- hello, im 17 years old and i was disagonised with MCD nephrotic syndrome in Aug 08, so ive been battling this disease for good a year. At the start i took pred 60mg for 6 weeks worked fine....until tapering ...
Normal??
- By myasmommy · Posted September 30, 2009
- 6 replies
- I wake up every morning still so tired as if I didn't sleep at all wondering what is going to hurt when I get out of the bed. I am off the predisone but still don't feel good. I am so tired all of the ...
Fear...anger...sadness...tears...prayers...confusion
- By MelissaShuford · Posted September 29, 2009
- 20 replies
- I feel like we are on a roller coaster ride of emotions...I'm exhausted with the fighting for whats right...scared to death of what might happen...and hanging on to what seems like threads of hope....Lord ...
Emmys attendance issues and 504 plan
- By MelissaShuford · Posted September 28, 2009
- 0 replies
- Please continue to read inital journal previously posted. Emmy's attendance Meeting.... Thanks, Melissa ...
I Wonder..........................
- By clarity · Posted September 28, 2009
- 5 replies
- Wonder why it is that while the rest of the world sleeps we are dealing with: spiking fevers, cold chills, vomiting, dry heaving, quite tears, sobbing from the very core of her being, anger, confusion ...
Emmy's attendance meeting.....update on our situation
- By MelissaShuford · Posted September 26, 2009
- 14 replies
- Basically it is what it is....a number on a piece of paper...that defines the attendance counselors job performance....not whats going on with my child....and that they can't take my word or trust me ...
baking soda?
- By g261520 · Posted September 25, 2009
- 3 replies
- Has anyone ever heard that baking soda could help slow the progression of kidney disease? Sounds bizare to me but... The study leader Magdi Yaqoob, renal medicine professor at the Royal College of London ...
School Attendance Policies with a chronically ill child SUCKS!!!!
- By MelissaShuford · Posted September 24, 2009
- 11 replies
- Quite frankly it seems to be more important that the numbers are right on paper...at least its to someones advantage if they do...but what is really more important is the health and safety of a chronically ...
acupuncture
- By g261520 · Posted September 23, 2009
- 7 replies
- I tried acupuncture for FSGS after 8 months of prednisone did not put me in remission. I was shocked to see the home test strips read negative after one treatment. At the natural healing center I go to ...
NephCure Lunch and Learn Montreal 10/17/2009
- By psafaeian · Posted September 22, 2009
- 1 reply
- The NephCure Foundation will be hosting a Lunch and Learn patient education seminar in Montreal on Saturday October 17th 2009! This is a great opportunity to learn more about nephrotic syndrome and FSGS ...
NephCure Lunch and Learn Raleigh 9/26/09
- By psafaeian · Posted September 22, 2009
- 0 replies
- The NephCure Foundation will be hosting a Lunch and Learn patient education seminar in Raleigh on September 26th 2009! This is a great opportunity to learn more about nephrotic syndrome and FSGS, get ...
Stormy days
- By MelissaShuford · Posted September 22, 2009
- 7 replies
- When you find yourself in a raging storm.....dance in the rain with the ones you love!!!!!! Thank you lord for the blessing of my family and my inspire friends who truly understand all the fear and uncertainty ...
The Big Day for Me is here---To see the pulmonary HTH Dr.
- By MelissaShuford · Posted September 22, 2009
- 5 replies
- Em's sick again with a horrible cold....and today's the day for my visit with the pulmonary HTN clinic....and I am scared...but guess I will have my angel Em with me and I will have to be brave like her....then ...
Return of the Red Blotches
- By SasahRoxie · Posted September 22, 2009
- 11 replies
- Has anyone heard of anything like this before ? Can it be a sign of Lupus ??? I was outside hanging laundry again today. Just one load. Not alot like the other day. I was in and out of the house for a ...
Hanging in There
- By SasahRoxie · Posted September 19, 2009
- 8 replies
- I'm so disgusted! Yesterday I saw one of my Rheumy's and hoped and prayed that THIS time I would get a diagnosis. The visit I had anticipated was a disaster !!! I felt I wasn't taken seriously and I'm ...
Events and resources
