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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
FRIENDS
- By 1955-53 · Posted October 13, 2009
- 2 replies
- I have been inspired by so many people on this web site. I have sent many invitations for adding friends because just sharing (no matter what disease we have) has helped me tremendously because we are ...
No protein
- By MelissaShuford · Posted October 13, 2009
- 9 replies
- yeah i have no protein today!!!!!!! off to school i go...have a great day... God bless you...love emmy ...
Interviewing New Pediatricians
- By MelissaShuford · Posted October 12, 2009
- 0 replies
- Today starts my interviewing of possible new Peds. for Emmy...I have prayed and the Lord will bless me with making the best choice that will best suit her needs...still in the process of deciding to home ...
Cyber Angels in the little Blue Trimmed Box
- By MelissaShuford · Posted October 12, 2009
- 0 replies
- This little box has amazing power....it has brought me peace from overwhelming sadness...acknowledgement of my incredible fear of the unknown...acceptance of what we have been given... and to believe ...
Side effects of Prednisone
- By storaloppan · Posted October 12, 2009
- 1 reply
- I'm really starting to feel the side effects of prenisone. I feel "thick"...guess there's no other way to describe it. The fat that surrounds my neck and torso is a weight that's getting harder to bear ...
1 year since first post
- By andisc40 · Posted October 12, 2009
- 5 replies
- Well, I have been looking back at my post and reading others stories. I have to honestly say that I cannot believe it has been a year since I was struggling with the prednisone treatment. Time seemed ...
Fsgs and Sacardosis
- By Jules89 · Posted October 11, 2009
- 0 replies
- I joined this site in hope to find others who suffer from both of these diseases. My doctor says it is a rare condition, PLEASE respond if you suffer from both of these. I would really like to see what ...
YES!!!!! God answers prayers......thank you all for praying for EMMY
- By MelissaShuford · Posted October 10, 2009
- 10 replies
- Emmy's neph called today said her urine cr/prot ratio was 0.3 a huge difference from before!!!!!!! Praise the Lord!!!!! Now, we have to find the solutions to the other issues of her decreased white blood ...
NephCure Patient Education Seminar 10/17/09
- By psafaeian · Posted October 9, 2009
- 1 reply
- The NephCure Foundation will be hosting a Lunch and Learn patient education seminar in Montreal on Saturday October 17th 2009! This is a great opportunity to learn more about nephrotic syndrome and FSGS ...
NephCure Patient Education Seminar Houston 10/24/09
- By psafaeian · Posted October 9, 2009
- 0 replies
- The NephCure Foundation will be hosting a Lunch and Learn patient education seminar in Houston on October 24th 2009! This is a great opportunity to learn more about nephrotic syndrome and FSGS, get your ...
NephCure Patient Education Seminar Los Angeles 11/7/09
- By psafaeian · Posted October 9, 2009
- 0 replies
- The NephCure Foundation will be hosting a Lunch and Learn patient education seminar in Los Angeles on November 7th 2009! This is a great opportunity to learn more about nephrotic syndrome and FSGS, get ...
Exhausted....hurting....mad
- By MelissaShuford · Posted October 8, 2009
- 29 replies
- I don't even know what to feel or say anymore,what to ask the Drs.,what to be concerned about (worry),what to do or not do.......this world of renal disease is overwhelming to me.....I think I understand ...
Nephrotic Syndrome
- By Kaif · Posted October 8, 2009
- 3 replies
- My son Mohd. Kaif is six and half years old suffering from Nephrotic syndrome since February 10th 2009. My nephrologists at the begging prescribed Prednisolone 45mg every day for two momths, One month ...
Why ask why?
- By AmosB · Posted October 6, 2009
- 1 reply
- I can never quite get over the stress we are under. Our daughter had a low grade fever and cough. We kept her home yesterday and ended up going to our PCP, got some meds and she recommended that she stay ...
Emmy's Biopsy report... update
- By MelissaShuford · Posted October 5, 2009
- 3 replies
- After much thought.....I decided after reading and re-reading her biopsy report and praying...I called the pathology dept and ask to speak to the pathologist that read Emmy's report and guess what I got ...
SPILLING PROTEIN ALREADY
- By GAILRD · Posted October 4, 2009
- 0 replies
- JUST TESTED TY, HIS PROTEIN IS 2+ THIS MORNING. HE'S ONLY BEEN STEROID FREE SINCE MONDAY. WAS HOPING FOR A LONGER REMISSION. SO MUCH WORRY. WHAT COMES NEXT. HIS DR I KNOW WANTS TO START HIM ON PROGRAF...I ...
Tapering question?
- By roger923 · Posted October 3, 2009
- 1 reply
- We got our son off pred for first time which took 9 months. He has been off pred for 3 weeks. But he caught a cold and is now leaking protien again. My question is if he gies back on pred how long does ...
NephCure Patient Education Seminar Los Angeles 11/7/2009
- By psafaeian · Posted October 3, 2009
- 0 replies
- The NephCure Foundation will be hosting a Lunch and Learn patient education seminar in Los Angeles on November 7th 2009! This is a great opportunity to learn more about nephrotic syndrome and FSGS, get ...
NephCure Patient Education Seminar Houston 10/24/2009
- By psafaeian · Posted October 3, 2009
- 0 replies
- The NephCure Foundation will be hosting a Lunch and Learn patient education seminar in Houston on October 24th 2009! This is a great opportunity to learn more about nephrotic syndrome and FSGS, get your ...
NephCure Patient Education Seminar Montreal 10/17/2009
- By psafaeian · Posted October 3, 2009
- 0 replies
- The NephCure Foundation will be hosting a Lunch and Learn patient education seminar in Montreal on Saturday October 17th 2009! This is a great opportunity to learn more about nephrotic syndrome and FSGS ...
Events and resources
