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Journals
1st of many blogs I wrote in the hospital (1/32)
- By pepsi_lover · Posted October 26, 2009
- 0 replies
- Mega bummer..... at 01/10/09 1:24PM Ok, so here I will introduce something new I haven't put on the 8 things about me list that will be surprising for some that haven't been informed. I have a disorder ...
Emmy checking in...
- By MelissaShuford · Posted October 26, 2009
- 2 replies
- Emmy's protein was on am dip 4+ then, 2+ and 2+, but my question is if she voids during the nite is this still an accurate measurement? I know with 24hr urine's we always had to count every drop in the ...
Today is the day that the Lord has made, let us rejoice & be glad in it.
- By 1955-53 · Posted October 25, 2009
- 2 replies
- Of course, my neighbors & relatives have been finding about my SPS & so many have said they don't know how I can stand it but my faith shall sustain me. When I see children suffering so much with neurological ...
Tour de Nephcure - Fund Raiser
- By mikepalmri · Posted October 25, 2009
- 0 replies
- Hello everybody on NephSpace. I hope you are all enjoying your fall. I'm in the middle of my bike tour with the Nephcure Foundation through New England to spread awareness about NS and FSGS. Here is a ...
Here we go again....4+ protein
- By MelissaShuford · Posted October 23, 2009
- 5 replies
- Em hasn't been feeling well lately and it's hard to tell whats wrong it's still "I just don't feel good" got up this am with puffy eyes....I had not dipped her am urine in several days because we had ...
needing support
- By kaye1951 · Posted October 23, 2009
- 0 replies
- My 5 yr old grandson has recently been diagnosed with focal segmental glomerulosclerosis and the literature I read is not good at all.. this is very scary and I am trying to find someone on this site ...
Looking for support
- By kaye1951 · Posted October 23, 2009
- 1 reply
- My 5 yr old grandson has just been diagnosed with focal segmental flomerulosclerosis..is there anyone out there who also has this. email beekerwaa@yahoo.com ...
SPS
- By 1955-53 · Posted October 22, 2009
- 0 replies
- iF YOU ARE INTERESTED IN JOINING THE SPS FOUNDATION THAT IS NEW, GO TO FACEBOOK & SEARCH SPS. IT IS NEW & THE LEADER IS SUFFERING & WORKING SO HARD TO PUT THIS TOGETHER! GOD BLESS ALL OF YOU! DIANE SPENCER ...
Emmy's Peds visit...No Flu vaccination
- By MelissaShuford · Posted October 21, 2009
- 4 replies
- Good morning everyone!!!!! God Bless you all!!!!! We went to Em's new pediatrician yesterday and the visit went well Em seemed comfortable with her. H1N1 was available but between Em's egg allergy and ...
They say to exercise...how?
- By mamagemini · Posted October 20, 2009
- 0 replies
- I mean with my energy levels how can I? I walk the dogs and work 2 jobs...where is it at? These days it seems my energy level drops after 2:30 now. It was 4:30 now I am literally falling asleep at 2:30ish ...
My b-day with Emmy.....and no flu shots
- By MelissaShuford · Posted October 20, 2009
- 5 replies
- Well today's my 40 something birthday!!! I am really tired these days..... I plan on spending it with my Emmy and my husband....she will have all kinds of home made surprises all day for me .....little ...
Appointment scheduled for immunology
- By MelissaShuford · Posted October 16, 2009
- 1 reply
- Emmy's neph just called with an appt for immunology Nov 2. Maybe some answers then???? Blessings!!! Melissa ...
Getting back to normal.
- By clanseyt038 · Posted October 16, 2009
- 0 replies
- I have been on a mass of drugs now for the past 7 1/2 months, 5 weeks ago I was told that I was to recieve no more infusion and I was to start to reduce my steroid intake as my protien levels were now ...
flu shots
- By nebi · Posted October 16, 2009
- 0 replies
- my daughter is suppose to start cyclosporin today off label for skin disease. Should I wait until she gets the reg flu shot..thanks. j ...
Emmy's Nephrologist visit....uncertainty and confusion!!!!
- By MelissaShuford · Posted October 16, 2009
- 2 replies
- Em had her neph visit yesterday....this thing called FSGS is a roller coaster ride....even though her protein was negative at this visit....and has been trace to negative on am dip at home....her spot ...
nephrotic syndrome.
- By alh-9 · Posted October 15, 2009
- 1 reply
- hey everyone.. my 6 year old cousin, ashtyn, has nephrotic syndrome. she has had it since she was born, and her kidney's are now in the last stages of failing. at my school we are setting up donation ...
Blog Soaring High
- By SoaringHigh · Posted October 15, 2009
- 4 replies
- I like to write on my blog, Soaring High at www.kerrienriggs2.blogspot.com It helps me vent and most of my current writing is about my son's recent diagnosis with FSGS. I don't ever mind others reading ...
FORMER METS CATCHER - ED HEARN'S BATTLE IS THE STUFF OF HEROES
- By mwl_NCF · Posted October 14, 2009
- 0 replies
- Originally published in the New York Daily News on Saturday, October 10, 2009. (By Wayne Coffey, NY Daily News Sports Writer) Maybe you remember Ed Hearn. He played in 49 games and hit .265 as a bespectacled ...
FRIENDS
- By 1955-53 · Posted October 13, 2009
- 2 replies
- I have been inspired by so many people on this web site. I have sent many invitations for adding friends because just sharing (no matter what disease we have) has helped me tremendously because we are ...
No protein
- By MelissaShuford · Posted October 13, 2009
- 9 replies
- yeah i have no protein today!!!!!!! off to school i go...have a great day... God bless you...love emmy ...
Events and resources
