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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
FRUSTRATED!!!
- By T-rae · Posted November 10, 2009
- 3 replies
- I talked to the nurse today and my lab work has just come in and it will be put on the Docs desk and she tells me oh yea and your protein is high! Really??!! Gosh I just want to scream at them, I responded ...
Laughter is contagious
- By T-rae · Posted November 6, 2009
- 2 replies
- The kids that I babysit for are great. I love them! I just want to say that even though I am so swollen I am about to pop I can not stop smiling because the one year old that I am watching has this unbelievable ...
NephCure Patient Education Seminar in Miami 11/15
- By psafaeian · Posted November 6, 2009
- 2 replies
- The NephCure Foundation will be hosting a Patient Education Seminar in Miami on Sunday November 15th 2009! This is a great opportunity to learn more about nephrotic syndrome and FSGS, get your questions ...
NephCure Patient Education Seminar in LA on Saturday 11/7
- By psafaeian · Posted November 6, 2009
- 5 replies
- Just a reminder! The NephCure Foundation will be hosting a Patient Education Seminar in Los Angeles this Saturday November 7th 2009! This is a great opportunity to learn more about nephrotic syndrome ...
Feeling blah
- By T-rae · Posted November 5, 2009
- 7 replies
- I am feeling down. All day I have felt tears welling up, they have yet to spill out but damn I am so overly emotional at this point. I am so thankful that I like my job now and I don't mind being there ...
Too new to know what is happening
- By stars200 · Posted November 3, 2009
- 8 replies
- Just diagnosed with FSGS. Really nervous and scared so far about what I have read. The Neph was supposed to call today after she went over the report and to discuss what we should do. She did not call ...
waiting
- By dink2061 · Posted November 2, 2009
- 0 replies
- I am still waiting for the meds to kick in, retained 25lbs of water and the easiest of tasks now totally wind me. Ive been spending lots of time catching up with some great people here on Nephcure and ...
Relapse
- By T-rae · Posted November 2, 2009
- 5 replies
- Well here I go again. Wish the swelling would go away. I hate how it feels, hate how it looks, wish I didn't sound so vain. That's life I wish I could cry, but I will not let myself this time. I am just ...
Embarrassing question - severe rectal pain
- By mamagemini · Posted November 1, 2009
- 0 replies
- Anyone have severe rectal pain? I have been to Urgent care 2 times and the ER once cause Urgent care had no female on call. No hemorrhoids on the outside so what is wrong? They always give me numbing ...
Waiting for report....
- By MelissaShuford · Posted October 29, 2009
- 0 replies
- Just waiting for Em's urine prot/creat ratio....just trace this am on urine dip....still don't understand the fluctuating.... 1+ to 4+....then back to trace....we are working the diet hard trying to increase ...
Em and I just want to Share.....
- By MelissaShuford · Posted October 29, 2009
- 2 replies
- Hey everyone, Just wanted to share with all of you, (that have been such a Blessing to Em and myself), that we so very much appreciate and respect your kindness and support. We all sure seem to share ...
oct 28, 6th day of meds
- By dink2061 · Posted October 29, 2009
- 2 replies
- Doc started me on alternate day prednisone, 120 mg this is my 6th day. I have started urinating a bit more but weight hasnt gone done yet. Also on flurosomine and lipitor for cholesterol. I do not have ...
Inspire members featured
- By Brian · Posted October 28, 2009
- 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
I have found some useful info finally about school for EMMY!!!!
- By MelissaShuford · Posted October 28, 2009
- 3 replies
- In our state we have available to our children currently starting middle school (next yr for EM) North Carolina virtual school it is computer based edu (very much like home schooling without specific ...
Nephcure Foundation walk a thon
- By Inspiration · Posted October 28, 2009
- 0 replies
- To everyone out there, We are having a walk a thon here at Sand Key Park in Clearwater, Florida on December 12, 2009 for Nephcure Foundation. It is to bring awareness and help with the research of my ...
MY LIFE SO FAR LIVING WITH FSGS!
- By XTHATAGRLZX · Posted October 27, 2009
- 4 replies
- HELLO, MY NAME IS AMBER. I AM 32 YEARS OLD AND I AM MARRIED FOR 11 YEARS AND HAVE 3 BEAUTIFUL LITTLE GIRLS FROM THE AGES OF 13, 10, 3. I FOUND OUT THAT I HAD A KIDNEY DISEASE WHEN I WAS PREAGNET WITH ...
Blog 28 (that's all folks)
- By pepsi_lover · Posted October 26, 2009
- 2 replies
- My God, my God, how He has stayed with me. at 09/18/09 1:28AM * Now that y'all have choked down all those other posts, here's something to wash it down with. Ok, so I have recently been reading my oldest ...
Blog 27
- By pepsi_lover · Posted October 26, 2009
- 0 replies
- Year recap & Summer '09 at 07/02/09 12:24AM Ok, so here's what's been up with me in case anyone's been wondering: Just about fully recovered from the whole illness and relapse thing in April before the ...
Blog 26 of ? (I lost count and miscounted lol)
- By pepsi_lover · Posted October 26, 2009
- 0 replies
- News I feel like sharing at 04/23/09 11:43PM I have almost lowered the extra protein in my system back down to zero, I am "trace" on the scale which should mean the continuous swelling should have stopped ...
Blog 25 of 32
- By pepsi_lover · Posted October 26, 2009
- 0 replies
- As if what was happening to me was bad enough....nope, not the worst thing. at 03/23/09 12:11PM Well...I recently found out but within a few days ago that my grandmother on my mom's side (a.k.a Granny ...
Events and resources
