I started my first dose today. I went from taking next to nothing to taking a ton of stuff. My lasix were not working so they gave me some extra to boost it. I refuse to take steroids so I happened to ...
I am trying to get approved for disability. It seems there is something every day that makes me feel horrible. I am frequently relapsing and it seems always throwing up. My neph is so sure the vomiting ...
I received this from my senators office today on the petition I signed: Thank you for contacting me regarding legislation to improve kidney care. I appreciate hearing from you and welcome the opportunity ...
Okay, I went to see my doctor today and I feel like she doesn't care. I watch kids at my house to make money so I can be home when I don't feel well and can somewhat relax. I have 4 kids at my house all ...
take a look at this website: http://kidney.niddk.nih.gov/kudiseases/p ubs/financialhelp/ There is also: The Partnership for Prescription Assistance provides a website that directs patients, caregivers ...
I woke up feeling sick this morning. Nausea, stomach cramps, headache, lethargic and the yucky D. Went back to bed for 4 more hours...until noon. Got up and went to get some food for the week and 7up ...
I have been relapsing now for about a month. I have another month to wait to see the other kidney doctor, that my kidney doctor is sending me to. I am sooo tired all of the time and it gets old. I sat ...
I have a fantastic 9-year-old daughter who was conclusively diagnosed three years ago with idiopathic FSGS. Despite a total lack of respose to every possible drug, and spilling 3/4+ protein the entire ...
Someone posted the definition of FSGS and it got me looking so I went and found the types. I was told I had "Tip Lesion FSGS" and all that came into my picture was the tip of the kidney was scarred. So ...
FSGS sucks! That's just a simple fact! My husband found out he had FSGS in Sept of 2006. We started seeing a neph in July and it was August 30th he had a biopsy. With no family history (that we know of ...
As if the side effects of a long Prednisone taper weren't enough, I had a frightening rash show up on my right wrist on Monday after class. Like anybody that's been on Prednisone, I automatically checked ...
Good Morning, I have just updated my profile and included a short video about NephCure and information on Nephrotic Syndrome and FSGS. The video can be accessed here: http://www.inspire.com/mwl_NCF/inspirati ...
I am pleased to announce that we have updated Inspire to support video. You can now share a video of yourself, videos that you find inspirational or informative, and more. I've included one of myself ...
Hi. My son has had nephrotic since age 2 and is now 12. Has been relapsing more frequently so our Doc is thinking of trying Cytoxin. We are worried about the side effects of hair loss, sterility..etc ...
YESTERDAY WAS MY DR'S APPT.WITH THE HENRY FORD TRANSPLANT TEAM.AFTER MEETING WITH ALL THE TEAM MEMBERS,I GOT THE GOOD NEWS LAST,MY KIDNEYS ARE WORKING 24%,THE DOC SAID I SHOULD WAIT TO START DOING ANYTHING,BECAUSE ...
Well, what a rollercoaster ride for the past 12 months!! Sheesh!! I was diagnosed with FSGS a year ago....after working in an auto manufacturing plant for nearly 8 years and 3 shoulder surgeries later ...
Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...
Well our jouney started in February of this year and we are still trying to pin-point my son's nephrotic syndrome. We ran some genetic testing on his LAMB2 gene which came back negative, so he does not ...
Greetings from TeamInspire! I'm your friendly neighborhood designer, here to tell you about some new features. You might notice that today we revamped your member homepage - https://www.inspire.com/member-home.pl ...
