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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
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Journals
Still waiting
- By T-rae · Posted November 17, 2009
- 2 replies
- I am still so swollen and I am b ack on 60mg of of pred. and 80 twice a day of lasix, but nothing is happening. I can't sleep now due to the pred! I had to go to the hospital on Saturday because I was ...
Cinderella Emmy
- By MelissaShuford · Posted November 17, 2009
- 5 replies
- Thanks for all your prayers!!!!! Emmy won 2010 Junior Miss Claremont!!!! She is so giddy and excited!!! Love to see her so happy ...
food ideas, recipe staples and meal info
- By SJsMom · Posted November 16, 2009
- 4 replies
- I have been meaning to post this info for quite some I have tried to compose a list of our household staples for a low sodium diet. My daughter has chronic kidney disease (fsgs and mn for all of you kidney ...
Can Allergy Test cause Relapse?
- By Mom2Gar · Posted November 16, 2009
- 3 replies
- Wondering if anyone's child was NOT Nephrotic at the time their child was tested by the pin prick allergy test and whether or not they relapsed. I'm afraid to have him tested, because when he is bit by ...
Tomorrow is the BIG Dr and many test day!!!!!
- By MelissaShuford · Posted November 15, 2009
- 3 replies
- I have butterflies and a little scared but tomorrow is the day...still can't figure out how I am gonna complete the metabolic stress test...nose clamped and mask on NO OXYGEN in either...hop on a treadmill ...
cancel
- By amanda_gee · Posted November 15, 2009
- 13 replies
- I am just letting everyone know, that I might be canceling my nephspace soon. I just didnt want anyone to wonder where I went. Amanda ...
An Enchanted Evening to come tonight for Ms Emmy
- By MelissaShuford · Posted November 14, 2009
- 1 reply
- I am so excited for my Em....she is participating in a pageant tonight that is a fund raiser to help bring an exceptional gospel band to town that she loves...it ha s so far been a very special time for ...
Any advice on PH would be helpful and appreciated
- By MelissaShuford · Posted November 13, 2009
- 4 replies
- Now I have to focus a little on me and some medical issues...regarding my pulmonary hypertension...what are normal pressures and when do they usually start treatment...what kinds of treatments are the ...
Monday Big Day with PH Dr
- By MelissaShuford · Posted November 13, 2009
- 0 replies
- Monday is my all day long Dr visits with Heart failure clinic for a Metabolic stress test...can't breathe well now with exertion but they are gonna clamp my nose mask me and put me on a treadmill...I ...
Bored...
- By acain0022 · Posted November 12, 2009
- 2 replies
- I just wanted to say thanks to everyone...I am really starting to love this site. I finally feel like there are people out there who understand what I am going through and have been going through. Even ...
Cinderella Emmy
- By MelissaShuford · Posted November 12, 2009
- 0 replies
- My angel gets to be in her first pageant Sat...she is so excited...and we have been blessed...with a beautiful dress....and I just want her to have a enchanting nite...please pray for her!!!!!!Thank You ...
Here we go again...
- By T-rae · Posted November 11, 2009
- 0 replies
- Well the nurse called me back yesterday and I missed her call, So I called her back and I was put on the line with another Nurse. Then she seemed so confused as to why I was calling in the first place ...
Sleep?!?!
- By acain0022 · Posted November 11, 2009
- 9 replies
- All day long I am exhausted, want to take naps all the time, but when its night time, time to really go to sleep, I cant!! I just sit here and cant seem to relax long enough to fall asleep. I think it ...
FRUSTRATED!!!
- By T-rae · Posted November 10, 2009
- 3 replies
- I talked to the nurse today and my lab work has just come in and it will be put on the Docs desk and she tells me oh yea and your protein is high! Really??!! Gosh I just want to scream at them, I responded ...
Laughter is contagious
- By T-rae · Posted November 6, 2009
- 2 replies
- The kids that I babysit for are great. I love them! I just want to say that even though I am so swollen I am about to pop I can not stop smiling because the one year old that I am watching has this unbelievable ...
NephCure Patient Education Seminar in Miami 11/15
- By psafaeian · Posted November 6, 2009
- 2 replies
- The NephCure Foundation will be hosting a Patient Education Seminar in Miami on Sunday November 15th 2009! This is a great opportunity to learn more about nephrotic syndrome and FSGS, get your questions ...
NephCure Patient Education Seminar in LA on Saturday 11/7
- By psafaeian · Posted November 6, 2009
- 5 replies
- Just a reminder! The NephCure Foundation will be hosting a Patient Education Seminar in Los Angeles this Saturday November 7th 2009! This is a great opportunity to learn more about nephrotic syndrome ...
Feeling blah
- By T-rae · Posted November 5, 2009
- 7 replies
- I am feeling down. All day I have felt tears welling up, they have yet to spill out but damn I am so overly emotional at this point. I am so thankful that I like my job now and I don't mind being there ...
Too new to know what is happening
- By stars200 · Posted November 3, 2009
- 8 replies
- Just diagnosed with FSGS. Really nervous and scared so far about what I have read. The Neph was supposed to call today after she went over the report and to discuss what we should do. She did not call ...
waiting
- By dink2061 · Posted November 2, 2009
- 0 replies
- I am still waiting for the meds to kick in, retained 25lbs of water and the easiest of tasks now totally wind me. Ive been spending lots of time catching up with some great people here on Nephcure and ...
Events and resources
