I am still waiting for the meds to kick in, retained 25lbs of water and the easiest of tasks now totally wind me. Ive been spending lots of time catching up with some great people here on Nephcure and I can say for sure that the comfort of having others like me around is something I did not have 40 yeARS ago during my first diagnosis. The disease factors are still there but the "loneliness" of it all is not the stigma it use to be for me as a child.
While I am sad that any of us have to go throught this, especially the children, as I have lived their experiences, I can only be thankful that we have each other to share with because unless you live with this disease, the effects of it can hardly be understood.
I hope everyone finds some sort of comfort on this Monday evening.
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waiting
- By dink2061
- Posted November 2, 2009 at 7:01 pm · 0 replies
- Shared with the public
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