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Just diagnosed with FSGS. Really nervous and scared so far about what I have read. The Neph was supposed to call today after she went over the report and to discuss what we should do. She did not call today so a bit anxious.
My numbers are low, only symptom is the protein in urine and only a slight increase.
The biopsy showed little scarring, she said 2 out of 18. She was trying to decided if we should start treatment at all yet. She has made the comment several times that my creatine count was lower than hers.
I know there are others on this site that wish they were at the same place I am. I am afraid, not knowing what is going to happen.
