Two years ago my son started to break out in a rash. I took him to the allergist to be tested. Through that they found out that he had hypothyroidsm. This sent us to an endocronologist at UCSF. Through their blood work they found out that his sed rate was at an 88 and normal for a child is 0-20. They said that this means that he has an infection somewhere in the body. So over a course of 4 months we saw 4 diffrent specialits. We finally went back to endocronology in at UCSF with frusteration. His sed rate was now at 103 and through my research, I knew that anything over 100 meant that he had a disease. They had wanted us to go through all the specialty doctors again, but I refused. I did not want to go through that long process again, just for them to all say they could not find anything. We decided to stay there for a week where many different doctors can see him and get together to discuss him. There were so many tests done and they decided to have the GI doctor do a procedure where they stuck a camera through his bottom and mouth. They had to do some blood work before they did this procedure and throught that they found out that he was leaking protein. They finally brought in the neph doctor and he did a biopsy. At that point my son was diagnosed with FSGS. He has gone through prednisone, cytoxan, and cyclosporin and he has not responded to any. His kidney is getting worse and I'm so afraid. My son is my life and I hate to think that his life is not going to get better. He physically looks great and feels great, so I know I should be thankful, but I am scared that any day he could change. I love him so much. So thats the short version of my story believe it or not. :)