Well we went for our doctors app. yesterday and they are now saying our son does not have FSGS. But the really bad news is they have no clue what he has. The blood vessels in his kidneys are too thick in places and too thin in other places and he also has other things that just are not right in his kidneys. So they are sending his biopsy to several specialists in the nation, including mayo in MN. But the really bad news is, we have no way to treat this. I do not really care what they decide to call it, but it seems like his kidneys have some problems that can not be fixed... what I heard, was that we will see how long his current kidneys hold up, then he will need new ones... right now I just feel like I am living in a bad dream and I am waiting to wake up... trying really hard to take it day by day... but it is difficult...right now we are doing albumin iv treatments twice a day from home, which is hard but doable, I will do anything to keep him out of the hospital. For now, we will not have conclusive results on the biopsy for at least 3 to 4 weeks, so we are just holding steady. Then we will have to make a new action plan with our doctors...