a "cure" for FSGS?

Hi everyone -
I was reading some of your posts and thought I would join to share some info you might be able to use. I am 59 and have been diagnosed with FSGS for a little over 5 years. The first year was pretty awful - BP ran up to 230+, legs & left wrist swollen to twice normal (Edema), body weight up 50 lbs. Went down the usual paths with my nephrologist - prednisone, CSA, lasix, etc.
Well here's the good news! Somewhere 2 - 3 years ago after much research on web and much telephone conversation with 4 different clinical trial Neph's, I worked out a chemistry that seems to be working for me and I want to share. One of the keys for the Edema issue (and BP surprisingly) is Metolasone. I only needed 7.5 mg a day to completely stabize things along with twice a day lasix and the other meds. But the key for my "remission" if that is really what it is (time will tell of course) is the immunosupressants. For me, the magic mix turned out to be 500 MG Cellcept twice a day, and just 10 mg predisone once a day. My proteinurea is still way high, but my creatine appears to have stabilized, and all other dibilitaing symtoms have dissapeared. Here is another trick for anemia resulting from low red cell count I get (and so would you): I found regular iron supplements with vitamin C worked as well (maybe better) than expensive IV Venifer which you likely need outpatient hospital for. Seems I don't need Procrit injections near as often (I'm down to one evey six - eight weeks or so).
Talk to your Neph about this but keep a healthy cynicism - many doctors have a "pride of authorship" and don't want the patient telling THEM what to do. But remember - it's YOUR body and you life! Live well.