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Nephrotic Syndrome...very confused.

aartin
  • By aartin · 3:11 am
  • In Children with nephrotic syndrome · 3 replies
  • Hi, my 3 year old was diagnosed with MCNS on Tuesday (today is sunday in Australia). He started on pred 40mg on Tuesday and by Friday we were told to reduce this to 30mg as he couldn't sleep and was exhausted ...

Problems w/ Cholesterol Meds?

hope4health
  • By hope4health · 2:44 am
  • In Adults with nephrotic syndrome · 3 replies
  • Has anyone had problems with cholesterol medications? I was on Lipitor and then Crestor. Both meds gave me joint pain which I later found out could be dangerous for the kidneys (something to do with enzymes ...

High-Dose Intravenous Steroids to Induce Remission -- Seems to Work!

rob38
  • By rob38 · Yesterday at 11:50 am
  • In Adults with nephrotic syndrome · 0 replies
  • I just wanted to share with you all my experience. I was diagnosed with MCNS in May, after a renal biopsy. I have Iga deposits, which I'm told make me harder to treat and put me at higher risk for relapses ...

slow response

amyb1
  • By amyb1 · Yesterday at 4:50 am
  • In Children with nephrotic syndrome · 10 replies
  • ugh...I just posted a long post and lost it in the preview...so here goes again... My four year old daughter, Bunny, was diagnosed with MCNS in January. She has had a slow response to the steroids and ...

possible sympton from the meds

flyahead
  • By flyahead · Yesterday at 4:01 am
  • In Children with FSGS · 4 replies
  • Posted by flyahead in Children with FSGS Friday February 22, 2008 at 10:42 AM EST Hello, I joined the community approx. a week ago. The every changing world of FSGS is a hard one to learn. When I think ...

When do you stop fearing the doctor?

kstreza
  • By kstreza · September 6, 2008
  • In Adults with nephrotic syndrome · 3 replies
  • I'm the first to admit it. I'm terrified of getting my results back from tests. I typically get a test the first of the week and see my doctor on Friday, so I spend at least a week worrying. The weekend ...

I am done with my cytoxin treatment

juliomexicano
  • By juliomexicano · September 5, 2008
  • In Adults with nephrotic syndrome · 1 reply
  • Well all, I just wanted you all to know that I finished my six month treatment program on cytoxin.(6 mos is all I can do) It was going good till my last visit with the Dr. and she told me that my protien ...

My 2 year old was recently diagnosed

kcsmommy
  • By kcsmommy · September 4, 2008
  • In Children with nephrotic syndrome · 10 replies
  • My 2 year old son was just diagnosed with Nephrotic Syndrome on July 10, 2008. After about a week of receiving Prednisolone, he showed neg. in his urine for about 10 days. But, at the end of July, he ...

Alternative Treatments for FSGS

Subie
  • By Subie · September 4, 2008
  • In Children with FSGS · 34 replies
  • Wondering if anyone has had success with alternative treatments for FSGS? Would appreciate any information you can provide ...

Rapid GFR drop

Morse
  • By Morse · September 4, 2008
  • In Adults with FSGS · 6 replies
  • Hey all... Ok... Quick question about GFR falling off the fence just like Humpty Dumpty! It is crashing with a big old boom! (Sorry, trying to stay as upbeat as possible with no answers!) Here is the ...

I NEED YOUR HELP!!

Clio1973
  • By Clio1973 · September 4, 2008
  • In Adults with nephrotic syndrome · 6 replies
  • Hi, I hope someone could help! My brother-in-law just got diagnosed with Minimal Change Disease and is having a really hard time of it. I was wondering if someone could shed some light on what he going ...

Step Forward North Jersey

DonnaColucci
  • By DonnaColucci · September 3, 2008
  • In Fundraise for NephCure · 0 replies
  • Step Forward North Jersey When: September 14, 2008 10:00a.m. – 4:00p.m. rain or shine… Where: Over Peck Park, Leonia, NJ Email address: Decesquared@verizon.net or nephcure.org STEP FORWARD NORTH JERSEY ...

Dizzy???

popsycle
  • By popsycle · September 3, 2008
  • In Adults with FSGS · 6 replies
  • Hi, I wanted to put this out there to see if anyone else has any of these problems. I have good kidney function and found out I have fsgs two years ago. I take a water pill, lisinipril 5mg and cyclosporine ...

High Blood Pressure

Aweson-son
  • By Aweson-son · September 3, 2008
  • In Adults with FSGS · 10 replies
  • Okay so I went to the doctor the other day and for some reason my blood pressure is high. Normally the meds control it, but for some reason they are not. She upped my lisinopril (bp meds) from 5mg to ...

Super Sad...babies may be a no

vanessakb
  • By vanessakb · September 1, 2008
  • In Adults with FSGS · 9 replies
  • I know I've posted a few times about babies and blah blah blah, but I finally went and visited with an OB today. Lets just say I did not leave there feeling very positive. She pretty much scared the living ...

medic alert bracelets and fistulas

RiverWhispering
  • By RiverWhispering · August 27, 2008
  • In Adults with FSGS · 1 reply
  • I met with my neph doctor friday, the good news is my gfr is about the same as a year ago... happy about that news. I asked him if people with fsgs need to wear a medic alert bracelet once they have a ...

Breakthrough drug FT-11 has the potential to end the need for dialysis in k

Mrbean
  • By Mrbean · August 26, 2008
  • In Adults with FSGS · 3 replies
  • Australian scientists say they have developed a drug with the potential to save millions of lives from kidney disease. The scientists from the University of Melbourne, St Vincent's Hospital and Bio21 ...

life after transplant and chances of fsgs striking the new kidney

namitabh
  • By namitabh · August 22, 2008
  • In Adults with FSGS · 3 replies
  • hi friends, my wife, Archana, 33 yrs., is suffering from FSGS and AIHA. her S. CR. is 5.1 and doctors have advised transplant. can you all tell me what would be the chance s of success in transplant ...

Pregnancy and FSGS

allisonejw84
  • By allisonejw84 · August 21, 2008
  • In Adults with FSGS · 15 replies
  • I am 23 years old and do not have any kids. I desperately want them. I have read online that once your kidneys start to fail, you cannot have kids without serious complications. I know everything I have ...

2008 Step Forward Walk - CHICAGO

Mike_F
  • By Mike_F · August 21, 2008
  • In Fundraise for NephCure · 4 replies
  • Hi Everyone! I'm new to this site, but I'm so glad I found it. For anyone in the chicago area, we are having a fundraising walk on September 14th. It's are second Annual Chicago walk and it is a lot of ...

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