Hi, my 3 year old was diagnosed with MCNS on Tuesday (today is sunday in Australia). He started on pred 40mg on Tuesday and by Friday we were told to reduce this to 30mg as he couldn't sleep and was exhausted ...
Has anyone had problems with cholesterol medications? I was on Lipitor and then Crestor. Both meds gave me joint pain which I later found out could be dangerous for the kidneys (something to do with enzymes ...
I just wanted to share with you all my experience. I was diagnosed with MCNS in May, after a renal biopsy. I have Iga deposits, which I'm told make me harder to treat and put me at higher risk for relapses ...
ugh...I just posted a long post and lost it in the preview...so here goes again... My four year old daughter, Bunny, was diagnosed with MCNS in January. She has had a slow response to the steroids and ...
Posted by flyahead in Children with FSGS Friday February 22, 2008 at 10:42 AM EST Hello, I joined the community approx. a week ago. The every changing world of FSGS is a hard one to learn. When I think ...
I'm the first to admit it. I'm terrified of getting my results back from tests. I typically get a test the first of the week and see my doctor on Friday, so I spend at least a week worrying. The weekend ...
Well all, I just wanted you all to know that I finished my six month treatment program on cytoxin.(6 mos is all I can do) It was going good till my last visit with the Dr. and she told me that my protien ...
My 2 year old son was just diagnosed with Nephrotic Syndrome on July 10, 2008. After about a week of receiving Prednisolone, he showed neg. in his urine for about 10 days. But, at the end of July, he ...
Hey all... Ok... Quick question about GFR falling off the fence just like Humpty Dumpty! It is crashing with a big old boom! (Sorry, trying to stay as upbeat as possible with no answers!) Here is the ...
Hi, I hope someone could help! My brother-in-law just got diagnosed with Minimal Change Disease and is having a really hard time of it. I was wondering if someone could shed some light on what he going ...
Step Forward North Jersey When: September 14, 2008 10:00a.m. – 4:00p.m. rain or shine… Where: Over Peck Park, Leonia, NJ Email address: Decesquared@verizon.net or nephcure.org STEP FORWARD NORTH JERSEY ...
Hi, I wanted to put this out there to see if anyone else has any of these problems. I have good kidney function and found out I have fsgs two years ago. I take a water pill, lisinipril 5mg and cyclosporine ...
Okay so I went to the doctor the other day and for some reason my blood pressure is high. Normally the meds control it, but for some reason they are not. She upped my lisinopril (bp meds) from 5mg to ...
I know I've posted a few times about babies and blah blah blah, but I finally went and visited with an OB today. Lets just say I did not leave there feeling very positive. She pretty much scared the living ...
I met with my neph doctor friday, the good news is my gfr is about the same as a year ago... happy about that news. I asked him if people with fsgs need to wear a medic alert bracelet once they have a ...
Australian scientists say they have developed a drug with the potential to save millions of lives from kidney disease. The scientists from the University of Melbourne, St Vincent's Hospital and Bio21 ...
hi friends, my wife, Archana, 33 yrs., is suffering from FSGS and AIHA. her S. CR. is 5.1 and doctors have advised transplant. can you all tell me what would be the chance s of success in transplant ...
I am 23 years old and do not have any kids. I desperately want them. I have read online that once your kidneys start to fail, you cannot have kids without serious complications. I know everything I have ...
Hi Everyone! I'm new to this site, but I'm so glad I found it. For anyone in the chicago area, we are having a fundraising walk on September 14th. It's are second Annual Chicago walk and it is a lot of ...
