My son Eric (2 yr old diag on 1/2008) is being tapered off pred -- currently 14cc every other day. Treatment was supposed to be 4 weeks at that dose -- well, after 2 weeks, I'm seeing a '30' on the stix (3rd square from the left -- not too clear on the reading).
At the neph's office last thursday, I was told it read 1+. Is that the same? anyways, my mother in law (caretaker while I'm on shift) measured it yesterday and told me it is showing 100 (4th square on the scale). I am scared he is relapsing!!
I emailed the neph, and she tells me not to worry since it can fluctuate and correct itself. She said not to up the pred dose yet, to keep the current dose for another 2 weeks like planned.... I'm still not sold on not taking further action to "stop" or lessen a potential full relapse.
I havnt had any experience with a relapse yet and I would like to know how you folks deal with a similar situation? I've read here where you measure the protein daily to "catch it early".. etc. but what do you do about it when it is caught early?
Also can you shed a bit of light on the 30, 1+, 100, etc..
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