swelling - proteins and/or pred?

• By polaris
• Posted September 26, 2008 at 4:28 am

I think once you are completey off the prednisone
the swelling will improve even more . What works for
me is a very low sodium diet and I drink alot of water.
Which I admit is a hard way to go since most all good
foods are high in sodium.Just got to do the best you can I guess. Good luck to you

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• By ChiCubs7
• Posted September 26, 2008 at 7:29 am

When I go into remission, the swelling goes away completely and very quickly. Within days, the swelling is gone.

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• By Beth75
• Posted September 26, 2008 at 9:11 am

thanks for sharing! I know the pred made me swell up worse than I was with just the MCD, so I hope that is part of what is causing the swelling.........

anyone have the swelling stay after being off pred and having remission?

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• By smk
• Posted September 27, 2008 at 5:11 am

Beth, the salt is really bad for you. When you need some spice, try curry powder, or garlic powder, or put a little cheese in the omelette, or on your saltless bread. I am now on 5 mg of prednizone every second day, and my swelling too is going down, yeah! I did have a bout of gout as a side effect of the cyclosporine I'm on, but that is now gone due to a three day 'hit and run" treatment with 50mg prednizone daily.

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• By smk
• Posted September 27, 2008 at 5:13 am

Yes, the water is very good, I drink at least two liters daily, plus a coffe and a tea. And of course, no salt whenever possible.

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• By Terrismom
• Posted September 27, 2008 at 7:12 pm

Beth I have been off the prednisone since June and I am still swelling. I get up in the morning with tight hands and my feet are swollen. I am on 80mg lasik every day and another water pill every other day. My neph says it is from the protein spilling. I still have a minimal amount in the urine but he doesnt think it is high enough to put me back on the prednisone-thank God. But I can understand how fustrating it is to still be swelling. I keep on buying shoes because none of mine fit right. I have a job where I am on my feet most of the day and I change my shoes three or four times a day.

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• By mom23boys
• Posted September 27, 2008 at 7:15 pm

I think as long as you are on prednisone you will retain water more when you eat salt. I have been without prednisone and do not swell no matter what but as long as I was on Prednisone and for severakl months after I was swelling around my eyes after salt in a high dose. It is like crack to me too. I would eat a whole jar of sour garlic pickles in a day but now do not crave as much. The adrenals also control our salt/water hormone/level and I find I am better with cravings now that I am far away from prednisone and NS. Good Luck. I really hope all goes your way. I don't know why I was blessed to have this all be over in 3 months and yet for you it is continuing. I will just keep praying it all goes away and never comes back

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• By ChristiL
• Posted September 30, 2008 at 12:47 am

Beth,

I'm in a complete remission. However, because I developed a severe case of Cushings Syndrome with the prednisone use, its taken about 6 months to start to look like me again. I still have traces of swelling every now and then (edema). For that, I take a small dose of lasix. Anyway, make sure you are seeing an endocrinologist while you are tapering off prednisone.

By the way ... I love salt too! I do my best to behave but still slip now and then.

Take care!

ChristiL

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• By Beth75
• Posted September 30, 2008 at 9:08 am

Thanks Christi, I got cushings syndrome too from my chest all the way up. I went up about 4 bra sizes. Now at 5mg of pred I think my face is getting slightly better.

What do you see an endocrinologist for? Is that for the bone density?

I am glad you are in remission!! That is wonderful news I am so happy for you! How long did it take and which drugs worked for you?

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• By amelieMA
• Posted September 30, 2008 at 10:00 am

Steven is now also on 5 mg prednisone every other day and his swelling has gone down too.
He makes sure he drinks a lot of water; we think that helps as well.
Amelie

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